526
Views
0
CrossRef citations to date
0
Altmetric
Research Articles

Characteristics of children attending an autism specific early learning and care setting prior to and following introduction of the National Disability Insurance Scheme

&

References

  • Abidin, R. R. (1995). Parenting stress index (4th ed.).
  • Adams, D., Clark, M., & Simpson, K. (2020). The relationship between child anxiety and the quality of life of children, and parents of children, on the autism spectrum. Journal of Autism and Developmental Disorders, 50(5), 1756–1769. https://doi.org/10.1007/s10803-019-03932-2
  • Barr, M., Duncan, J., & Dally, K. (2020). Parent experience of the National Disability Insurance Scheme (NDIS) for children with hearing loss in Australia. Disability & Society, 1–25. https://doi.org/10.1080/09687599.2020.1816906
  • Boaden, N., Purcal, C., Fisher, K., & Meltzer, A. (2020). Transition experience of families with young children in the Australian National Disability Insurance Scheme (NDIS). Australian Social Work, 74(3), 294–306. https://doi.org/10.1080/0312407x.2020.1832549
  • Clark, M., & Adams, D. (2020). Listening to parents to understand their priorities for autism research. PLoS One, 15(8), e0237376. https://doi.org/10.1371/journal.pone.0237376
  • Clark, M. L., Barbaro, J., & Dissanayake, C. (2017). Continuity and change in cognition and autism severity from toddlerhood to school age. Journal of Autism and Developmental Disorders, 47(2), 328–339. https://doi.org/10.1007/s10803-016-2954-7
  • Clark, M. L. E., Vinen, Z., Barbaro, J., & Dissanayake, C. (2018). School age outcomes of children diagnosed early and later with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(1), 92–102. https://doi.org/10.1007/s10803-017-3279-x
  • Cortese, C., Truscott, F., Nikidehaghani, M., & Chapple, S. (2020). Hard-to-reach: The NDIS, disability, and socio-economic disadvantage. Disability & Society, 36(6), 883–903. https://doi.org/10.1080/09687599.2020.1782173
  • Eapen, V., Crncec, R., Walter, A., & Tay, K. P. (2014). Conceptualisation and development of a quality of life measure for parents of children with autism spectrum disorder. Autism Research and Treatment, 2014, 160783. https://doi.org/10.1155/2014/160783
  • Estes, A., Munson, J., Rogers, S. J., Greenson, J., Winter, J., & Dawson, G. (2015, Jul). Long-term outcomes of early intervention in 6-year-old children with autism spectrum disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 54(7), 580–587. https://doi.org/10.1016/j.jaac.2015.04.005
  • Gavidia-Payne, S. (2020). Implementation of Australia's National Disability Insurance Scheme. Infants & Young Children, 33(3), 184–194. https://doi.org/10.1097/iyc.0000000000000169
  • Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642. https://doi.org/10.1007/s10803-012-1604-y
  • Howard, A., Blakemore, T., Johnston, L., Taylor, D., & Dibley, R. (2015). I’m not really sure but I hope it’s better’: Early thoughts of parents and carers in a regional trial site for the Australian National Disability Insurance Scheme. Disability & Society, 30(9), 1365–1381. https://doi.org/10.1080/09687599.2015.1093462
  • Ilias, K., Cornish, K., Kummar, A. S., Park, M. S., & Golden, K. J. (2018). Parenting stress and resilience in parents of children with autism spectrum disorder (ASD) in Southeast Asia: A systematic review. Frontiers in Psychology, 9, 280. https://doi.org/10.3389/fpsyg.2018.00280
  • Kalb, L. G., Badillo-Goicoechea, E., Holingue, C., Riehm, K. E., Thrul, J., Stuart, E. A., Smail, E. J., Law, K., White-Lehman, C., & Fallin, D. (2021). Psychological distress among caregivers raising a child with autism spectrum disorder during the COVID-19 pandemic. Autism Research, 14(10), 2183–2188. https://doi.org/10.1002/aur.2589
  • Kendrick, M., Ward, M., & Chenoweth, C. (2017). Australia's national disability insurance scheme: Looking back to shape the future. Disability & Society, 32(9), 1333–1350. https://doi.org/10.1080/09687599.2017.1322493
  • Kutuk, M. O., Tufan, A. E., Kilicaslan, F., Guler, G., Celik, F., Altintas, E., Gokcen, C., Karadag, M., Yektas, C., Mutluer, T., Kandemir, H., Buber, A., Topal, Z., Acikbas, U., Giray, A., & Kutuk, O. (2021). High depression symptoms and burnout levels among parents of children with autism spectrum disorders: A multi-center, cross-sectional, case-control study. Journal of Autism and Developmental Disorders, 11, 4086–4099. https://doi.org/10.1007/s10803-021-04874-4
  • Landa, R. J., & Kalb, L. G. (2012). Long-term outcomes of toddlers with autism spectrum disorders exposed to short-term intervention. Pediatrics, 130(Suppl 2), S186–S190. https://doi.org/10.1542/peds.2012-0900Q
  • Lichtlé, J., Downes, N., Engelberg, A., & Cappe, E. (2019). The effects of parent training programs on the quality of life and stress levels of parents raising a child with autism spectrum disorder: A systematic review of the literature. Review Journal of Autism and Developmental Disorders, 7(3), 242–262. https://doi.org/10.1007/s40489-019-00190-x
  • Loomes, R., Hull, L., & Mandy, W. P. L. (2017). What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis. Journal of the American Academy of Child & Adolescent Psychiatry, 56(6), 466–474. https://doi.org/10.1016/j.jaac.2017.03.013
  • Lord, C., Rutter, M., DiLavore, P. C., Risi, S., Gotham, K., & Bishop, S. (2012). Autism diagnostic observation schedule (2nd ed.). Western Psychological Society.
  • Lovibond, S. H., & Lovibond, P. F. (1995). Manual for the depression anxiety stress scales (2nd ed.). Psychology Foundation.
  • Malbon, E., Carey, G., & Meltzer, A. (2019). Personalisation schemes in social care: Are they growing social and health inequalities? BMC Public Health, 19(1), 805. https://doi.org/10.1186/s12889-019-7168-4
  • Mavromaras, K., Moskos, M., Mahuteau, S., & Isherwood, L. (2018). Evaluation of the NDIS: Final report: National Institute of Labour Studies. Flinders University.
  • McStay, R. L., Dissanayake, C., Scheeren, A., Koot, H. M., & Begeer, S. (2014). Parenting stress and autism: The role of age, autism severity, quality of life and problem behaviour of children and adolescents with autism. Autism, 18(5), 502–510. https://doi.org/10.1177/1362361313485163
  • Mullen, E. M. (1995). Mullen scales of early learning manual. American Guidance Service.
  • NDIA. (2017). NDIA Annual Report 2016-17.Retrieved from 18 April 2020. https://www.ndis.gov.au/aboutus/publications/annual-report/annual-report-2016-17.
  • NDIA. (2019). Pathway reform-what's happening in 2019. Retrieved from https://www.ndis.gov.au/about-us/ndispathwayreform/pathway-reform-whats-happening
  • NDIS. (2019). Help for children under 7. Retrieved from https://www.ndis.gov.au/understanding/how-ndis-works/helpchildren-under-7
  • Prior, M., Roberts, J., Rodgers, S., & Williams, K. (2011). A review of the research to identify the most effective models of practice in early intervention for children with autism spectrum disorders. Australian Government Department of Families, Housing, Community Services and Indigenous Affairs, Australia.
  • Ranasinghe, T., Jeyaseelan, D., White, D., & Russo, R. (2017). Parents’ experiences in registering with and accessing funding under the National Disability Insurance Scheme for early intervention services for children with developmental disabilities. Journal of Paediatrics and Child Health, 53(1), 26–32. https://doi.org/10.1111/jpc.13312
  • Rezendes, D. L., & Scarpa, A. (2011). Associations between parental anxiety/depression and child behavior problems related to autism spectrum disorders: The roles of parenting stress and parenting self-efficacy. Autism Research and Treatment, 2011, 395190. https://doi.org/10.1155/2011/395190
  • Rutter, M., Bailey, A., & Lord, C. (2008). SCQ: The social communication questionnaire. Western Psychological Services.
  • Siu, Q. K. Y., Yi, H., Chan, R. C. H., Chio, F. H. N., Chan, D. F. Y., & Mak, W. W. S. (2019). The role of child problem behaviors in autism spectrum symptoms and parenting stress: A primary school-based study. Journal of Autism and Developmental Disorders, 49(3), 857–870. https://doi.org/10.1007/s10803-018-3791-7
  • Snow, A. V., & Lecavalier, L. (2008). Sensitivity and specificity of the modified checklist for autism in toddlers and the Social Communication Questionnaire in preschoolers suspected of having pervasive developmental disorders. Autism, 12(6), 627–644. https://doi.org/10.1177/1362361308097116
  • Snow, M., & Donnelly, J. (2017). The National Disability Insurance Scheme: Effects on the quality of life and personal well-being of Australians caring for individuals with an autism spectrum disorder. Journal of Depression and Anxiety, 07(01), 293–298. https://doi.org/10.4172/2167-1044.1000293
  • Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005). Vineland adaptive behaviour scales. American Guidance Service.
  • Vinen, Z., Clark, M., Paynter, J., & Dissanayake, C. (2018). School Age outcomes of children with autism spectrum disorder Who received community-based early interventions. Journal of Autism and Developmental Disorders, 48(5), 1673–1683. https://doi.org/10.1007/s10803-017-3414-8

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.