References
- Hirtz D, Thurman DJ, Gwinn-Hardy K, Mohamed M, Chaudhuri AR, Zalutsky R. How common are the ‘common’ neurologic disorders? Neurology. 2007;68: 326–37.
- Lochmüller H, Aymé S, Pampinella F, Melegh B, Kuhn K, Antonarakis S, . The Role of Biobanking in Rare Diseases: European Consensus Expert Group Report. Biopreservation and Biobanking. 2009;7:155–6.
- Watson P, Wilson-McManus J, Barnes R, Giesz S, Png A, Hegele R, . Evolutionary concepts in biobanking: The BC BioLibrary. Journal of Translational Medicine. 2009;7:95.
- Troyer D. Biorepository standards and protocols for collecting, processing, and storing human tissues. Methods Mol Biol. 2008;441:193–220.
- Gwinn K, Corriveau RA, Mitsumoto H, Bednarz K, Brown RH Jr, Cudkowicz M, . Amyotrophic lateral sclerosis: an emerging era of collaborative gene discovery. PLoS ONE. 2007;2:1254.
- Vaught J, Kelly A, Hewitt R. A review of international biobanks and networks: success factors and key benchmarks. Biopreservation and Biobanking. 2010;7:143–50.
- International Society for Biological and Environmental Repositories.
- ISBER. Best Practices for Repositories Collection, Storage, Retrieval and Distribution of Biological Materials for Research. Cell Preservation Technology. 2008;6:3–58.
- Qureshi M, Schoenfeld DA, Paliwal Y, Shui A, Cudkowicz ME. The natural history of ALS is changing: improved survival. Amyotroph Lateral Scler. 2009;10:324–31.
- Bowser R, Cudkowicz M, Kaddurah-Daouk R. Biomarkers for amyotrophic lateral sclerosis. Expert Review of Molecular Diagnostics. 2006;6:387–98.
- Bowser R, Lacomis D. Applying proteomics to the diagnosis and treatment of ALS and related diseases. Muscle & Nerve. 2009;40:753–62.
- Teunissen CE, Petzold A, Bennett JL, Berven FS, Brundin L, Comabella M, . A consensus protocol for the standardization of cerebrospinal fluid collection and biobanking. Neurology. 2009;73:1914–22.
- Ginsburg GS, Burke TW, Febbo P. Centralized Biorepositories for Genetic and Genomic Research. JAMA. 2008; 299:1359–61.
- Institute USNIoH-NC. National Cancer Institute Best Practices for Biospecimen Resources. 2007.