526
Views
15
CrossRef citations to date
0
Altmetric
Research Article

Tools for assessing the quality and accessibility of online health information: initial testing among breast cancer websites

, &
Pages 366-381 | Received 09 Feb 2012, Accepted 29 Mar 2013, Published online: 19 Aug 2013

References

  • Fox S, Jones S. The social life of health information. 2009. Available from: http://www.pewinternet.org/Reports/2009/8-The-Social-Life-of-Health-Information.aspx [last accessed February 2012]
  • Cashen MS, Dykes P, Gerber B. eHealth technology and Internet resources: barriers for vulnerable populations. J Cardiovasc Nurs 2004;19:209–14
  • Mich L, Franch M, Gaio L. Evaluating and designing web site quality. IEEE Multimedia 2003;10:34–43
  • U.S. Department of Health and Human Services. Research-based web design & usability guidelines. 2006. Available from: http://usability.gov/guidelines/guidelines_book.pdf [last accessed August 2011]
  • Web Accessibility Initiative. How to meet WCAG 2.0. 2010. Available from: http://www.w3.org/WAI/WCAG20/quickref/ [last accessed August 2011]
  • Eysenbach GJ, Kohler C. What is the prevalence of health-related searches on the world wide web? Qualitative and quantitative analysis of search engine queries on the internet. AMIA Annu Symp Proc 2003:225–9
  • Satterlund MJ, McCaul KD, Sandgren AK. Information gathering over time by breast cancer patients. J Med Internet Res 2003;5:e15
  • Department of Health and Human Services. 2020 Topics and Objectives: Health Communication and Health Information Technology Objectives. 2011. Available from: http://healthypeople.gov/2020/topicsobjectives2020/objectiveslist.aspx?topicId=18 [last accessed August 2011]
  • Rubin A, Rubin, R. Interface of personal and mediated communication: fifteen years later. Electronic J Commun 2001;11:1–19
  • Becker SA. A study of web usability for older adults seeking online health resources. ACM Trans Comput Hum Interact 2004;11:387–406
  • Zarcadoolas C, Blanco M, Boyer JF, Pleasant A. Unweaving the web: an exploratory study of low-literate adults' navigating skills on the world wide web. J Health Commun 2002;7:309–24
  • Benigeri M, Pluye P. Shortcomings of health information on the internet. Health Promot Int 2003;18:381–6
  • Eysenbach G, Powell J, Kuss O, Sa E. Empirical studies assessing the quality of health information for consumers on the World Wide Web. JAMA 2002;287:2691–2700
  • Huntington P, Nicholas D, Gunter B, et al. Consumer trust in health information on the web. Aslib Proceedings: New Informat Perspect 2004;56:373–82
  • Doshi A, Patrick K, Sallis JF, Calfas K. Evaluation of physical activity web sites for use of behavior change theories. Ann Behav Med 2003;25:105–11
  • Evers KE, Prochaska JM, Prochaska JO, et al. Strengths and weaknesses of health behavior change programs on the Internet. J Health Psychol 2003;8:63–70
  • Whitten P, Smith S, Munday S, LaPlante S. Communication assessment of the most frequented breast cancer websites: evaluation of design and theoretical criteria. J Comput Mediat Commun 2008;13:880–911
  • Nielsen-Bohlman L, Panzer AM, Kindig DA. Health literacy: a prescription to end confusion. Washington, DC: Institute of Medicine; 2004
  • United States Department of Education. Digest of education statistics (1985–1986). Washington, DC: Office of Educational Research and Improvement, United States Department of Education Center for Statistics; 1986
  • Elliott JO, Charyton C, Long L. A health literacy assessment of the National Epilepsy Foundation Web site. Epilepsy Behav 2007;11:525–32
  • Neuhauser L, Rothschild R, Rodríguez FM. MyPyramid.gov: assessment of literacy, cultural and linguistic factors in the USDA food pyramid web site. J Nutr Educ Behav 2007;39:7
  • Whitten P, Nazione S, Smith SW, LaPlante C. An examination into audience targeting and the use of storytelling or statistical evidence on breast cancer websites. Patient Educ Counsel 2011;85:e59–64
  • Friedman DB, Kao EK. A comprehensive assessment of the difficulty level and cultural sensitivity of online cancer prevention resources for older minority men. Prev Chronic Dis 2008;5:1–11
  • National Center for Education Statistics. A first look at the literacy of America's adults in the 21st century. 2006. Available from: http://nces.ed.gov/NAAL/PDF/2006470.PDF [last accessed August 2011]
  • Croft RD, Peterson MW. An evaluation of the quality and contents of asthma education on the World Wide Web. CHEST 2002;121:1301–8
  • Wilson FL, Baker LM, Brown-Syed C, Goilop C. An analysis of the readability and cultural sensitivity of information on the National Cancer Institute's web site: CancerNet. Oncol Nurs Forum 2000;27:1403–9
  • Norman CD, Skinner HA. eHealth literacy: essential skills for consumer health in a networked world. J Med Internet Res 2006;8:e9
  • Klare GR. The measurement of readability. Ames (IA): State University Press; 1963
  • Kincaid JP, Fishburne RP Jr, Rogers RL, Chissom BS. Derivation of new readability formulas (automated readability index, fog count, and Flesch reading ease formula) for Navy enlisted personnel (Research Branch Report 8–75). Millington (TN): Naval Technical Training Command; 1975
  • Golbeck AL, Ahlers-Schmidt CR, Paschal AM, Dismuke SE. A definition and operational framework for health numeracy. Am J Prev Med 2005;29:375–6
  • Catts R, Lau J. Towards information literacy indicators. 2008. Available from: www.uis.unesco.org/Library/Documents/wp08_InfoLit_en.pdf [last accessed February 2012]
  • Mason J, McMorrow R. YACLD (Yet another computer literacy definition). J Comput Sci Coll 2006;21:94–100
  • Balen RM, Jewesson PJ. Pharmacist computer skills and needs assessment survey. J Med Internet Res 2004;6:e11
  • Livingstone S. Media literacy and the challenge of new information and technologies. Commun Rev 2004;1:3–14
  • Ad Hoc Committee on Health Literacy for the Council on Scientific Affairs. Health literacy: report of the Council on Scientific Affairs. JAMA 1999;281:552–7
  • Resnicow K, Baranowski T, Ahluwalia JS, Braithwaite RL. Cultural sensitivity in public health: defined and demystified. Ethn Dis 1999;9:10–21
  • Eichner J, Dullabh P. Accessible health information technology (IT) for populations with limited literacy: a guide for developers and purchasers of health IT. 2007. Available from: http://healthit.ahrq.gov/portal/server.pt/gateway/PTARGS_0_3882_803031_0_0_18/LiteracyGuide.pdf [last accessed August 2011]
  • Holum A, Gahala J. Critical issue: using technology to enhance literacy instruction. 2001. Available from: http://www.ncrel.org/sdrs/areas/issues/content/cntareas/reading/li300.htm [last accessed August 2011]
  • Watts M, Lloyd C. The use of innovative ICT in the active pursuit of literacy. J Comp Assist Learn 2003;20:50–8
  • National Cancer Institute. SEER Stat Fact Sheets: Breast. 2011. Available from: http://seer.cancer.gov/statfacts/html/breast.html [last accessed October 2011]
  • Linssen C, Schook RM, The A, et al. A website on lung cancer: who are users and what are looking for? J Thorac Oncol 2007;2:813–21
  • Anderson PF, Allee N, Grove S, Hill S. Medical library association encyclopedia guide to searching and finding health information on the Internet. 1999. Available from: http://www-personal.umich.edu/~pfa/pro/courses/WebEvalNew.pdf [last accessed August 2011]
  • Summers K, Summers M. Reading and navigational strategies of web users with lower literacy skills. Paper presented at the 68th Annual Meeting of the American Society for Information Science and Technology; 2005; Charlotte, NC
  • Ahlers-Schmidt CR., Goldbeck AL, Paschal A, et al. Breast cancer counts: numeracy in breast cancer information on the web. J Cancer Educ 2006;21:95–7
  • Peters E, Hibbard J, Slovic P, Dieckman N. Numeracy skill and the communication, comprehension, and use of risk–benefit information. Health Aff 2007;26:741–8
  • Educational Testing Services. Digital transformation: a framework for ICT literacy. A report of the international ICT literacy panel. 2002. Available from: http://www.ets.org/Media/Tests/Information_and_Communication_Technology_Literacy/ictreport.pdf [last accessed August 2011]
  • Curtis PA, Gardner FA, Litzenberg KK. Measuring computer literacy in colleges of agriculture: results, conclusions, and implications. 1986. Available from: http://eric.ed.gov/PDFS/ED286474.pdf [last accessed August 2011]
  • Department of Health and Human Services. Health Literacy. 2008. Available from: http://www.hrsa.gov/healthliteracy/ [last accessed August 2008]
  • Ratzan SC, Parker RM. Introduction. In: Selden CR, Zorn M, Ratzan SC, Parker RM, eds. National Library of Medicine current bibliographies in medicine: health literacy. Washington, DC: National Institutes of Health, US Department of Health and Human Services; 2000:V–VI
  • Center for Media Literacy. Literacy for the 21st Century: An Overview & Orientation Guide to Media Literacy Education. 2003. Available from: http://www.medialit.org/reading_room/article540.html [last accessed August 2011]
  • Media Literacy Network. Media literacy key concepts. 2008. Available from: http://www.media-awareness.ca/english/teachers/media_literacy/key_concept.cfm [last accessed August 2011]
  • Guidry JJ, Larke P, Walker VD, et al. Cancer prevention materials for African Americans Project. 1996. Available from: http://www.texascancer.info/pcemat/contents.html [last accessed August 2011]
  • Sullivan D. Nielsen NetRatings search engine ratings. 2006. Available from: http://searchenginewatch.com/article/2067079/Nielsen-NetRatings-Search-Engine-Ratings [last accessed August 2011]
  • Potter WJ, Levine-Donnerstein D. Rethinking validity and reliability in content analysis. J Appl Commun Res 1999;27:258–84
  • Dhillon G, Coss D, Hackney R. Interpreting the role of disruptive technologies in e-business. Logistics Inform Manag 2001;14:163–70
  • Velicer WF, Prochaska JO, Fava JL, et al. Smoking cessation and stress management: applications of the transtheoretical model of behavior change. Homeostasis 1998;38:216–33
  • Ajzen I. From intentions to actions: a theory of planned behavior. In: Kuhl J, Beckmann J, eds. Action control: from cognition to behavior. New York: Springer; 1985:11–39
  • Witte K. Putting the fear back in fear appeals: the extended parallel process model. Commun Monographs 1992;59:329–49
  • Irvine AB, Ary DA, Grove DA, Gilfillan-Morton L. The effectiveness of an interactive multimedia program to influence eating habits. Health Educ Res 2004;19:290–305
  • Stout PA, Villegas J, Kim H. Enhancing learning through use of interactive tools on health-related websites. Health Educ Res 2001;16:721–33
  • Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale (NJ): Lawrence Erlbaum; 1988
  • Paasche-Orlow MK. The challenges of informed consent for low-literate populations. In: Swartzberg J, VanGeese J, Wang C, eds. Understanding health literacy: implications for medicine and public health. Chicago (IL): American Medical Association Press; 2005:119–40

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.