Characteristics of patients seeking health information online via social health networks versus general Internet sites: a comparative study

References

• Fox S. Pew Internet: Health. Pew Internet and American Life Project, Project of the Pew Research Center, 1 July 2013 Survey. Available from: http://www.pewinternet.org/Static-Pages/Trend-Data-%28Adults%29/Whos-Online.aspx; www.pewinternet.org/commentary/2011/November/Pew-Internet-Health@aspx [last accessed 30 Dec 2013]
   Google Scholar
• Brenner J, Smith A. Report: Social networking 72% of online adults are social networking site users. Pew Internet and American Life Project, Project of the Pew Research Center, 5 August 2013. Available from: www.pewinternet.org/Reports/2013/social-networking-sites.aspx [last accessed 30 Dec 2013]
   Google Scholar
• Statistic Brain. Social networking statistics. Poll taken early 2012 and research date 12 August 2013. Available from: www.statisticbrain.com/social-networking-statistics/ [last accessed 30 Dec 2013]
   Google Scholar
• Bansil P, Keenan NL, Zlot AIet al. Health-related information on the Web: results from the HealthStyles Survey, 2002–2003. Prev Chronic Dis 2006;3:A36
   PubMedGoogle Scholar
• Atkinson NL, Saperstein SL, Pleis J. Using the Internet for health-related activities: findings from a national probability sample. J Med Internet Res 2009;11:e4 . Available from: http://www.jmir.org/2009/1/e4/
   PubMed Web of Science ®Google Scholar
• Kontos EZ, Emmons KM, Puleo E, Viswanath K. Communication inequalities and public health implications of adult social networking site use in the United States. J Health Commun 2010;15:216–35
   PubMed Web of Science ®Google Scholar
• Van Uden-Kraan CF, Drossaert CHC, Taal Eet al. Participation in online patient support groups endorses patients’ empowerment. Patient Educ Couns 2009;74:61–9
   PubMed Web of Science ®Google Scholar
• Dickerson SS, Flaig DM, Kennedy MC. Therapeutic connection: help seeking on the Internet for persons with implantable cardioverter defibrillators. Heart Lung 2000;29:248–55
   Google Scholar
• White MH, Dorman SM. Online support for caregivers. Analysis of an Internet Alzheimer mailgroup. Comput Nurs 2000;18:168–76; quiz 177–9
   PubMedGoogle Scholar
• Shaw BR, Han JY, Baker Tet al. How women with breast cancer learn using interactive cancer communication systems. Health Educ Res 2007;22:108–19
   PubMed Web of Science ®Google Scholar
• Gooden RJ, Winefield HR. Breast and prostate cancer online discussion boards: a thematic analysis of gender differences and similarities. J Health Psych 2007;12:103–14
   PubMed Web of Science ®Google Scholar
• Meier A, Lyons E, Frydman Get al. How cancer survivors provide support on cancer-related Internet mailing lists. J Med Internet Res 2007;9:1–22
   Web of Science ®Google Scholar
• Bartlett YK, Coulson NS. An investigation into the empowerment effects of using online support groups and how this affects health professional/patient communication. Patient Educ Couns 2011;83:113–19
   PubMed Web of Science ®Google Scholar
• Finn J. An exploration of helping processes in an online self-help group focusing on issues of disability. Health Soc Work 1999;24:220–31
   PubMed Web of Science ®Google Scholar
• Sullivan CF. Gendered cybersupport: a thematic analysis of two online cancer support groups. J Health Psych 2003;8:83–103
   PubMed Web of Science ®Google Scholar
• Wise M, Han JY, Shaw Bet al. Effects of using narrative and didactic information on healthcare participation for breast cancer patients. Patient Educ Couns 2008;70:348–56
   PubMed Web of Science ®Google Scholar
• Van Dam HA, Vander Horst FG, Knoops Let al. Social support in diabetes: a systematic review of controlled intervention studies. Patient Educ Couns 2005;59:1–12
   PubMed Web of Science ®Google Scholar
• Tichon JG, Shapiro M. The process of sharing social support in cyberspace. Cyberpsychol Behav 2003;6:161–70
   PubMedGoogle Scholar
• Malik SH, Coulson NS. A comparison of lurkers and posters within infertility online support groups. Comput Inform Nurs 2011;29:564–73
   PubMed Web of Science ®Google Scholar
• Blank TO, Adams-Blodnieks M. The who and the what of usage of two cancer online communities. Comput Human Behav 2007;23:1249–57
   Web of Science ®Google Scholar
• Seale C, Ziebland S, Charteris-Black J. Gender, cancer experience and internet use: a comparative keyword analysis of interviews and online cancer support groups. Soc Sci Med 2006;62:2577–90
   PubMed Web of Science ®Google Scholar
• Mo PKH, Malik SH, Coulson NS. Gender differences in computer mediated communication: a systematic literature review of online health related support groups. Patient Educ Couns 2009;75:16–24
   PubMed Web of Science ®Google Scholar
• Benjamini Y, Hochberg Y. Controlling the false discovery rate: a practical and powerful approach to multiple testing. J R Statist Soc Ser B 1995;57:289–300
   Web of Science ®Google Scholar
• Anderberg MR. Cluster analysis for applications. New York, Academic Press Inc.; 1973
   Google Scholar
• Malone M, Harris R, Hooker Ret al. Health and the Internet – changing boundaries in primary care. Fam Pract 2004;21:189–91
   PubMed Web of Science ®Google Scholar
• Dumaij ACM, Tijssen ECG. On-line health companion contact among chronically ill in the Netherlands. Health Technol 2011;1:5–23
   Google Scholar
• Purcell K. Search and email still top the list of most popular online activities. Available from: http://pewinternet.org/Reports/2011/Search-and-email.aspx [last accessed 17 April 2013]
   Google Scholar
• Rutten LJF, Squiers L, Hesse B. Cancer-related information seeking: hints from the 2003 Health Information National Trends Survey (HINTS). J Health Commun 2006;11:147–56
   PubMed Web of Science ®Google Scholar
• Fallows D. How women and men use the Internet. Pew Internet & American Life Project, Washington DC, 2005. Available form: http://www.pewinternet.org/Reports/2005/How-Women-and-Men-Use-the-Internet/01-Summary-of-Findings.aspx [last accessed 30 Dec 2013]
   Google Scholar
• Burke E, Beckjord E, Rutten LJFet al. Use of the Internet to communicate with health care providers in the United States: estimates from the 2003 and 2005 Health Information National Trends Surveys (HINTS). J Med Internet Res 2007;9:e20 . Available from: http://www.jmir.org/2007/3/e20/
   Google Scholar
• Mackey R. Is social networking killing you? The New York Times, 24 February 2009. Available from: http://thelede.blogs.nytimes.com/2009/02/24/is-social-networking-killing-you/ [last accessed 30 Dec 2013]
   Google Scholar
• Putnam RD. Bowling alone: America’s declining social capital. J Democr 1995;6:65–78
   Google Scholar
• Putnam RD. Bowling alone: the collapse and revival of American community. New York: Simon & Schuster; 2000
   Google Scholar
• Shah DV, Kwak N, Holbert RL. “Connecting” and “disconnecting” with civic life: patterns of Internet use and the production of social capital. Polit Commun 2001;18:141–62
   Web of Science ®Google Scholar
• Shah DV, McLeod JM, Yoon SH. Communication, context, and community – an exploration of print, broadcast, and Internet influences. Commun Res 2001;28:464–506
   Web of Science ®Google Scholar
• Miller CC. Social networks a lifeline for the chronically ill. The New York Times, 24 March 2010. Available from: http://www.nytimes.com/2010/03/25/technology/25disable.html [last accessed 17 April 2013]
   Google Scholar