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Review Article

Goal setting with caregivers of adults in the community: a mixed methods systematic review

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Pages 1943-1963 | Received 09 Nov 2012, Accepted 13 Jan 2014, Published online: 23 May 2014

References

  • Barnes MD, Ward AB. Textbook of rehabilitation medicine. Oxford, England: Oxford University Press; 2000
  • Lawler J, Dowswell G, Hearn J, et al. Recovering from stroke: a qualitative investigation of the role of goal setting in late stroke recovery. J Adv Nurs 1999;30:401–9
  • Bradley EH, Bogardus ST Jr, Tinetti ME, Inouye SK. Goal-setting in clinical medicine. Soc Sci Med 1999;49:267–78
  • Brown VA, Bartholomew LK, Naik AD. Management of chronic hypertension in older men: an exploration of patient goal-setting. Patient Educ Couns 2007;69:93–9
  • Northen JG, Rust DM, Nelson CE, Watts JH. Involvement of adult rehabilitation patients in setting occupational therapy goals. Am J Occup Ther 1995;49:214–20
  • Eschenfelder VG. Shaping the goal setting process in OT: the role of meaningful occupation. Phys Occup Ther Geriatr 2005;23:67–81
  • Jeon YH. Shaping mutuality: nurse-family caregiver interactions in caring for older people with depression. Int J Ment Health Nurs 2004;13:126–34
  • Kamioka Y, Yoshino T, Sugaya K, et al. Goal-setting method and goal attainment measures in physical therapy for stroke patients: a systematic review. J Phys Ther Sci 2009;21:399–415
  • Young CA, Manmathan GP, Ward JC. Perceptions of goal setting in a neurological rehabilitation unit: a qualitative study of patients, carers and staff. J Rehabil Med 2008;40:190–4
  • Bartolo M, De Luca D, Serrao M, et al. Caregivers burden and needs in community neurorehabilitation. J Rehabil Med 2010;42:818–22
  • Smith J, Forster A, Young J, et al. Information provision for stroke patients and their caregivers. Cochrane Database Syst Rev 2008;2:1–86. Available from: http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD001919.pub2/abstract [last accessed 11 Sep 2011]
  • Kalra L, Evans A, Perez I, et al. Training carers of stroke patients: randomised controlled trial. BMJ 2004;328:1099–1101. Available from: http://www.bmj.com/content/328/7448/1099 [last accessed 11 Sept 2011]
  • Mattingly CE, Lawlor MC. Disability experience from a family perspective. In: Crepeau EB, Cohn ES, Schell BAB, eds. Willard and Spackman’s occupational therapy. 10th ed. Philadelphia (PA): Lippincott Williams & Wilkins; 2003:69–79
  • Canadian Association of Occupational Therapists. Enabling occupation: an occupational therapy perspective. Ottawa: Canadian Association of Occupational Therapists; 1997
  • Sohlberg MM, Larsen J, McLaughlin KA, et al. What does it take to collaborate with families affected by brain injury? A preliminary model. J Head Trauma Rehabil 2001;16:498–511
  • Brown SM, Humphry R, Taylor E. A model of the nature of family-therapist relationships: implications for education. Am J Occup Ther 1997;51:597–603
  • McLaughlin KA. Collaborative intervention in clinical settings. J Med Speech Lang Pathol 2006;14:xi–xiv
  • Klein J, Liu L. Family-therapist relationships in caring for older adults. Phys Occup Ther Geriatr 2010;28:259–70
  • Levack WMM, Siegert RJ, Dean SG, McPherson KM. Goal planning for adults with acquired brain injury: how clinicians talk about involving family. Brain Inj 2009;23:192–202
  • Levack WMM, Dean SG, McPherson KM, Siegert RJ. How clinicians talk about the application of goal planning to rehabilitation for people with brain injury-variable interpretations of value and purpose. Brain Inj 2006;20:1439–49
  • Tamm M. Relatives as a help or a hindrance – a grounded theory study seen from the perspective of the occupational therapist. Scand J Occup Ther 1999;6:36–45
  • Bennett S, Shand S, Liddle J. Occupational therapy practice in Australia with people with dementia: a profile in need of change. Aust Occup Ther J 2011;58:155–63
  • Rosewilliam S, Roskell CA, Pandyan AD. A systematic review and synthesis of the quantitative and qualitative evidence behind patient-centred goal setting in stroke rehabilitation. Clin Rehabil 2011;25:501–14
  • Bouwens SF, van Heugten CM, Verhey FR. Review of goal attainment scaling as a useful outcome measure in psychogeriatric patients with cognitive disorders. Dement Geriatr Cogn Disord 2008;26:528–40
  • Hurn J, Kneebone I, Cropley M. Goal setting as an outcome measure: a systematic review. Clin Rehabil 2006;20:756–72
  • Carswell A, McColl MA, Baptiste S, et al. The Canadian occupational performance measure: a research and clinical literature review. Can J Occup Ther 2004;71:210–22
  • Levack WMM, Siegert RJ, McPherson KM, et al. Is goal planning in rehabilitation effective? A systematic review. Clin Rehabil 2006;20:739–55
  • Liberati A, Altman DG, Tetzlaff J, et al. The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate healthcare interventions: explanation and elaboration. PLoS Med 2009;6:e1000100. Avialable from: http://www.plosmedicine.org/home.action [last accessed 12 Aug 2010]
  • Higgins J, Altman D, Sterne J. Chapter 8: assessing risk of bias in included studies. In: Higgins JPT, Green S, eds. Cochrane handbook for systematic reviews of interventions Version 5.1.0. Chichester, UK: The Cochrane Collaboration; 2011:187–240. Avaliable from: www.cochrane-handbook.org [last accessed 15 Oct 2011]
  • Downs SH, Black N. The feasibility of creating a checklist for the assessment of the methodological quality both of randomised and non-randomised studies of health care interventions. J Epidemiol Community Health 1998;52:377–84
  • Deeks JJ, Dinnes J, D’Amico R, et al. Evaluating non-randomised intervention studies. Health Technol Assess 2003;7:1–192. Available from: http://www.hta.ac.uk/ [last accessed 9 Sep 2011]
  • Katrak P, Bialocerkowski A, Massy-Westropp N, et al. A systematic review of the content of critical appraisal tools. BMC Med Res Methodol 2004;4:22
  • Law M, Stewart D, Pollock N, et al. Guidelines for critical review form-Quantitative studies. Hamilton, ON: Occupational Therapy Evidence-Based Practice Research Group, McMaster University; 1998. Available from: http://www.srs-mcmaster.ca/Portals/20/pdf/ebp/quanguidelines.pdf [last accessed 25 Aug 2011]
  • Spencer L, Ritchie J, Lewis J, Dillon L. Quality in qualitive evaluation: a framework for assessing research evidence. Government Chief Social Researcher’s Office. London: Cabinet Office; 2003
  • Cohen DJ, Crabtree BF. Evaluative criteria for qualitative research in health care: controversies and recommendations. Ann Fam Med 2008;6:331–9
  • University of York. NHS Centre for Reviews Dissemination. Systematic reviews: CRD’s guidance for undertaking reviews in health care. Layerthorpe: University of York, Centre for Reviews and Dissemination; 2009
  • The Cochrane Collaboration. Cochrane handbook for systematic reviews of interventions. Chichester, UK: The Cochrane Collaboration; 2011. Available from: www.cochrane-handbook.org [last accessed 13 Sep 2011]
  • Aminzadeh F, Byszewski A, Dalziel WB, et al. Effectiveness of outpatient geriatric assessment programs: exploring caregiver needs, goals, and outcomes. J Gerontol Nurs 2005;31:19–25
  • Aminzadeh F, Dalziel WB, Byszewski A, et al. Outpatient consultative comprehensive geriatric assessment: targeting patient/caregiver dyads at risk for low-adherence. Can J Geriatr 2004;7:118–22
  • Bogardus ST, Bradley EH, Williams CS, et al. Goals for the care of frail older adults: do caregivers and clinicians agree? Am J Med 2001;110:97–102
  • Bogardus ST Jr, Bradley EH, Williams CS, et al. Achieving goals in geriatric assessment: role of caregiver agreement and adherence to recommendations. J Am Geriatr Soc 2004;52:99–105
  • Burgio L, Stevens A, Guy D, et al. Impact of two psychosocial interventions on white and African American family caregivers of individuals with dementia. Gerontologist 2003;43:568–79
  • Gitlin LN, Corcoran M, Winter L, et al. A randomized, controlled trial of a home environmental intervention: effect on efficacy and upset in caregivers and on daily function of persons with dementia. Gerontologist 2001;41:4–14
  • Corcoran MA, Gitlin LN. Family caregiver acceptance and use of environmental strategies provided in an occupational therapy intervention. Phys Occup Ther Geriatr 2001;19:1–20
  • Corcoran MA, Gitlin LN. Dementia management: an occupational therapy home based intervention for caregivers. Am J Occup Ther 1992;46:801–8
  • Eisdorfer C, Czaja SJ, Loewenstein DA, et al. The effect of a family therapy and technology-based intervention on caregiver depression. Gerontologist 2003;43:521–31
  • Foster SM, Layton HS, Qualls SH, Klebe KJ. Tailored caregiver therapy: consumer response to intervention. Clin Gerontol 2009;32:177–97
  • Gallagher-Thompson D, Coon DW, Solano N, et al. Change in indices of distress among Latino and Anglo female caregivers of elderly relatives with dementia: site-specific results from the REACH national collaborative study. Gerontologist 2003;43:580–91
  • Gitlin LN, Winter L, Corcoran M, et al. Effects of the home environmental skill-building program on the caregiver-care recipient dyad: 6-month outcomes from the Philadelphia REACH Initiative. Gerontologist 2003;43:532–46
  • Gitlin LN, Hauck WW, Dennis MP, Winter L. Maintenance of effects of the home environmental skill-building program for family caregivers and individuals with Alzheimer’s disease and related disorders. J Gerontol A Biol Sci Med Sci 2005;60:368–74
  • Chee YK, Gitlin LN, Dennis MP, Hauck WW. Predictors of adherence to a skill-building intervention in dementia caregivers. J Gerontol A Biol Sci Med Sci 2007;62:673–8
  • Hilgeman MM, DeCoster J, Allen RS, Burgio LD. Positive aspects of caregiving as a moderator of treatment outcome over 12 months. Psychol Aging 2007;22:361–71
  • Gitlin LN, Reever K, Dennis MP, et al. Enhancing quality of life of families who use Adult Day Services: short- and long-term effects of the Adult Day Services Plus program. Gerontologist 2006;46:630–9
  • Reever KE, Mathieu E, Dennis MP, Gitlin LN. Adult Day Services Plus: augmenting adult day centers with systematic care management for family caregivers. Alzheimer’s Care Quarterly 2004;5:332–9
  • Gitlin LN, Winter L, Dennis MP, et al. Targeting and managing behavioral symptoms in individuals with dementia: a randomized trial of a nonpharmacological intervention. J Am Geriatr Soc 2010;58:1465–74
  • Gitlin LN, Winter L, Dennis MP, Hauck WW. A non-pharmacological intervention to manage behavioral and psychological symptoms of dementia and reduce caregiver distress: design and methods of project ACT3. Clin Interv Aging 2007;2:695–703
  • Gitlin LN, Winter L, Dennis MP, et al. A biobehavioral home-based intervention and the well-being of patients with dementia and their caregivers. J Am Med Assoc 2010;304:983–91
  • Graff MJ, Vernooij-Dassen MJ, Zajec J, et al. How can occupational therapy improve the daily performance and communication of an older patient with dementia and his primary caregiver? Dementia 2006;5:503–32
  • Graff MJL, Vernooij-Dassen MJM, Thijssen M, et al. Effects of community occupational therapy on quality of life, mood, and health status in dementia patients and their caregivers: a randomized controlled trial. J Gerontol A Biol Sci Med Sci 2007;62:1002–9
  • Graff MJ, Vernooij-Dassen MJ, Thijssen M, et al. Community based occupational therapy for patients with dementia and their care givers: randomised controlled trial. BMJ 2006;333:9
  • McCurry SM, Gibbons LE, Logsdon RG, et al. Nighttime insomnia treatment and education for Alzheimer’s disease: a randomized controlled trial. J Am Geriatr Soc 2005;53:793–802
  • McCurry SM, Gibbons LE, Logsdon RG, et al. Training caregivers to change the sleep hygiene practices of patients with dementia: the NITE-AD project. J Am Geriatr Soc 2003;51:1455–60
  • Nualnetr N, Srisoparb W, Eungpinichpong W. The application of community neurorehabilitation using a family-centred approach to persons with disability: a case study in stroke survivors. Asia Pacific Disab Rehab J 2010;21:71–9
  • Rockwood K, Fay S, Song X, et al. Attainment of treatment goals by people with Alzheimer’s disease receiving galantamine: a randomized controlled trial. Can Med Assoc J 2006;174:1099–105
  • Rockwood K, Fay S, Jarrett P, Asp E. Effect of galantamine on verbal repetition in AD: a secondary analysis of the VISTA trial. Neurology 2007;68:1116–21
  • Rockwood K, Fay S, Gorman M. The ADAS-cog and clinically meaningful change in the VISTA clinical trial of galantamine for Alzheimer’s disease. Int J Geriatr Psychiatry 2010;25:191–201
  • Cook C, Fay S, Rockwood K. Decreased initiation of usual activities in people with mild-to-moderate Alzheimer’s disease: a descriptive analysis from the VISTA clinical trial. Int Psychogeriatr 2008;20:952–63
  • Cook C, Fay S, Rockwood K. Verbal repetition in people with mild-to-moderate Alzheimer disease: a descriptive analysis from the VISTA clinical trial. Alzheimer Dis Assoc Disord 2009;23:146–51
  • Hamilton L, Fay S, Rockwood K. Misplacing objects in mild to moderate Alzheimer’s disease: a descriptive analysis from the VISTA clinical trial. J Neurol Neurosurg Psychiatry 2009;80:960–5
  • Rockwood K, Graham JE, Fay S. Goal setting and attainment in Alzheimer’s disease patients treated with donepezil. J Neurol Neurosurg Psychiatry 2002;73:500–7
  • Rockwood K, Fay S, Gorman M, et al. The clinical meaningfulness of ADAS-Cog changes in Alzheimer’s disease patients treated with donepezil in an open-label trial. BMC Neurol 2007;7:26
  • Asp E, Cloutier F, Fay S, et al. Verbal repetition in patients with Alzheimer’s disease who receive donepezil. Int J Geriatr Psychiatry 2006;21:426–31
  • Wisniewski SR, Marcus SM, Burgio LD, et al. The resources for enhancing Alzheimer’s Caregiver Health (REACH): project design and baseline characteristics. Psychol Aging 2003;18:375–84
  • Daly J, Willis K, Small R, et al. A hierarchy of evidence for assessing qualitative research. J Clin Epidemiol 2007;6:43–9
  • Pope C, Ziebland S, Mays N. Analysing qualitative data. BMJ 2000;320:114–16
  • Levack WMM, Dean SG, Siegert RJ, McPherson KM. Purposes and mechanisms of goal planning in rehabilitation: the need for a critical distinction. Disabil Rehabil 2006;28:741–9
  • Scobbie L, Dixon D, Wyke S. Goal setting and action planning in the rehabilitation setting: development of a theoretically informed practice framework. Clin Rehabil 2011;25:468–82
  • Rockwood K, Howlett S, Stadnyk K, et al. Responsiveness of goal attainment scaling in a randomized controlled trial of comprehensive geriatric assessment. J Clin Epidemiol 2003;56:736–43
  • Cox R, Amsters D. Goal attainment scaling: an effective outcome measure for rural and remote health services. Aust J Rural Health 2002;10:256–61
  • Jennings B. Clinical report: evaluating the efficacy of a group audiologic rehabilitation program for adults with hearing loss using goal attainment scaling Approach. CJSLPA 2009;33:146–53
  • Mullis R, Lewis M, Hay EM. What does minimal important change mean to patients? Associations between individualized goal attainment scores and disability, general health status and global change in condition. J Eval Clin Pract 2011;17:244–50
  • Chen YH, Rodger S, Polatjko H. Experiences with the COPM and client-centred practice in adult neurorehabilitation in Taiwan. Occup Ther Int 2002;9:167–84
  • Bouchard K, Dubuisson W, Simard J, Dorval M. Systematic mixed-methods reviews are not ready to be assessed with the available tools. J Clin Epidemiol 2011;64:926–92

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