523
Views
22
CrossRef citations to date
0
Altmetric
Original Articles

Experiences of care reported by adults with traumatic brain injury

, &
Pages 107-123 | Published online: 21 Jan 2010

References

  • Accident Rehabilitation and Compensation Insurance Corporation & National Health Committee. (1998). Traumatic brain injury rehabilitation guidelines. Medical Journal of Australia, 167, 293–294.
  • Avesani, R., Salvi, G., Rigoli, G., Gambini, M. G. (2005). Reintegration after severe brain injury: A retrospective study. Brain Injury, 19, 933–939.
  • Bastian, H. (1996). Raising the standard: Practice guidelines and consumer participation. International Journal for Quality in Health Care, 8, 485–490.
  • Brain Trauma Foundation. (2006). Guidelines for the surgical management of traumatic brain injury. Neurosurgery, March, Supplement.
  • Brain Trauma Foundation. (2007). Guidelines for the management of severe traumatic brain injury. The Journal of Neurotrauma, May, Supplement 1.
  • Brain Trauma Foundation. (2008). Guidelines for pre-hospital management of severe traumatic brain injury (2nd ed.). New York: Brain Trauma Foundation.
  • British Society of Rehabilitation Medicine, and Royal College of Physicians. (2003). Rehabilitation following acquired brain injury: National clinical guidelines. London: The Lavenham Press.
  • Brooks, D., Campsie, L., Symington, C., Beattie, A., McKinlay, W. (1986). The five year outcome of severe blunt head injury: A relative's view. Journal of Neurology, Neurosurgery, and Psychiatry, 49, 764–770.
  • Brooks, D. N., Campsie, L., Symington, C., Beattie, A., McKinlay, W. (1987). The effects of severe head injury on patient and relative within seven years of injury. Journal of Head Trauma Rehabilitation, 2, 1–13.
  • Brooks, D. N., McKinlay, W. (1983). Personality and behavioural change after severe blunt head injury: A relative's view. Journal of Neurology, Neurosurgery, and Psychiatry, 46, 336–344.
  • Bulger, E. M., Nathens, A. B., Rivara, F. P., Moore, M., MacKenzie, E. J., Jurkovich, G. J. (2002). Management of severe head injury: Institutional variations in care and effect on outcome. Critical Care Medicine, 30, 1870–1876.
  • Bushnick, T. (2003). Introduction: The traumatic brain injury model systems of care. Archives of Physical Medical Rehabilitation, 84, 151–152.
  • Cabana, M. D., Rand, C. S., Powe, N. R., Wu, A. W., Wilson, M. H., Abboud, P. A., Rubin, H. A. (1999). Why don't physicians follow clinical practice guidelines? JAMA: Journal of the American Medical Association, 282, 1458.
  • Coetzer, R., Rushe, R. (2005). Post-acute rehabilitation following traumatic brain injury: Are both early and later improved outcomes possible? International Journal of Rehabilitation Research, 28, 361–363.
  • Ergh, T. C., Rapport, L. J., Coleman, R. D., Hanks, R. A. (2002). Predictors of caregiving and family functioning following traumatic brain injury: Social support moderates caregiver distress. Journal of Head Trauma Rehabilitation, 17, 155–174.
  • Fakhry, S. M., Trask, A. L., Waller, M. A., Watts, D. D. (2004). Management of brain injured patients by an evidence-based medicine protocol improves outcomes and decreases hospital charges including commentary by Valadka and discussion. Journal of Trauma, 56, 492–500.
  • Faul, M., Wald, M. M., Rutland-Brown, W., Sullivent, E. E., Sattin, R. W. (2007). Using a cost-benefit analysis to estimate outcomes of a clinical treatment guideline: Testing the brain trauma foundation guidelines for the treatment of severe traumatic brain injury. Journal of Trauma-Injury Infection and Critical Care, 63, 1271–1278.
  • Feild, M. J., Lohr M. J. (Eds.)(1990). Clinical practice guidelines: Directions for a new program. Washington, DC: National Academies Press.
  • Frattali, C., Bayles, K., Beeson, P., Kennedy, M. R. T., Wambaugh, J., Yorkston, K. (2003). Development of evidence-based practice guidelines: Committee update. Journal of Medical Speech-Language Pathology, 11, ix–xvii.
  • Gillham, B. (2000). Developing a questionnaire. New York: Continuum International Publishing Group.
  • Hodgkinson, A., Veerabangsa, A., Drane, D., McCluskey, A. (2000). Service utilization following traumatic brain injury. Journal of Head Trauma Rehabilitation, 15, 1208–1226.
  • Humphreys, J., Mathews-Cowey, S. (1997). Indicators of preferences of health care consumers. Paper presented at the 4th National Rural Health Conference.
  • Humphreys, J., Mathews-Cowey, S., Weinand, H. C. (1997). Factors in accessibility of general practice in rural Australia. Medical Journal of Australia, 166, 577–580.
  • Institute of Trauma and Health Injury Management. (2006). Initial management of closed head injury in adults. Sydney, NSW: NSW Institute of Trauma and Health Injury Management.
  • Institute of Medicine. (1992). Guidelines for clinical practice: From development to use. Washington, DC: National Academy Press.
  • Jackson, C. J., Furnham, A. (2000). Designing and analysing questionnaires and surveys: A manual for health professionals and administrators. London: Whurr.
  • Kaplan, C. P. (2001). The Community Integration Questionnaire with new scoring guidelines: Concurrent validity and need for appropriate norms. Brain Injury, 15, 725–731.
  • Kaplan, S. H., Greenfield, S., Ware, J. E. (1989). Assessing the effects of physician-patient interactions on the outcome of chronic disease. Medical Care, 27, 239–244.
  • Karlovits, T., McColl, M. A. (1999). Coping with community reintegration after severe brain injury: a description of stresses and coping strategies. Brain Injury, 13, 845–861.
  • Khan, F., Baguley, I. J., Cameron, I. D. (2003). Rehabilitation after traumatic brain injury. Medical Journal of Australia, 178, 290–295.
  • LeFebvre, H., Pelchat, D., Swaine, B., Gelinas, I., Levert, M. J. (2005). The experiences of individuals with a traumatic brain injury, families, physicians and health professionals regarding care provided throughout the continuum. Brain Injury, 19, 585–597.
  • Maas, A. I., Dearden, M., Teasdale, G. M., Braakman, R., Cohadon, F., Iannotti, F., et al (1997). EBIC-guidelines for management of severe head injury in adults. European Brain Injury Consortium. Acta Neurochir (Wien), 139, 286–294.
  • Maas, A. I. (2002). Guidelines for head injury: Their use and limitations. Neurological Research, 24(January), 19–23.
  • MacPhail, M. (1998). Accommodation support services for persons with acquired brain injury. Victoria: Ballarat Health Service.
  • Marsh, N. V., Kersel, D. A., Havill, J. H., Sleigh, J. W. (1998). Caregiver burden at 6 months following severe traumatic brain injury. Brain Injury, 12, 225–238.
  • Marsh, N. V., Kersel, D. A., Havill, J. H., Sleigh, J. W. (2002). Caregiver burden during the year following severe traumatic brain injury. Journal of Clinical and Experimental Neuropsychology, 24, 434–447.
  • McAuley, I., Menadue, J. (2007). A health policy for Australia: Reclaiming universal health care. Sydney, NSW: Centre for Policy Development.
  • McIlvoy, L. H., Spain, D. A., Raque, G. H., Vitaz, T., Boaz, P. W., Meyer, K. (2001). Successful incorporation of the severe head injury guidelines into a phased-outcome clinical pathway. Journal of Neuroscience Nursing, 33, 72–78.
  • McNaughton, H. (2004). Traumatic brain injury rehabilitation in New Zealand: Current practice review. Wellington, NZ: Medical Research Institute of New Zealand.
  • Motor Accident Authority NSW (2008). Guidelines for mild traumatic brain injury following closed head injury. Sydney: Motor Accident Authority.
  • Muus, K., Cogan, M., Offutt, S., Medalen, R. (2006). Perceived barriers to accessing health and social services among individuals with traumatic brain injury. Journal of Head Trauma Rehabilitation, 21, 431.
  • Nabors, N., Seacat, J., Rosenthal, M. (2002). Predictors of caregiver burden following traumatic brain injury. Brain Injury, 16, 1039–1050.
  • National Institute for Clinical Excellence (2007). Head injury: Triage, assessment, investigation and early management of head injury in children and adults. London, UK: National Institute for Health and Clinical Excellence.
  • Nelson, W. (2007). Ethics of patient preferences. Healthcare Executive, 22(5), 34–37.
  • New Zealand Guidelines Group (2006). Traumatic brain injury: Diagnosis, acute management and rehabilitation. Wellington: Accident Compensation Coorporation.
  • New Zealand Guidelines Group and Accident Compensation Corporation (2004). Traumatic Brain Injury Rehabilitation in New Zealand: Current Practice Review. Wellington, New Zealand: Medical Research Institute of New Zealand.
  • Newberry, L. (2001). A new direction? A follow up study. Melbourne: Monash University Acquired Brain Injury in Gippsland.
  • O'Connor, P. (2002). Hospitalisation due to traumatic brain injury, Australia 1997–98 (No. INJCAT 43). Canberra: Australian Institute of Health and Welfare.
  • Penchansky, R., William Thomas, J. (1981). The concept of access: Definition and relationship to consumer satisfaction. Medical Care, XIX, 127–140.
  • Rankin, N., Newell, S., Sanson-Fisher, R., Girgus, A. (2000). Consumer participation in the development of psychosocial clinical practice guidelines: Opinions of women with breast cancer. European Journal of Cancer Care, 9, 97–104.
  • Rao, J. N., Myers, P., Smith, B. S., Andreou, B. A. (1995). Ensuring that guidelines are effective. Pilot of patient held guidelines is under way. British Medical Journal, 311(7011), 1023–1023.
  • Rosenthal, M., Dijkes, M., Harrison-Felix, C., Nabors, N., Witol, A. D., Young, M. E., Englander, J. S. (1996). Impact of minority status on functional outcome and community integration following traumatic brain injury. Journal of Head Trauma Rehabilitation, 11(5), 40–57.
  • Seligman, M. (1993). Fall into helplessness. Psychology Today, Spring.
  • Schootman, M., Fourtes, L. (2000). Ambulatory care for traumatic brain injuries in the US, 1995–1997. Brain Injury, 14, 373–381.
  • Spain, D. A., McIlvoy, L. H., Fix, S. E., Carrillo, E. H., Boaz, P. W., Harpring, J. E., et al (1998). Effect of a clinical pathway for severe traumatic brain injury on resource utilization. Journal of Trauma-Injury Infection and Critical Care, 45, 101–104.
  • Stringer, K. (1999). Study into the accommodation needs for young people requiring nursing homes. Melbourne: Melbourne Citymission.
  • Tooth, L., McKenna, K., Strong, J., Ottenbacher, K., Connell, J., Cleary, M. (2001). Rehabilitation outcomes for brain injured patients in Australia: Functional status, length of stay and discharge destination. Brain Injury, 15, 613–631.
  • Traffic Accident Commission. (2003). Client information. Retrieved 17 July 2008, from http://www.tac.vic.gov.au/jsp/content/NavigationController.do?areaID=26
  • Trevena, L., Cameron, I. D., Porwal, M. (2004). Clinical practice guidelines for the care of people living with traumatic brain injury in the community. Sydney: The University of Sydney.
  • Turkstra, L. S., Kennedy, M. R. T. (2008). Traumatic brain injury and cognitive rehabilitation: Current approaches to research, reimbursement, and clinical treatment. The ASHA Leader, July, 10–13.
  • Turner-Stokes, L., Disler, P. B., Nair, A., Wade, D. T. (2005). Multi-disciplinary rehabilitation for acquired brain injury in adults of working age (review). The Cochrane Collaboration, 4, 1–29.
  • World Health Organization, & Commission on Social Determinants of Health. (2008). Closing the gap in a generation: Health equity through action on social determinates of health. Switzerland: Commission on Social Determinants of Health.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.