556
Views
11
CrossRef citations to date
0
Altmetric
Subject Review

Parent education for adults with intellectual disability: A review and suggestions for future research

, &
Pages 336-348 | Received 24 Jul 2013, Accepted 03 Aug 2013, Published online: 02 Oct 2013

References

  • Emerson E, Graham H, Hatton C. The measurement of poverty and socioeconomic position in research involving people with intellectual disability. International Review of Research in Mental Retardation 2006;32:77–108
  • Holburn S, Perkins T, Vietze P. The parent with mental retardation. International Review of Research in Mental Retardation 2001;24:171–210
  • Llewellyn G. Parents with intellectual disability and their children: Advances in policy and practice. Journal of Policy and Practice in Intellectual Disabilities 2013;10:82–85
  • National Council on Disability Living, Learning and Earning [Internet]. Rocking the cradle: Ensuring the rights of parents with disabilities and their children (US). 2012 Sept. Available from: http://www.ncd.gov/publications/2012/Sep272012 [last accessed October 2012]
  • International Association for the Scientific Study of Intellectual Disabilities (IASSID) Special Interest Research Group. Parents labeled with intellectual disability: Position of the IASSID special interest research group on parents and parenting with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 2008;21:296–307
  • Feldman MA. Parenting education for parents with intellectual disabilities: A review of outcome studies. Research in Developmental Disabilities 1994;15:299–332
  • Schalock RL, Borthwick-Duffy SA, Bradley VJ, Buntinx WHE, Coulter DL, Craig EM, Gomez SC, Lachapelle Y, Luckasson R, Reeve A, et al. Intellectual disability: Definition, classification, and systems of supports. Washington, DC: American Association on Intellectual and Developmental Disabilities; 2010
  • Ehlers-Flint ML. Parenting perceptions and social supports of mothers with cognitive disabilities. Sexuality and Disability 2002;20:29–51
  • Luckasson R, Borthwick-Duffy S, Buntinx WHE, Coulter DL, Craig EM, Reeve A, Schalock RL, Snell ME, Spitalnick DM, Spreat S, et al. Mental retardation: Definition, classification, and systems of supports. Washington, DC: American Association on Mental Retardation; 2002
  • Browder DM, Spooner F. Teaching students with moderate and severe disabilities. New York: The Guilford Press; 2011
  • Keltner B, Finn D, Shearer D. Effects of family intervention on maternal-child interaction for mothers with developmental disabilities. Family and Community Health: The Journal of Health Promotion and Maintenance 1995;17:35–49
  • Taylor S. Forward. In: Llewellyn G, Traustadottir R, McConnell D, Sigurjonsdott HB, editors. Parents with intellectual disabilities: Past, present and futures. Chichester: Wiley & Sons, Ltd; 2010
  • McGaw S, Ball K, Clark A. The effect of group intervention on the relationships of parents with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 2002;15:354–366
  • Darbyshire LV, Stenfert Kroese B. Psychological well-being and social support for parents with intellectual disabilities: Risk factors and interventions. Journal of Policy and Practice in Intellectual Disabilities 2012;9:40–52
  • Reinders HS. Persons with disabilities as parents: What is the problem? Journal of Applied Research in Intellectual Disabilities 2008;21:308–314
  • Emerson E. Poverty and people with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews 2007;13:107–113
  • Aunos M, Feldman M, Goupil G. Mothering with intellectual disabilities: Relationship between social support, health and well-being, parenting and child behaviour outcomes. Journal of Applied Research in Intellectual Disabilities 2008;2:320–330
  • Richman KD. Women, poverty, and domestic violence: Perceptions of court and legal aid effectiveness. Sociological Inquiry 2002;72:318–344
  • Brownridge DA. Partner violence against women with disabilities: Prevalence, risk, and explanations. Violence Against Women 2006;12:805–822
  • Azar ST, Stevenson MT, Johnson DR. Intellectual disabilities and neglectful parenting: Preliminary findings on the role of cognition in parenting risk. Journal of Mental Health Research in Intellectual Disabilities 2012;5:94–129
  • Proctor SN, Azar ST. The effect of parental intellectual disability status on child protection service worker decision making. Journal of Intellectual Disability Research. Advance online publication 2012. doi: 10.1111/j.1365-2788.2012.01623.x
  • MacLean K, Aunos M. Addressing the needs of parents with intellectual disabilities: Exploring a parenting pilot project. Journal on Developmental Disabilities 2010;16:18–33
  • Feldman MA, Case L, Sparks B. Effectiveness of a child-care training program for parents at-risk for child neglect. Canadian Journal of Behavioural Science 1992;24:14–28
  • Llewellyn G, Mayes R, McConnell D. Towards acceptance and inclusion of people with intellectual disability as parents. Journal of Applied Research in Intellectual Disabilities 2008;21:293–295
  • Pixa-Kettner U. Parenting with intellectual disability in Germany: Results of a new nationwide study. Journal of Applied Research in Intellectual Disabilities 2008;21:315–319
  • Wade C, Llewellyn G, Matthews J. Review of parent training interventions for parents with intellectual disability. Journal of Applied Research in Intellectual Disabilities 2008;21:351–366
  • Coren E, Thomae M, Hutchfield J. Parenting training for intellectually disabled parents: A Cochrane systematic review. Research on Social Work Practice 2011;21:432–441
  • Feldman MA, Case L. The effectiveness of audiovisual self-instructional materials in teaching child-care skills to parents with intellectual disabilities. Journal of Behavioral Education 1997;7:235–258
  • Feldman MA, Ducharme M, Case L. Using self-instructional pictorial manuals to teach child-care skills to mothers with intellectual disabilities. Behavior Modification 1999;23:480–497
  • Feldman MA, Case L. Teaching child-care and safety skills to parents with intellectual disabilities through self-learning. Journal of Intellectual and Developmental Disability 1999;24:27–44
  • Greene BF, Norman KR, Searle MS, Daniels M, Lubeck RC. Child abuse and neglect by parents with disabilities: A tale of two families. Journal of Applied Behavior Analysis 1995;28:417–434
  • Glazemakers I, Deboutte D. Modifying the ‘Positive Parenting Program’ for parents with intellectual disabilities. Journal of Intellectual Disability Research 2012;57:616–626
  • Wade C, Llewellyn G, Matthews J. Modeling contextual influences on parents with intellectual disability and their children. American Journal on Intellectual and Developmental Disabilities 2011;116:419–437
  • McConnell D, Dalziel A, Llewellyn G, Laidlaw K, Hindmarsh G. Strengthening the social relationships of mothers with learning difficulties. British Journal of Learning Difficulties 2009;37:66–75
  • Kaminski JW, Valle LA, Filene JH, Boyle CL. A meta-analytic review of components associated with parent training program effectiveness. Journal of Abnormal Child Psychology 2008;36:567–589
  • Matthews JM, Hudson AM. Guidelines for evaluating parent training programs. Family Relations: An Interdisciplinary Journal of Applied Family Studies 2004;50:77–86
  • Smager J, Sullivan M. Investigating the effectiveness of behavioral parent training with involuntary clients in child welfare settings. Research on Social Work Practice 2005;15:431–439
  • Gaskin EH, Lutzker JR, Crimmins DB, Robinson L. Using a digital frame and pictorial information to enhance the SafeCare® parent-infant interactions module with a mother with intellectual disabilities: Results of a pilot study. Journal of Mental Health Research in Intellectual Disabilities 2012;5:187–202
  • Feldman MA, Garrick M, Case L. The effects of parent training on weight gain of nonorganic-failure-to-thrive children of parents with intellectual disabilities. Journal on Developmental Disabilities 1997;5:47–61
  • Mildon R, Wade C, Matthews J. Considering the contextual fit of an intervention for families headed by parents with an intellectual disability: An exploratory study. Journal of Applied Research in Intellectual Disabilities 2008;21:377–387
  • Monsen K, Sanders A, Yu F, Radosevich D, Geppert J. Family home visiting outcomes for mothers with and without intellectual disabilities. Journal of Intellectual Disability Research 2011;55:484–499
  • Llewellyn G, McConnell D, Honey A, Mayes R, Russo D. Promoting health and home safety for children of parents with intellectual disability: A randomized controlled trial. Research in Developmental Disabilities 2003;24:405–431
  • Ferster CB, Skinner BF. Schedules of reinforcement. New York: Appleton-Century-Crofts; 1957
  • Balli SJ, Demo DH, Wedman JF. Family involvement with children's homework: An intervention in the middle grades. Family Relations: An Interdisciplinary Journal of Applied Family Studies 1998;47:149–157
  • Small SA, Eastman G. Rearing adolescents in contemporary society: A conceptual framework for understanding the responsibilities and needs of parents. Family Relations: An Interdisciplinary Journal of Applied Family Studies 1991;40:455–462
  • Flippen M, Crais ER. The need for more effective father involvement in early autism intervention a systematic review and recommendations. Journal of Early Intervention 2011;33:24–50
  • Pleck J, Masciadrelli B. Paternal involvement in U.S. residential fathers: Levels, sources, and consequences. In: Lamb M, editor. The role of the father in child development, 4th ed. New York: John Wiley; 2004. pp 222–271
  • Fabiano GA, Chacko A, Pelham WE, Robb J, Walker KS, Arnold F, Wienke AL, Flammer L, Kennan JK, Visweswaraiah H, et al. A comparison of behavioral parent training programs for fathers of children with attention deficit/hyperactivity disorder. Behavior Therapy 2009;40:190–204
  • Sparrow SS, Balla DA, Cicchetti DV. Vineland adaptive behavior scales: Interview edition, survey form manual. Circle Pines, MN: American Guidance Service; 1984
  • Thompson JR, Bryant BR, Campbell EM, Craig EM, Hughes C, Rotholz DA, Schalock R, Silverman W, Tasse M, Wehmeyer M. Supports intensity scale: User’s manual. Washington, DC: American Association on Mental Retardation; 2004
  • Gast DL. Single subject research methodology in behavioral sciences. New York, NY: Routledge; 2010
  • Dockery AM. Housing and children's development and wellbeing: A scoping study, Vol. 149. Melbourne: Australian Housing and Urban Research Institute; 2010
  • Oliver PC, Piachaud J, Done J, Regan A, Cooray S, Tyrer P. Difficulties in conducting a randomized controlled trial of health service interventions in intellectual disability: Implications for evidence-based practice. Journal of Intellectual Disability Research 2002;46:340–345
  • Briesch AM, Chafouleas SM, Neugebauer SR, Riley-Tillman TC. Assessing influences on intervention implementation: Revision of the usage rating profile-intervention. Journal of School Psychology 2012;51:81–96
  • Gresham FM, MacMillan DL, Beebe-Frankenberger ME, Bocian KM. Treatment integrity in learning disabilities intervention research: Do we really know how treatments are implemented? Learning Disabilities Research and Practice 2000;15:198–205
  • Coolican J, Smith IM, Bryson SE. Brief parent training in pivotal response treatment for preschoolers with autism. Journal of Child Psychology and Psychiatry 2010;51:1321–1330
  • Pipkin CS, Vollmer TR, Sloman KN. Effects of treatment integrity failures during differential reinforcement of alternative behavior: A translational model. Journal of Applied Behavior Analysis 2010;43:47–70
  • Gance-Cleveland B. Motivational interviewing: Improving patient education. Journal of Pediatric Health Care 2007;21:81–88
  • Hettema J, Steele J, Miller WR. Motivational interviewing. Annual Review of Clinical Psychology 2005;1:91–111
  • Devlin P. Enhancing the job performance of employees with disabilities using the self-determined career development model. Education and Training in Developmental Disabilities 2008;43:502–513
  • Fowler CH, Konrad M, Walker AR, Test DW, Wood WM. Self- determination interventions' effects on the academic performance of students with developmental disabilities. Education and Training in Developmental Disabilities 2007;42:270–285
  • Walker HM, Calkins C, Wehmeyer ML, Walker L, Bacon A, Palmer SB, Jesien GS, Nygren MA, Heller T. A social-ecological approach to promote self-determination. Exceptionality 2011;19:6–18
  • Hadre PL, Reeve J. A motivational model of rural students’ intentions to persist in, versus drop out of, high school. Journal of Educational Psychology 2003;95:347–356
  • Wehmeyer ML, Lattimore J, Jorgensen JD, Palmer SB, Thompson E, Schumaker KM. The self-determined career development model: A pilot study. Journal of Vocational Rehabilitation 2003;19:79–87
  • Wehmeyer ML, Palmer SB, Agran M, Mithaug DE, Martin JE. Promoting causal agency: The self-determined learning model of instruction. Exceptional Children 2000;66:439–453
  • Wehmeyer ML, Schwartz M. The self determination focus of transition goals for students with mental retardation. Career Development for Exceptional Individuals 1998;21:75–86
  • Smith TE. IDEA 2004: Another round in the reauthorization process. Remedial and Special Education 2005;26:314–319
  • Gallagher J, Desimone L. Lessons learned from implementation of the IEP applications to the IFSP. Topics in Early Childhood Special Education 1995;15:353–378
  • Baer DM, Wolf MM, Risley TR. Some current dimensions of applied behavior analysis. Journal of Applied Behavior Analysis 1968;1:91–97
  • Rispoli M, Machalicek W, Strickland E, Lang R. Assistive technology for people with acquired brain injury. In: Singh N, Lancioni G, editors. Assistive technology for people with diverse abilities. New York: Springer; in press
  • Culley C, Evans JJ. SMS text messaging as a means of increasing recall of therapy goals in brain injury rehabilitation: A single-blind within-subjects trial. Neuropsychological Rehabilitation 2010;20:103–119
  • Bryen DN, Carey A, Friedman M. Cell phone use by adults with intellectual disabilities. Intellectual and Developmental Disabilities 2007;45:1–9
  • McAdoo M. The real digital divide: Quality not quantity. In: Gordon D, editor. The digital classroom: How technology is changing the way we teach and learn. Cambridge, MA: Harvard Education Letter; 2000. pp 143–153
  • Ackerman AM, Shapiro ES. Self-monitoring and work productivity with mentally retarded adults. Journal of Applied Behavior Analysis 1984;17:403–407
  • Wyatt Kaminski J, Valle LA, Filene JH, Boyle CL. A meta-analytic review of components associated with parent training program effectiveness. Journal of Abnormal Child Psychology 2008;36:567–589
  • Horner RH, Albin RW. Research on general-case procedures for learners with severe disabilities. Education and Treatment of Children 1988;11:375–388
  • Budd KS, Greenspan S. Parameters of successful and unsuccessful interventions with parents who are mentally retarded. Mental Retardation 1985;23:269–273
  • Stokes TF, Baer DM. An implicit technology of generalization. Journal of Applied Behavior Analysis 1977;10:349–367
  • Wechsler D. Wechsler adult intelligence scale-revised. San Antonio: Psychological Corporation; 1981
  • Kaufman AS. Kaufman Brief Intelligence Test: KBIT. Circle Pines, MN: American Guidance Service; 1990
  • Newborg J. Battelle developmental inventory, 2nd ed. Itasca, IL: Riverside Publishing; 2005
  • Slosson RL. Slosson Intelligence test-revised. East Aurora, NY: Slosson Educational Publications, Incorporated; 1996
  • Barnard K, Kelly J. Assessment of parent--child interaction. In: Meisels S, Shonkoff J, editors. Handbook of early childhood intervention. New York: Cambridge University Press; 1990. pp 278–302
  • Goodman R. The strengths and difficulties questionnaire: A research note. Journal of Child Psychology and Psychiatry 1997;38:581–586
  • Arnold DS, O'Leary SG, Wolff LS, Acker MM. The parenting scale: A measure of dysfunctional parenting in discipline situations. Psychological Assessment 1993;5:137–144
  • Lovibond PF, Lovibond SH. Manual for the depression anxiety stress scales, 2nd ed. Sydney: The Psychology Foundation of Australia; 1995
  • Cunningham C, Sloper T, Rangecroft A, Knussen C, Lennings C, Dixon I, Reeves D. The effects of early intervention on the occurrence and nature of behavior problems in children with Down’s Syndrome. Final report to Hester Adrian Research Centre, University of Manchester; 1986
  • Eyberg SM, Pincus D. Eyberg child behavior inventory and Sutter-Eyberg student behavior inventory- Revised professional manual. Odesa, FL: Psychological Assessment Measure; 1999

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.