Being a close relative of a person with aphasia

References

• van der Gaag A, Smith L, Davis S, Moss B, Cornelius V, Laing S, et al. Therapy and support services for people with long-term stroke and aphasia and their relatives: A six-month follow-up study. Clin Rehabil 2005; 19: 372–80
   PubMed Web of Science ®Google Scholar
• Servaes P, Draper B, Conroy P, Bowring G. Informal carers of aphasic stroke patients: Stresses and interventions. Aphasiology 1999; 13: 889–900
   Web of Science ®Google Scholar
• Socialstyrelsen. Livssituationen två år efter stroke. En uppföljning av strokedrabbade och deras närstående [Life two years after stroke: A follow-up study of stroke and their relatives], Report No.: artikel nr 2004-123-40.Stockholm: Socialstyrelsen [Swedish Board of Health and Welfare]; 2004.
   Google Scholar
• Walsh F, McGoldrick M. Living beyond loss. W.W. Norton, New York 1991
   Google Scholar
• Visser-Meily JMA, Post MWM, Schepers VPM, Ketelaar M, van Heugten CM, Lindeman E. Spouses' satisfaction with caregiver support in stroke rehabilitation. Scand J Caring Sci 2005; 19: 310–16
   PubMed Web of Science ®Google Scholar
• Lau A, McKenna K. Perception of quality of life by Chinese elderly persons with stroke. Disabil Rehabil 2002; 24(4)203–18
   PubMed Web of Science ®Google Scholar
• Le Dorze G, Brassard C. A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases. Aphasiology 9 1995; 3: 239–95
   Google Scholar
• Elliott TR, Shewchuk RM, Scott Richards J. Caregiver social problem-solving abilities and family member adjustment to recent-onset physical disability. Rehabil Psychol 1999; 44: 104–23
   Web of Science ®Google Scholar
• Wells A. Family support systems: Their role in aphasia. Aphasiology 1999; 13: 911–14
   Web of Science ®Google Scholar
• Stoltz P, Willman A, Uden G. The meaning of support as narrated by family carers who care for a senior relative at home. Qual Health Res 2006; 16: 594–610
   PubMed Web of Science ®Google Scholar
• Gilliland MP, Bush HA. Social support for family caregivers: Toward a situation-specific theory. J Theory Construction & Testing 2001; 5: 53–62
   Google Scholar
• Denman A. Determining the needs of spouses caring for aphasic partners. Disabil Rehabil 1998; 20: 411–23
   PubMed Web of Science ®Google Scholar
• Worrall L. Professionalism and functional outcomes. J Communication Disord 2006; 39: 320–27
   PubMed Web of Science ®Google Scholar
• Choi NG, Wodarski JS. The relationship between social support and health status of elderly people: Does social support slow down physical and functional deterioration?. Social Work Res 1996; 20: 52–63
   PubMed Web of Science ®Google Scholar
• McColl MA, Lei H, Skinner H. Structural relationships between social support and coping. Soc Sc Med 1995; 41: 395–407
   PubMed Web of Science ®Google Scholar
• Nätterlund B, Ahlström G. Experience of social support in rehabilitation: A phenomenological study. J Adv Nurs 1999; 30: 1332–40
   PubMed Web of Science ®Google Scholar
• Lazarus RS. Coping theory and research: Past, present and future. Psychosom Med 1993; 55: 234–47
   PubMed Web of Science ®Google Scholar
• Forsberg-Wärleby G, Moller A, Blomstrand C. Spouses of first-ever stroke patients: Their view of the future during the first phase after stroke. Clin Rehabil 2002; 16: 506–14
   PubMed Web of Science ®Google Scholar
• Sarason BR, Sarason IG. Assessment of social support. Social support and cardiovascular disease, SA Shumaker, SM Czajkowskis. Plenum Press, New York 1994; 41–63
   Google Scholar
• Lazarus RS, Folkman S. Stress, appraisal and coping. Springer Verlag, New York 1984
   Google Scholar
• House JS. Work, stress and social support. Addison-Wesley, Reading, MA 1981
   Google Scholar
• Lock S, Wilkinson R, Bryan K, Maxim J, Edmundson A, Bruce C, et al. Supporting partners of people with aphasia in relationships and conversation (SPPARC). Int J Lang Communication Disord 2001; 36(Suppl)25–30
   PubMed Web of Science ®Google Scholar
• Hibbard MR, Cantor J, Charatz H, Rosenthal R, Ashman T, Gundersen N, et al. Peer support in the community: Initial findings of a mentoring program for individuals with traumatic brain injury and their families. J Head Trauma Rehabil 2002; 17: 112–31
   PubMed Web of Science ®Google Scholar
• Sjökvist Nätterlund, B. A new life with aphasia: everyday activities and social support. Scand J Occup Ther 2009, [Epub ahead of print]
   Web of Science ®Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004; 24: 105–12
   PubMed Web of Science ®Google Scholar
• Krippendorff K. Content analysis: An introduction to its methodology. Sage Publications, Beverly Hills, CA 1980
   Google Scholar
• Downe-Wanboldt B. Content analysis: Methods, applications and issues. Health Care for Women Int 1992; 13: 313–21
   PubMedGoogle Scholar
• Richards L. Computer monitor. Data alive! The thinking behind NVivo. Qual Health Res 1999; 9: 412–28
   Web of Science ®Google Scholar
• Richards L. Using NVivo in qualitative research3rd ed. Director of Research Service, QSR International, Melbourne 2002
   Google Scholar
• Cavanagh S. Content analysis concepts, methods and applications. Nurs Res 1997; 4: 1–14
   Google Scholar
• Parr S. Living with severe aphasia: Tracking social exclusion. Aphasiology 2007; 21: 98–123
   Web of Science ®Google Scholar
• Stoltz P, Uden G, Willman A. Support for family carers who care for an elderly person at home: A systematic literature review. Scand J Caring Sci 2004; 18: 111–19
   PubMed Web of Science ®Google Scholar
• Forsberg-Wärleby G, Moller A, Blomstrand C. Psychological well-being of spouses of stroke patients during the first year after stroke. Clin Rehab 2004; 18: 430–7
   PubMed Web of Science ®Google Scholar
• Fox LE, Poulsen SB, Bawden KC, Packard D. Critical elements and outcomes of a residential family-based intervention for aphasia caregivers. Aphasiology 2004; 18: 1177–99
   Web of Science ®Google Scholar
• Grant JS, Elliott TR, Weaver M, Glandon GL, Raper JL, Giger JN. Social support, social problem-solving abilities, and adjustment of family caregivers of stroke survivors. Arch Phys Med Rehabil 2006; 87: 343–50
   PubMed Web of Science ®Google Scholar
• House JS, Kahn RL, McLeod JD, Williams D. Measures and concepts of social support. Social support and health, S Cohen, SL Syme. Academic Press, Inc, San Diego, CA 1985; 83–108
   Google Scholar
• Anderson D, Deshaies G, Jobin J. Social support, social networks and coronary artery disease rehabilitation: A review. Can J Cardiol 1996; 12: 739–44
   PubMed Web of Science ®Google Scholar
• Hilari K, Northcott S. Social support in people with chronic aphasia. Aphasiology 2006; 20: 17–36
   Web of Science ®Google Scholar
• Polit DF, Hungler BP. Nursing research: Principles and methods6th ed. Lippincott, Philadelphia, PA 1999
   Google Scholar
• S Kvale. Interview an introduction to qualitative research interviewing. London: Sage Publications; 1994.
   Google Scholar
• Streubert HJ, Carpenter DR. Qualitative research in nursing: Advancing the humanistic imperative2nd ed. Lippincott, Philadelphia, PA 1999
   Google Scholar
• Gauld R, McMillan J. Ethics committees and qualitative health research in New Zealand. N Z Med J 1999; 112: 195–7
   PubMed Web of Science ®Google Scholar
• Lincoln YS, Guba EG. Naturalistic inquiry. Sage Publications, Newbury Park, CA 1985
   Google Scholar
• Wallengren C, Friberg F, Segesten K. Like a shadow: On becoming a stroke victim's relative. Scand J Caring Sci 2008; 22: 48–55
   PubMed Web of Science ®Google Scholar