Access to health and support services: perspectives of people living with a long-term traumatic spinal cord injury in rural and urban areas

References

• Jonas S. The wellness process for healthy living: a mental tool for facilitating progress through the stages of change. AMAA J Health Care Ind 2005;8:5–7
   Google Scholar
• Anspaugh D, Hamrick M, Rosato F. Wellness: concepts and applications. 8th ed. Boston: McGraw Hill; 2010
   Google Scholar
• Hales D. An invitation to health for the twenty-first century. 11th ed. Belmont (CA): Thomson & Wadsworth; 2005
   Google Scholar
• Miller G, Foster LT. Critical synthesis of wellness literature. University of Victoria, Faculty of Human and Social Development & Department of Geography, 2010. Available from: www.geog.uvic.ca/wellness [last accessed 20 Nov 2013]
   Google Scholar
• Human Resources and Skills Development Canada. Canadians in Context – Geographic distribution. Available from: http://www4.hrsdc.gc.ca/[email protected]?iid=34 [last accessed 20 Nov 2013]
   Google Scholar
• Furlan JC, Krassioukov A, Miller WC, Sakakibara BM. Epidemiology of traumatic SCI. In: Eng JJ, Teasell RW, Miller WC, et al., eds. Spinal cord injury rehabilitation evidence. Vol. 4. Vancouver: SCIRE Project; 2012:1–16
   Google Scholar
• Suzuki H, Krahn G, McCarthy M, Adams E. Understanding health outcomes: physical secondary conditions in people with spinal cord injury. Rehabil Psychol 2007;52:338–50
   Web of Science ®Google Scholar
• Craig A, Tran Y, Middleton J. Psychological morbidity and spinal cord injury: a systematic review. Spinal Cord 2009;47:108–14
   PubMed Web of Science ®Google Scholar
• Bloemen-Vrencken JHA, Post MWMW, Hendriks JMS, et al. Health problems with spinal cord injury living in the Netherlands. Disabil Rehabil 2005;27:1381–9
   PubMed Web of Science ®Google Scholar
• Cox RJ, Amsters DI, Pershouse KJ. The need for a multidisciplinary outreach services for people with spinal cord injury living in the community. Clin Rehabil 2001;15:600–6
   PubMed Web of Science ®Google Scholar
• Anson CA, Shepherd C. Incidence of secondary complications in spinal cord injury. Int J Rehabil Res 1996;10:56–66
   Google Scholar
• Widerstrom-Noga EG, Felipe-Cuervo EF, Broton JG, et al. Perceived difficulty in dealing with consequences of spinal cord injury. Arch Phys Med Rehabil 1999;80;580–6
   PubMed Web of Science ®Google Scholar
• Keon WJ, Pepin L. Population health policy: issues and options. Fourth Report of the Subcommittee on Population Health of the Standing Senate Committee on Social Affairs, Science and Technology; 2008. Available from: http://www.parl.gc.ca/Content/SEN/Committee/392/soci/rep/rep10apr08-e.pdf [last accessed 20 Nov 2013]
   Google Scholar
• Hagglund KJ, Clay DL, Acuff M. Community reintegration for persons with spinal cord injury living in America. Top Spinal Cord Inj Rehabil 1998;4:28–40
   Google Scholar
• Booth S, Kendall M. Benefits and challenges of providing transitional rehabilitation services to people with spinal cord injury from regional, rural and remote locations. Aust J Rural Health 2007;15:172–8
   PubMed Web of Science ®Google Scholar
• Middleton J, Tran Y, Craig A. Relationship between quality of life and self-efficacy in persons with spinal cord injury. Arch Phys Med Rehabil 2007;88:1643–8
   PubMed Web of Science ®Google Scholar
• Meyers AR, Mitra M, Klein Walker D, et al. Predictors of secondary conditions in a sample of independently living adults with high-level spinal cord injury. Top Spinal Cord Inj Rehabil 2000;6:1–8
   Google Scholar
• World Health Organization. Disability and health. Fact sheet No. 352, 2013. Available from: http://www.who.int/mediacentre/factsheets/fs352/en/ [last accessed 20 Nov 2013]
   Google Scholar
• Altman B, Bernstein A. Disability and health in the United States, 2001–2005. Hyattsville (MD): National Center for Health Statistics; 2008
   Google Scholar
• National Council on Disability. The current state of health care for people with disabilities. Washington (DC): National Council on Disability; 2009
   Google Scholar
• Gulliford M, Figueroa-Munoz J, Morgan M, et al. What does ‘access to health care’ mean? J Health Serv Res Policy 2002;7:186–8
   PubMedGoogle Scholar
• Penchansky R, Thomas JW. The concept of access: definition and relationship with consumer satisfaction. Medl Care 1981;19:127–40
   PubMed Web of Science ®Google Scholar
• Bockenek WL. Primary care for persons with disabilities: a fragmented model of care for persons with spinal cord injuries. Am J Phys Med Rehabil 1997;76:S43–6
   PubMed Web of Science ®Google Scholar
• Donnelly C, MColl MA, Charlifue S, et al. Utilization, access and satisfaction with primary care among people with spinal cord injuries: a comparison of three countries. Spinal Cord 2007;45:25–36
   PubMed Web of Science ®Google Scholar
• McColl MA, Aiken A, McColl A, et al. Primary care of people with spinal cord injury. Can Fam Physician 2012;58:1207–16
   PubMed Web of Science ®Google Scholar
• Kroll T, Beatty PW, Bingham S. Primary care satisfaction among adults with physical disabilities: the role of patient-provider communication. Manag Care Q 2003;11:11–19
   PubMedGoogle Scholar
• Batavia AT. Of wheelchairs and managed care. Health Aff 1999;18:177–82
   Web of Science ®Google Scholar
• Tolbert G. Staying connected: clinicians must provide life-long care to people with SCI. Adv Dir Rehabil 2002;11:23
   Google Scholar
• Stanley AWG. Follow up care of the spinal cord injury patient. Am Fam Physician 1981;24:105–11
   PubMed Web of Science ®Google Scholar
• Improving Chronic Illness Care. The chronic care model. Available from: http://www.improvingchroniccare.org/?p=The_Chronic_Care_Model&s=2 [last accessed 20 Nov 2013]
   Google Scholar
• Van Loo MA, Post MWM, Bloemen JHA, van Asbeck FWA. Care needs of persons with long-term spinal cord injury living at home in the Netherlands. Spinal Cord 2010;48:423–8
   PubMed Web of Science ®Google Scholar
• Neri MT, Kroll T. Understanding the consequences of access barriers to health care: experiences of adults with physical disabilities. Disabil Rehabil 2003;25:85–96
   PubMed Web of Science ®Google Scholar
• Hammell KW. Quality of life after spinal cord injury: a meta-synthesis of qualitative findings. Spinal Cord 2007;45:124–39
   PubMed Web of Science ®Google Scholar
• Fereday J, Muir-Cochrane E. Demonstrating rigor using thematic analysis: a hybrid approach of inductive and deductive coding and theme development. Int J Qual Methods 2006;5:1–11
   Google Scholar
• Samuelsson KAM, Tropp B, Gerdle H. Shoulder pain and its consequences in paraplegic, spinal cord-injured wheelchair users. Spinal Cord 2004;42:41–6
   PubMed Web of Science ®Google Scholar
• Manns PJ, Chad KE. Components of quality of life for persons with a quadriplegic and paraplegic spinal cord injury. Qual Health Res 2001;11:795–811
   PubMed Web of Science ®Google Scholar
• Gerhardt KA, Corbet B. Uninformed consent: biased decision-making following spinal cord injury. HEC Forum 1995;7:110–21
   PubMedGoogle Scholar
• Garrino L, Curto N, Decorte R, et al. Towards personalized care for persons with spinal cord injury: a study of patients’ perceptions. J Spinal Cord Med 2011;34:67–72
   PubMed Web of Science ®Google Scholar
• Sand A, Karlberg I, Kreutzer M. Spinal cord injured persons’ conceptions of hospital care, rehabilitation and a new life situation. Scand J Occup Ther 2006;13:183–92
   PubMedGoogle Scholar
• Gerhardt KA. Quality of life: the danger of differing perceptions. Top Spinal Cord Inj Rehabil 1997;2:78–84
   Google Scholar
• Patterson DR, Miller-Perrin C, McCormick TR, Hudson LD. When life support is questioned early in the care of patients with cervical-level quadriplegia. N Engl J Med 1993;328:506–9
   PubMed Web of Science ®Google Scholar
• Dixon G, Thornton EW, Young CA. Perceptions of self-efficacy and rehabilitation among neurologically disabled adults. Clin Rehabil 2007;21:230–40
   PubMed Web of Science ®Google Scholar
• Pellat GC. Patient-professional partnership in spinal cord injury rehabilitation. Br J Nurs 2004;13:948–53
   PubMedGoogle Scholar
• Bowers B, Esmond S, Lutz B, Jacobson N. Improving primary care for persons with disabilities: the nature of expertise. Disabil Soc 2003;18:443–55
   Web of Science ®Google Scholar
• Landry MD, Ricketts TC, Verrier MC. The precarious supply of physical therapists across Canada. Exploring national trends in health human resources (1991–2005). Hum Resource Health 2007;5:23. doi:10.1186/1478-4491-5-23
   PubMedGoogle Scholar
• Diego MA, Field T, Hernandez-Reif M, Hart S. Spinal cord patients benefit from massage therapy. Intern J Neurosci 2002;112:133–42
   PubMed Web of Science ®Google Scholar
• Wolbring G. People with disabilities and social determinants of health discourses. Can J Public Health 2011;102:317–19
   PubMed Web of Science ®Google Scholar
• Noreau L, Shephard RJ. Spinal cord injury, exercise and quality of life. Sports Med 1995;20:226–50
   PubMed Web of Science ®Google Scholar
• Tasiemski T, Kennedy P, Gardner BP, Taylor B. The association of sports and physical recreation with life satisfaction in a community sample of people with spinal cord injuries. NeuroRehab 2005;20:253–65
   PubMed Web of Science ®Google Scholar
• Carrillo JE, Carrillo VA, Perez HR, et al. Defining and targeting health care access barriers. J Health Care Poor Underserved 2011;22:562–75
   PubMed Web of Science ®Google Scholar