Guiding principles for printed education materials: Design preferences of people with aphasia

References

• Albert, T., & Chadwick, S. (1992). How readable are practice leaflets? British Medical Journal, 305, 1266–1268.
   PubMed Web of Science ®Google Scholar
• Aleligay, A., Worrall, L., & Rose, T. (2008). Readability of written health information provided to people with aphasia. Aphasiology, 22, 383–407.
   Web of Science ®Google Scholar
• Berarducci, M., Cooper, L., & Giles, V. (2007). Aphasia-friendly materials: Are we really producing them? ACQuiring Knowledge in Speech Language and Hearing, 9, 99–103.
   Google Scholar
• Bernier, M. (1993). Developing and evaluating printed education materials: A prescriptive model for quality. Orthopaedic Nursing, 12, 39–46.
   PubMedGoogle Scholar
• Braunack-Mayer, A., & Hersh, D. (2001). An ethical voice in the silence of aphasia: Judging understanding and consent in people with aphasia. The Journal of Clinical Ethics, 12, 388–396.
   PubMed Web of Science ®Google Scholar
• Buxton, T. (1999). Effective ways to improve health education materials. Journal of Health Education, 30, 47–50.
   Google Scholar
• Currie, K., Rajendran, M., Spink, J., Carter, M., & Anderson, J. (2001). Consumer health information: What the research is telling us. Australian Family Physician, 30, 1108–1112.
   PubMedGoogle Scholar
• Currie,, K., Spink, J., & Rajendran, M.(2000). Well-written health information: A guide. Melbourne: Department of Human Services Victoria.
   Google Scholar
• Davis, T., Fredrickson, D., Arnold, C., Murphy, P., Herbst, M., & Bocchini, J. (1998). A polio immunization pamphlet with increased appeal and simplified language does not improve comprehension to an acceptable level. Patient Education and Counseling, 33, 25–37.
   PubMed Web of Science ®Google Scholar
• Dickinson, D., Raynor, D., & Duman, M. (2001). Patient information leaflets for medicines: Using consumer testing to determine the most effective design. Patient Education and Counseling, 43, 147–159.
   PubMed Web of Science ®Google Scholar
• Doak, C., Doak, L., & Root, J. (1996a). Teaching patients with low literacy skills (2nd ed.).Philadelphia, PA: Lippincott.
   Google Scholar
• Doak, L., Doak, C., & Meade, C. (1996b). Strategies to improve cancer education materials. Oncology Nursing Forum, 23, 1305–1312.
   PubMedGoogle Scholar
• Donnan, G. (2003). What is a stroke? An information paper for persons affected by stroke and their carers. Information sheet. Victoria:Brain Foundation Victoria.
   Google Scholar
• Eames, S., McKenna, K., Worrall, L., & Read, S. (2003). The suitability of written education materials for stroke survivors and their carers. Topics in Stroke Rehabilitation, 10, 70–83.
   PubMedGoogle Scholar
• Elman, R., Parr, S., & Moss, B. (2003).The Internet and aphasia: Crossing the digital divide. In S. Parr J. Duchan, & C, Pound (Eds.), Aphasia inside out: Reflections on communicative disability (pp. 103–116). Berkshire: Open University Press.
   Google Scholar
• Estey, A., Jeremy, P., & Jones, M. (1990). Developing printed materials for patients with visual deficiencies. Journal of Ophthalmic Nursing and Technology, 9, 247–249.
   PubMedGoogle Scholar
• Eyles, P., Skelly, J., & Schmuck, M. (2003). Evaluating patient choice of typeface style and font size for written health information in an outpatient setting. Clinical Effectiveness in Nursing, 7, 94–98.
   Google Scholar
• Hallowell, B., & Chapey, R. (2008). Introduction to language intervention strategies in adult aphasia. In R. Chapey (Ed.), Language intervention strategies in aphasia and related neurogenic communication disorders (5th ed.)(pp. 3–19). Philadelphia, PA: Lippincott Williams & Wilkins.
   Google Scholar
• Hanson Frost, M., Thompson, R., & Boeding Thiemann, K. (1999). Importance of format and design in print patient information. Cancer Practice, 7, 22–27.
   PubMedGoogle Scholar
• Hoffmann, T., & Cochrane, T. (2009). What education do stroke patients receive in Australian hospitals? Patient Education and Counseling, 77, 187–191.
   PubMed Web of Science ®Google Scholar
• Hoffmann, T., & McKenna, K. (2006). Analysis of stroke patients’ and carers’ reading ability and the content and design of written materials: Recommendations for improving written stroke information. Patient Education and Counseling, 60, 286–293.
   PubMed Web of Science ®Google Scholar
• Hoffmann, T., McKenna, K., Worrall, L., & Read, S. (2007). Randomised trial of a computer-generated tailored written education package for patients following stroke. Age and Ageing, 36, 280–286.
   PubMed Web of Science ®Google Scholar
• Hoffmann, T., & Worrall, L. 2004. Designing effective written health education materials: Considerations for rehabilitation professionals. Disability and Rehabilitation, 26, 1166–1173.
   PubMed Web of Science ®Google Scholar
• Isakson, C., & Spyridakis, J. (1999). The influence of semantics and syntax on what readers remember. Technical Communication, 46, 366–381.
   Web of Science ®Google Scholar
• Kagan, A. (1995). Revealing the competence of aphasic adults through conversation: A challenge to health professionals. Topics in Stroke Rehabilitation, 2, 15–28.
   PubMedGoogle Scholar
• Kagan, A., & Kimelman, D. (1995). Informed consent in aphasia research: Myth or reality? Clinical Aphasiology, 23, 65–75.
   Google Scholar
• Kagan, A., & LeBlanc, K. (2002). Motivating for infrastructure change: Toward a communicatively accessible, participation-based stroke care system for all those affected by aphasia. Journal of Communication Disorders, 35, 153–169.
   PubMed Web of Science ®Google Scholar
• Kagan, A., Winckel, J., & Shumway, E. (1996). Pictographic communication resources: Enhancing communicative access. Toronto: Aphasia Institute.
   Google Scholar
• Kertesz, A. (1982). The Western Aphasia Battery. New York: The Psychological Corporation, Harcourt Brace Jovanovich.
   Google Scholar
• Kitching, J. 1990. Patient information leaflets: The state of the art. Journal of the Royal Society of Medicine, 83, 298–300.
   PubMed Web of Science ®Google Scholar
• Kreuter, M., Strecher, V., & Glassman, B. (1999). One size does not fit all: The case for tailoring print materials. Annals of Bevaioural Medicine, 21, 276–283.
   PubMed Web of Science ®Google Scholar
• La Pointe, L. (2005). Foundations: Adaptation, accommodation, aristos. In L. La Pointe (Ed.), Aphasia and related neurogenic language disorders (3rd ed.) (pp. 1–18). New York: Thieme.
   Google Scholar
• La Pointe, L., & Horner, J. (1998). Reading Comprehension Battery for Aphasia (2nd ed.). Austin, TX: Pro-Ed.
   Google Scholar
• Law, J., Bunning, K., Byng, S., Farrelly, S., & Heyman, B. (2005). Making sense in primary care: Levelling the playing field for people with communication difficulties. Disability and Society, 20, 169–184.
   Web of Science ®Google Scholar
• Levy, G. (2005). Seeing for ourselves: Producing accessible information for people with learning difficulties and visual impairments. British Journal of Learning Disabilities, 33, 77–82.
   Google Scholar
• Lewis, C., & Walker, P. (1989). Typographic influences on reading. British Journal of Psychology, 80, 241–257.
   PubMed Web of Science ®Google Scholar
• Ley, P. (1988). Communication with patients: Improving communication, satisfaction and compliance. London: Chapman and Hall.
   Google Scholar
• Mayer, G., & Villaire, M. (2007). Health literacy in primary care: A clinician's guide. New York: Springer Publishing.
   Google Scholar
• McKenna, K., & Scott, J. (2007). Do written education materials that use content and design principles improve older people's knowledge? Australian Occupational Therapy Journal, 54, 103–112.
   Web of Science ®Google Scholar
• Meade, C., & Smith, C. (1991). Readability formulas: Cautions and criteria. Patient Education and Counseling, 17, 153–158.
   Web of Science ®Google Scholar
• Mencap. (2000).Am I making myself clear? Mencap's guidelines for accessible writing. Available online at: www.mencap.org.uk, accessed 18 June 2010.
   Google Scholar
• National Stroke Foundation [NSF]. (2010). Clinical guidelines for stroke management 2010. Melbourne: National Stroke Foundation.
   Google Scholar
• O'Halloran, R., Hickson, L., & Worrall, L. (2008). Environmental factors that influence communication between people with communication disability and their healthcare providers in hospital: A review of the literature within the International Classification of Functioning, Disability and Health (ICF) framework. International Journal of Language and Communication Disorders, 43, 601–632.
   PubMed Web of Science ®Google Scholar
• Owens, J. (2006). Accessible information for people with complex communication needs. Augmentative and Alternative Communication, 22, 196–208.
   PubMed Web of Science ®Google Scholar
• Parr, S. (2007). Living with severe aphasia: Tracking social exclusion. Aphasiology, 21, 98–123.
   Web of Science ®Google Scholar
• Parr, S., Byng, S., Gilpin, S., & Ireland, C. (1997). Talking about aphasia: Living with loss of language after stroke. Buckingham: Open University Press.
   Google Scholar
• Parr, S., Pound, C., & Hewitt, A. (2006). Communication access to health and social services. Topics in Language Disorders, 26, 189–198.
   Web of Science ®Google Scholar
• Parr, S., Wimbourne, N., Hewitt, A., & Pound, C. (2008). The Communication Access Toolkit. London: Connect Toolkits.
   Google Scholar
• Paul, C., Redman, S., & Sanson-Fisher, R. (1997). The development of a checklist of content and design characteristics for printed health education materials. Health Promotion Journal of Australia, 7, 153–159.
   Google Scholar
• Pedersen, P., Jorgensen, H., Nakayama, H., Raaschou, H., & Olsen, T. (1995). Aphasia in acute stroke: Incidence, determinants and recovery. Annals of Neurology, 38, 659–666.
   PubMed Web of Science ®Google Scholar
• Pothier, L., Day, R., Harris, C., & Pothier, D. (2008). Readability statistics of patient information leaflets in a speech and language therapy department. International Journal of Language and Communication Disorders, 43, 712–722.
   PubMed Web of Science ®Google Scholar
• Pound, C., & Hewitt, A. (2004). Communication barriers: Building access and identity. In J. Swain, S. French, C. Barnes & C. Thomas (Eds.), Disabling barriers: Enabling environments (2nd ed.) (pp. 161–168). London: Sage.
   Google Scholar
• Pound,, C., Parr, S., Lindsay, J., & Woolf, C. (2001). Beyond aphasia: Therapies for living with communicating disability. Bicester: Speechmark.
   Google Scholar
• Rodgers, J., & Namaganda, S. (2005). Making information easier for people with learning disabilities. British Journal of Learning Disabilities, 33, 52–58.
   Google Scholar
• Rodgers, J., Townsley, R., Tarleton, B., Folkes, L., Mears, C., Levy, G., . (2004). Information for all: Guidance. Available online at: www.easyinfo.org.uk, accessed 12 February 2010.
   Google Scholar
• Rose, T., Worrall, L., Hickson, L., & Hoffmann, T. (2010). Do people with aphasia want written stroke and aphasia information? A verbal survey exploring preferences for when and how to provide stroke and aphasia information. Topics in Stroke Rehabilitation, 17, 79–98.
   PubMed Web of Science ®Google Scholar
• Rose, T., Worrall, L., Hickson, L., & Hoffmann, T. (2011). Aphasia friendly written health information: Content and design characteristics. International Journal of Speech-Lanugage Pathology, 13, 335–347.
   PubMed Web of Science ®Google Scholar
• Rose, T., Worrall, L., & McKenna, K. (2003). The effectiveness of aphasia-friendly principles for printed health education materials for people with aphasia following stroke. Aphasiology, 17, 947–963.
   Web of Science ®Google Scholar
• Rose, T., Worrall, L., McKenna, K., Hickson, L., & Hoffmann, T. (2009). Do people with aphasia receive written stroke and aphasia information? Aphasiology, 23, 364–392.
   Web of Science ®Google Scholar
• Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing and Health, 23, 334–340.
   PubMed Web of Science ®Google Scholar
• Schalling, E. (2009). Accessibility to health-care services: The need to build more ‘communication ramps’. International Journal of Therapy and Rehabilitation, 16, 126–127.
   Google Scholar
• Scottish Intercollegiate Guidelines Network [SIGN]. (2010). Management of patients with stroke: Rehabilitation, prevention and management of complications, and discharge planning. Edinburgh:National Health Service.
   Google Scholar
• Simmons-Mackie, N., Kagan, A., O'Neill Christie, C., Huijbregts, M., McEwen, S., & Willems, J. (2007). Communicative access and decision making for people with aphasia: Implementing sustainable healthcare systems change. Aphasiology, 21, 39–66.
   Web of Science ®Google Scholar
• Townsley, R., Rodgers, J., & Folkes, L. (2003). Getting informed: Researching the production of accessible information for people with learning disabilities. Journal of Integrated Care, 11, 39–43.
   Google Scholar
• Winslow, E. (2001). Patient education materials: Can patients read them, or are they ending up in the trash? American Journal of Nursing, 101, 33–38.
   PubMed Web of Science ®Google Scholar
• World Health Organization [WHO]. (2004). Standards for health promotion in hospitals. Barcelona: WHO European Office for Integrated Health Care Services.
   Google Scholar