645
Views
0
CrossRef citations to date
0
Altmetric
Research Articles

Families’ perspectives on the process of community transitions of individuals with severe intellectual and developmental disabilities

, , , , , & show all
Pages 57-66 | Received 12 May 2022, Accepted 16 Mar 2023, Published online: 19 Apr 2023

References

  • Ager, A., Myers, F., Kerr, P., Myles, S., & Green, A. (2001). Moving home: Social integration for adults with intellectual disabilities resettling into community provision. Journal of Applied Research in Intellectual Disabilities, 14(4), 392–400. https://doi.org/10.1046/j.1468-3148.2001.00082.x
  • Amedeo, G. (2009). The descriptive phenomenological method in psychology. Duquesne University Press.
  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.).
  • Caldwell, J. A. (2017). Predictors of resilience in families of adults with intellectual and developmental disabilities following deinstitutionalization [Master’s thesis, Oklahoma State University]. ProQuest Dissertations Publishing. https://www.proquest.com/openview/e714e62ce0aae4c66197eabfff7f84cf/1?pq-origsite=gscholar&cbl=18750
  • Charmaz, K. (2014). Constructing grounded theory (2nd ed.). Sage.
  • Coons, K. D., & Watson, S. L. (2013). Conducting research with individuals who have intellectual disabilities: Ethics and practical implications for qualitative research. Journal Developmental Disabilities, 19(2), 14–24. https://www.researchgate.net/publication/273133074_Conducting_research_with_individuals_who_have_intellectual_disabilities_Ethical_and_practical_implications_for_qualitative_research
  • Doody, O. (2011). Families’ view on their relatives with intellectual disability moving from a long-stay psychiatric institution to a community-based intellectual disability service: An Irish context. British Journal of Learning Disabilities, 40(1), 46–54. https://doi.org/10.1111/j.1468-3156.2011.00682.x
  • Giorgi, A. (1997). The theory, practice, and evaluation of the phenomenological method as a qualitative research procedure. Journal of Phenomenological Psychology, 28(2), 235–260. https://doi.org/10.1163/156916297X00103
  • Griffiths, D. M., Owen, F., & Condillac, R. (2015). Family feedback on the closure of institutions for persons with intellectual disabilities in Ontario. Journal on Developmental Disabilities, 21(2), 28–37.
  • Jones, J. L., & Gallus, K. L. (2016). Understanding deinstitutionalization: What families value and desire in the transition to community living. Research and Practice for Persons with Severe Disabilities, 41(2), 116–131. https://doi.org/10.1177/1540796916637050
  • Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Sage.
  • Nieboer, A. P., Pijpers, V., & Strating, M. M. H. (2011). Implementing community care for people with intellectual disability: The role of organizational characteristics and the innovation’s attributes. JARID, 24(4), 370–380. https://doi.org/10.1111/j.1468-3148.2010.00613.x
  • O'Doherty, S., Linehan, C., Tatlow-Golden, M., Craig, S., Kerr, M., Lynch, C., & Staines, A. (2016). Perspectives of family members of people with an intellectual disability to a major reconfiguration of living arrangements for people with intellectual disability in Ireland. Journal of Intellectual Disabilities, 20(2), 137–151. https://doi.org/10.1177/1744629516636538
  • Palinkas, L. A., Horwitz, S. M., Green, C. A., Wisdom, J. P., Duan, N., & Hoagwood, K. (2015). Purposeful sampling for qualitative data collection and analysis in mixed method implementation research. Administration and Policy in Mental Health and Mental Health Services Research, 42(5), 533–544. https://doi.org/10.1007/s10488-013-0528-y
  • People First of Canada and the Canadian Association for Community Living. (2010). The right way: A guide to closing institutions and reclaiming a life in the community for people with intellectual disabilities, Canada (March 2019).
  • Speziale, H. J. S., & Carpenter, D. R. (2007). Qualitative research in nursing: Advancing the humanistic imperative (4th ed.). Lippincott Williams & Wilkins.
  • Spiegelberg, H. (1975). Doing phenomenology. Martinus Nijhoff.
  • Tabatabainia, M. M. (2003). Listening to families’ views regarding institutionalization and deinstitutionalization. Journal of Intellectual and Developmental Disability, 28(3), 241–259. https://doi.org/10.1080/1366825031000150973
  • Taylor, W. D., Cobigo, V., & Ouellette-Kuntz, H. (2019). A family systems perspective on supporting self-determination in young adults with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 32, 1116–1128. https://doi.org/10.1111/jar.12601
  • Tossebro, J. (1998). Family attitudes to deinstitutionalization before and after resettlement: The case of a Scandinavian welfare state. Journal of Developmental Physical Disabilities, 10(1), 55–72. https://doi.org/10.1023/A:1022861517692
  • Ungar, M. (2004). The importance of parents and other caregivers to the resilience of high-risk adolescents. Family Process, 43(1), 23–41. https://doi.org/10.1111/j.1545-5300.2004.04301004.x
  • van Heumen, L., & Schippers, A. (2016). Quality of life for young adults with intellectual disability following individualised support: Individual and family responses. Journal of Intellectual & Developmental Disability, 41(4), 299–310. https://doi.org/10.3109/13668250.2016.1213797