What is consumer health informatics? A systematic review of published definitions

References

• Nelson R and Ball MJ. Consumer informatics: applications and strategies in cyber health care. New York: Springer; 2004
   Google Scholar
• Jimison H, Gorman P and Woods Set al. Barriers and drivers of health information technology use for the elderly, chronically ill and underserved. Evid Rep Technol Assess (Full Rep) 2008;175:1–1422
   Google Scholar
• Eysenbach G, Powell J, Kuss O and Sa ER. Empirical studies assessing the quality of health information for consumers on the World Wide Web. JAMA 2002;287:2691–700
   PubMed Web of Science ®Google Scholar
• Hung M, Conrad J and Hon SDet al. Uncovering patterns of technology use in consumer health informatics. Wiley Interdiscipl Rev: Comput Stat 2013;5:432–47
   PubMedGoogle Scholar
• Gibbons MC, Wilson RF and Samal Let al. Impact of consumer health informatics applications. Evid Rep Technol Assess (Full Rep) 2009;188:1–546
   Google Scholar
• The Center for Health Enhancement System Studies. University of Wisconsin [Internet]. Available from: www.chess.wisc.edu/chess/projects/about_chess.aspx [last accessed 25 Jan 2014]
   Google Scholar
• Gustafson DH, Hawkins R and Pingree Set al. Effect of computer support on younger women with breast cancer. J Gen Intern Med 2001;16:435–45
   PubMed Web of Science ®Google Scholar
• Gustafson DH, Hawkins R and Mctavish Fet al. Internet-based interactive support for cancer patients: are integrated systems better? J Commun 2008;58:238–57
   PubMed Web of Science ®Google Scholar
• Eyler AA. Consumer health informatics: improving patient engagement. Transl Behav Med 2011;1:10
   Google Scholar
• American Medical Informatics Association [Internet]. Available from: www.amia.org/applications-informatics/consumer-health-informatics [last accessed 5 Aug 2012]
   Google Scholar
• Arocha JF and Hoffman-Goetz L. A survey of public health and consumer health informatics programmes and courses in Canadian universities and colleges. Inform Health Soc Care 2012;37:242–52
   Web of Science ®Google Scholar
• Houston TK, Chang BL, Brown S and Kukafka R. Consumer health informatics: a consensus description and commentary from American Medical Informatics Association members. Proceedings of the AMIA Symp 2001;2:269–73. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2243697/ [last accessed 27 Sept 2013]
   Google Scholar
• McDaniel AM, Schutte DL and Keller LO. Consumer health informatics: from genomics to population health. Nurs Outlook 2008;56:216–23
   Google Scholar
• Hanif F, Read JC and Goodacre JAet al. The role of quality tools in assessing reliability of the internet for health information. Inform Health Soc Care 2009;34:231–43
   PubMed Web of Science ®Google Scholar
• COACH. Health Informatics Professional Core Competencies v3.0. Toronto Ontario 2012. Available from: www.coachorg.com
   Google Scholar
• Centers for disease control and prevention. Competencies for public health informaticians 2009. Atlanta Georgia 2009. Available from: www.cdc.gov/informaticscompetencies/downloads/phi_competencies.pdf
   Google Scholar
• Bernstam EV, Smith JW and Johnson TR. What is biomedical informatics? J Biomed Inform 2010;43:104–10
   PubMed Web of Science ®Google Scholar
• Van De Belt TH, Engelen LJ, Berben SA and Schoonhoven L. Definition of Health 2.0 and Medicine 2.0: a systematic review. J Med Internet Res 2010;12:e18. doi: 10.2196/jmir.1350
   PubMed Web of Science ®Google Scholar
• Oh H, Rizo C, Enkin M and Jadad A. What is eHealth? A systematic review of published definitions. J Med Internet Res 2005;7:e1. doi:10.2196/jmir.7.1.e1
   PubMed Web of Science ®Google Scholar
• Frank JR, Mungroo R and Ahmad Yet al. Toward a definition of competency-based education in medicine: a systematic review of published definitions. Med Teach 2010;32:631–7
   PubMed Web of Science ®Google Scholar
• Petticrew M and Roberts H. Systematic reviews in the social sciences: a practical guide. Malden (MA): Blackwell; 2006
   Google Scholar
• Higgins JPT, Green S. Cochrane handbook for systematic reviews of interventions version 5.0.2. The Cochrane Collaboration 2009. Available from: www.cochrane-handbook.org
   Google Scholar
• Hart H. Some Methods for Improving Sociological Methods. Am Sociol Rev 1943;8:333–51
   Google Scholar
• Misser E, Bell S. Why we cite sources in academic papers. Writing Centre, Wilfrid Laurier University; 2013. Available from: www.wlu.ca/writing
   Google Scholar
• Mantas J. Education and consumer health informatics. IMIA yearbook of medical informatics. Stuttgart, Germany: Schattauer; 2007
   Google Scholar
• Garfield E. The history and meaning of the journal impact factor. JAMA 2006;295:90–3
   PubMed Web of Science ®Google Scholar
• Seglen PO. Why the impact factor of journals should not be used for evaluating. BMJ 1997;314:498–502
   PubMed Web of Science ®Google Scholar
• Arnold K. Journals, the press and press releases: a cozy relationship. Sci Ed 2003;26:82–4
   Google Scholar
• Kintsch W. The representation of meaning in memory. Hillsdale (NJ): Lawrence Erlbaum Associates (distributed by Halsted Press Division, New York: Wiley); 1974
   Google Scholar
• Woods B, Moscardo G and Greenwood T. A critical review of readability and comprehensibility tests. J Tourism Stud 1998;9:49–61
   Google Scholar
• McLaughlin GH. SMOG Grading: a new readability formula. J Reading 1969;12:639–46
   Web of Science ®Google Scholar
• Friedman DB and Hoffman-Goetz L. A systematic review of readability and comprehension instruments used for print and web-based cancer information. Health Educ Behav 2006;33:352–73
   PubMed Web of Science ®Google Scholar
• Landauer TK, McNamara DS, Dennis S and Kintsch W. Handbook of latent semantic analysis. New York: Routledge; 2011
   Google Scholar
• Landauer TK, Foltz PW and Laham D. An introduction to latent semantic analysis. Discour Proc 1998;25:259–84
   Web of Science ®Google Scholar
• Computerized Propositional Idea Density Rater (CPDR) version 5.1. Computer Analysis of Speech for Psychological Research, Institute for Artificial Intelligence, University of Georgia 2012. Available from: www.ai.uga.edu/caspr/
   Google Scholar
• Covington MA. Idea density: a potentially informative characteristic of retrieved documents. Paper presented at IEEE SoutheastCon; 2009 March 5–8;2009. Available from: www.ai.uga.edu/caspr/Covington-2009-Idea-Density-paper-SEC09-060.pdf [last accessed 4 Oct 2013]
   Google Scholar
• Brown C, Snodgrass T and Kemper SJet al. Automatic measurement of propositional idea density from part-of-speech tagging. Behav Res Methods 2008;40:540–5
   PubMed Web of Science ®Google Scholar
• Eysenbach G. Recent advances: consumer health informatics. BMJ 2000;320:1713–16
   PubMed Web of Science ®Google Scholar
• Ferguson T. Consumer health informatics. Heal Forum J 1995;38:28–33
   Google Scholar
• Jimison H and Sher P. Consumer health informatics: health information technology for consumers. J Am Soc Inf Sci 1995;46:783–90
   Web of Science ®Google Scholar
• Motley CM, Heyl NF, Ricks RL, et al. Consumer health informatics: emerging issues. Report to the Chairman, Subcommittee on human resources and intergovernmental relations, House committee on government reform and oversight, US General Accounting Office 1996. Available from: www.gao.gov/archive/1996/ai96086.pdf [last accessed 4 Oct 2013]
   Google Scholar
• Bader SA and Braude RM. ‘Patient informatics': creating new partnerships in medical decision making. Acad Med 1998;73:408–11
   PubMed Web of Science ®Google Scholar
• [Anonymous]. Online services facilitate self-care practice. Empl Benef Plan Rev 1998;52:51
   Google Scholar
• Bouhaddou O, Lambert JG, Miller S. Consumer health informatics: knowledge engineering and evaluation studies of medical HouseCall. Annual AMIA Symposium Proceedings, 1998;612–16
   Google Scholar
• Brennan PF. Health informatics and community health: support for patients as collaborators in care. Methods Inf Med 1999;38:274–8
   PubMed Web of Science ®Google Scholar
• Rhodes E. Consumer informatics: helping patients to access health information via the Internet. Nurs Connect 2000;13:33–42
   Google Scholar
• Committee on enhancing the Internet for health applications: technical requirements and implementation strategies CSaTB, National Research Council. Networking Health: Prescriptions for the Internet. Washington, DC: National Academic Press; 2000. Available from: www.ncbi.nlm.nih.gov/books/NBK44724/ [last accessed 5 Oct 2013]
   Google Scholar
• Lewis D and Pesut D. Emergence of consumer health care informatics. Nurs Outlook 2001;49:7
   Google Scholar
• Gustafson DH, Hawkins RP and Boberg EWet al. CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. Int J Med Inform 2002;65:169–77
   PubMed Web of Science ®Google Scholar
• Eysenbach G. The semantic web and healthcare consumers: a new challenge and opportunity on the horizon? Int J Technol Manag 2003;5:194–212
   Google Scholar
• Perry G and Weldon S. Consumer health informatics research: implications for consumers, health information professionals and researchers. J Med Internet Res 2005;9:1–10
   Google Scholar
• Bakker TA, Ryce AN and Logan RAet al. A consumer health informatics (CHI) toolbox: challenges and implications. AMIA Ann Sympos Proc 2005;2:21–5
   Google Scholar
• Khan SA, McFarlane DJ, Li, J, et al. Healthy Harlem: empowering health consumers through social networking, tailoring and web 2.0 technologies. AMIA Annual Symposium Proceedings; 2007:1007
   Google Scholar
• Keselman A, Logan R and Smith CAet al. Developing informatics tools and strategies for consumer-centered health communication. J Am Med Inform Assoc 2008;15:473–83
   PubMed Web of Science ®Google Scholar
• Gibbons MC, Wilson RF and Samal Let al. Consumer health informatics: results of a systematic evidence review and evidence based recommendations. Transl Behav Med 2009;1:72–82
   Google Scholar
• Alamantariotou K. Consumer health informatics and interactive visual learning tools for health. Int J Electron Healthc 2010;5:414–24
   Google Scholar
• Ho J. Consumer health informatics. (Health Informatics: an overview). Stud Health Technol Inform 2010;151:185–94
   Google Scholar
• Shaikh AR, Prabhu Das I, Vinson CA and Spring B. Cyber-infrastructure for consumer health. Am J Prevent Med 2011;40:91–6
   Google Scholar
• Ta-Min R, Arocha JF and Hoffman-Goetz L. Assessing readability and comprehensibility of web-based cancer information. J Inform Technol Heal 2007;5:300–12
   Google Scholar
• The Huffington Post Canada. War On Drugs Catastrophic Failure, BMJ Open Study Finds. [Internet]. Available from: www.huffingtonpost.ca/2013/10/01/war-on-drugs-study_n_4023486.html#slide=887965 [last accessed 10 Oct 2013]
   Google Scholar
• Los Angeles Times. Time to end the war against saturated fat? [Internet]. Available from: www.latimes.com/science/sciencenow/la-sci-saturated-fat-20131022,0,2193813.story#axzz2jEiqIJyS [last accessed 24 Oct 2013]
   Google Scholar
• British Medical Journal. Latest BMJ Headlines in the News. [Internet]. Available from: www.bmj.com/news [last accessed 24 Oct 2013]
   Google Scholar
• Ravetz J. Scientific knowledge and its social problems. Middlesex: Penguin University Books; 1973
   Google Scholar
• Ley P and Florio T. The use of readability formulas in health care. Psychol Health Med 1996;1:7–28
   Google Scholar
• Saha S. Impact factor: a valid measure of journal quality? J Med Libr Assoc 2003;91:42–6
   PubMed Web of Science ®Google Scholar
• Bastable, S. Essentials of patient education. Sudbury (MA): Jones and Bartlett; 2006. 185p
   Google Scholar
• Kulikowski CA, Shortliffe EH, Currie LM, et al. AMIA Board white paper: definition of biomedical informatics and specification of core competencies for graduate education in the discipline. J Am Med Inform Assoc 2012; 19:9318. doi: 10.1136/amiajnl-2012-001053
   Google Scholar