The natural history of motor neuron disease: Assessing the impact of specialist care

References

• Mitchell JD, Borasio GD. Amyotrophic lateral sclerosis. Lancet. 2007;369:2031−41.
   PubMed Web of Science ®Google Scholar
• Shaw PJ. Motor neuron disease. Br Med J. 1999;318: 1118–21.
   PubMed Web of Science ®Google Scholar
• Oliveira AS, Pereira RD. Amyotrophic lateral sclerosis (ALS): three letters that change the people's life. Forever. Arq Neuropsiquiatr. 2009;67:750–82.
   PubMed Web of Science ®Google Scholar
• Traynor BJ, Alexander M, Corr B, Frost E, Hardiman O. Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: a population based study, 1996–2000. J Neurol Neurosurg Psychiatry. 2003; 74: 1258–61.
   PubMed Web of Science ®Google Scholar
• Wood-Allum C, Shaw PJ. Motor neuron disease: a practical update on diagnosis and management. Clin Med. 2010;10: 252–8.
   PubMed Web of Science ®Google Scholar
• Chio A, Bottacchi E, Buffa C, Mutani R, Mora G, PARALS. Positive effects of tertiary centres for amyotrophic lateral sclerosis on outcome and use of hospital facilities. J Neurol Neurosurg Psychiatry. 2006;77:948–50.
   PubMed Web of Science ®Google Scholar
• Qureshi M, Schoenfeld DA, Paliwal Y, Shui A, Cudkowicz ME. The natural history of ALS is changing: improved survival. Amyotroph Lateral Scler. 2009;10: 324–31.
   PubMed Web of Science ®Google Scholar
• Zoccolella S, Beghi E, Palagano G, Fraddosio A, Guerra V, Lepore V, . ALS multidisciplinary clinic and survival. Results from a population based study in southern Italy. J Neurol. 2007;254:1107–12.
   PubMed Web of Science ®Google Scholar
• Chio A, Mora G, Leone M, Mazzini L, Cocito D, Giordana MT, . Early symptom progression rate is related to ALS outcome: a prospective population-based study. Neurology. 2002;59:99–103.
   PubMed Web of Science ®Google Scholar
• Mazzini L, Corra T, Zaccala M, Mora G, del Piano M, Galante M. Percutaneous endoscopic gastrostomy and enteral nutrition in amyotrophic lateral sclerosis. J Neurol. 1995;242:695–8.
   PubMed Web of Science ®Google Scholar
• Desport JC, Preux PM, Truong TC, Vallat JM, Sautereau D, Couratier P. Nutritional status is a prognostic factor for survival in ALS patients. Neurology. 1999;53:1059–63.
   PubMed Web of Science ®Google Scholar
• Magnus T, Beck M, Giess R, Puls I, Naumann M, Toyka KV. Disease progression in amyotrophic lateral sclerosis: predictors of survival. Muscle Nerve. 2002;25:709–14.
   PubMed Web of Science ®Google Scholar
• del Aguila MA, Longstreth WT Jr, McGuire V, Koepsell TD, van Belle G. Prognosis in amyotrophic lateral sclerosis: a population based study. Neurology. 2003;60:813–9.
   PubMed Web of Science ®Google Scholar
• Paillisse C, Lacomblez L, Dib M, Bensimon G, Garcia-Acosta S, Meininger V. Prognostic factors for survival in amyotrophic lateral sclerosis patients treated with riluzole. Amyotroph Lateral Scler Other Motor Neuron Disord. 2005;6:37–44.
   PubMed Web of Science ®Google Scholar
• Singer MA, Statland JM, Wolfe GI, Barohn RJ. Primary lateral sclerosis. Muscle Nerve. 2007;35:291–302.
   PubMed Web of Science ®Google Scholar
• Ince PG, Evans J, Knopp M, Forster G, Hamdalla HH, Wharton SB, . Corticospinal tract degeneration in the progressive muscular atrophy variant of ALS. Neurology. 2003;60:1252–8.
   PubMed Web of Science ®Google Scholar
• Kim WK, Liu X, Sandner J, Pasmantier M, Andrews J, Rowland LP, . Study of 962 patients indicates progressive muscular atrophy is a form of ALS. Neurology. 2009; 73:1686–92.
   PubMed Web of Science ®Google Scholar
• Miller RG, Rosenberg JA, Gelinas DF, Mitsumoto H, Newman D, Sufit R, . Practice parameter: the care of the patient with amyotrophic lateral sclerosis (an evidence based review). Muscle Nerve. 1999;22:1104–11.
   PubMed Web of Science ®Google Scholar
• Bourke SC, Tomlinson M, Williams TL, Bullock RE, Shaw PJ, Gibson GJ. Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomized controlled trial. Lancet Neurol. 2006;5:140 − 7.
   PubMed Web of Science ®Google Scholar
• Czaplinski A, Yen AA, Simpson EP, Appel SH. Slower disease progression and prolonged survival in contemporary patients with amyotrophic lateral sclerosis: is the natural history of amyotrophic lateral sclerosis changing? Arch Neurol. 2006;63:1139 − 43.
   PubMedGoogle Scholar
• Pinto AC, Evangelista T, Carvalho M, Alves MA, Sales Luis ML. Respiratory assistance with a non-invasive ventilator (Bipap) in MND/ALS patients: survival rates in a controlled trial. J Neurol Sci. 1995;129(Suppl):19–26.
   PubMed Web of Science ®Google Scholar
• Sorenson EJ, Mandrekar J, Crum B, Stevens JC. Effect of referral bias on assessing survival in ALS. Neurology. 2007;68:600–2.
   PubMed Web of Science ®Google Scholar
• van den Berg JP, Kalmijn S, Lindeman E, Veldink JH, de Visser M, van der Graaff MM, . Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology. 2005;65:1264–7.
   PubMed Web of Science ®Google Scholar
• McDonald ER, Wiedenfeld SA, Hillel A, Carpenter CL, Walter RA. Survival in amyotrophic lateral sclerosis: the role of psychological factors. Arch Neurol. 1994;51:17–23.
   PubMed Web of Science ®Google Scholar