Living successfully with aphasia: A qualitative meta-analysis of the perspectives of individuals with aphasia, family members, and speech-language pathologists

References

• Avent, J., Glista, S., Wallace, S., Jackson, J., Nishioka, J., & Yip, W. (2005). Family information needs about aphasia. Aphasiology, 19, 365–375.
   Web of Science ®Google Scholar
• Bakas, T., Kroenke, K., Plue, L. D., Perkins, S. M., & Williams, L. S. (2006). Outcomes among family caregivers of aphasic versus nonaphasic stroke survivors. Rehabilitation Nursing, 31, 33–42.
   PubMed Web of Science ®Google Scholar
• Boles, L. (1997). Conversation analysis as a dependent measure in communication therapy with four individuals with aphasia. Asia Pacific Journal of Speech, Language, and Hearing, 2, 43–61.
   Google Scholar
• Boles, L. (2006). Success stories in aphasia. Topics in Stroke Rehabilitation, 13, 37–43.
   PubMed Web of Science ®Google Scholar
• Booth, S., & Perkins, L. (1999). The use of conversation analysis to guide individualized advice to carers and evaluate change in aphasia: A case study. Aphasiology, 13, 283–303.
   Web of Science ®Google Scholar
• Bowling, A., & Gabriel, Z. (2007). Lay theories of quality of life in older age. Ageing and Society, 27, 827–848.
   Web of Science ®Google Scholar
• Brown, K., Worrall, L., Davidson, B., & Howe, T. (2010a). Exploring speech-language pathologists’ perspectives about living successfully with aphasia. International Journal of Language and Communication Disorders, 46, 300–311.
   Web of Science ®Google Scholar
• Brown, K., Worrall, L., Davidson, B., & Howe, T. (2010b). Snapshots of success: An insider perspective on living successfully with aphasia. Aphasiology, 24, 1267–1295.
   Web of Science ®Google Scholar
• Brown, K., Worrall, L., Davidson, B., & Howe, T. (2011). Living successfully with aphasia: Family members share their views. Topics in Stroke Rehabilitation, 18, 536–548.
   PubMed Web of Science ®Google Scholar
• Brumfitt, S. (2006). Psychosocial aspects of aphasia: Speech and language therapists’ views on professional practice. Disability and Rehabilitation, 28, 523–534.
   PubMed Web of Science ®Google Scholar
• Caporali, A., & Basso, A. (2003). A survey of long-term outcome of aphasia and of chances of gainful employment. Aphasiology, 17, 815–834.
   Web of Science ®Google Scholar
• Cruice, M., Hill, R., Worrall, L., & Hickson, L. (2010). Conceptualising quality of life for older people with aphasia. Aphasiology, 24, 327–347.
   Web of Science ®Google Scholar
• Cruice, M., Worrall, L., & Hickson, L. (2006a). Perspectives of quality of life by people with aphasia and their family: Suggestions for successful living. Topics in Stroke Rehabilitation, 13, 14–24.
   PubMed Web of Science ®Google Scholar
• Cruice, M., Worrall, L., & Hickson, L. (2006b). Quantifying aphasic people's social lives in the context of non-aphasic peers. Aphasiology, 20, 1210–1225.
   Web of Science ®Google Scholar
• Cruice, M., Worrall, L., Hickson, L., & Murison, R. (2003). Finding a focus for quality of life with aphasia: Social and emotional health, and psychological well-being. Aphasiology, 17, 333–353.
   Web of Science ®Google Scholar
• Cunningham, R., & Ward, C. (2003). Evaluation of a training programme to facilitate conversation between people with aphasia and their partners. Aphasiology, 17, 687–707.
   Web of Science ®Google Scholar
• Davidson, B., Howe, T., Worrall, L., Hickson, L., & Togher, L. (2008). Social participation for older people with aphasia: The impact of communication disability on friendships. Topics in Stroke Rehabilitation, 15, 325–340.
   PubMed Web of Science ®Google Scholar
• Denman, A. (1998). Determining the needs of spouses caring for aphasic partners. Disability and Rehabilitation, 20, 411–423.
   PubMed Web of Science ®Google Scholar
• Elman, R., & Bernstein-Ellis, E. (1999a). The efficacy of group communication treatment in adults having chronic aphasia: Linguistic and communicative outcome measures. Journal of Speech, Language, and Hearing Research, 42, 411–419.
   PubMed Web of Science ®Google Scholar
• Elman, R., & Bernstein-Ellis, E. (1999b). Psychosocial aspects of group communication treatment: Preliminary findings. Seminars in Speech and Language, 20, 65–72.
   PubMedGoogle Scholar
• Ferguson, A., Duffield, G., & Worrall, L. (2010). Legal decision-making by people with aphasia: Critical incidents for speech pathologists. International Journal of Language and Communication Disorders, 45, 244–258.
   PubMed Web of Science ®Google Scholar
• Fox, L., Poulsen, S., Clark Bawden, K., & Packard, D. (2004). Critical elements and outcomes of a residential family-based intervention for aphasia caregivers. Aphasiology, 18, 1177–1199.
   Web of Science ®Google Scholar
• Fox, S., Armstrong, E., & Boles, L. (2009). Conversational treatment in mild aphasia: A case study. Aphasiology, 23, 951–964.
   Web of Science ®Google Scholar
• Hersh, D. (2009). How do people with aphasia view their discharge from therapy? Aphasiology, 23, 331–350.
   Web of Science ®Google Scholar
• Hilari, K., & Northcott, S. (2006). Social support in people with chronic aphasia. Aphasiology, 20, 17–36.
   Web of Science ®Google Scholar
• Hilari, K., Wiggins, R. D., Roy, P., Byng, S., & Smith, S. C. (2003). Predictors of health-related quality of life (HRQL) in people with chronic aphasia. Aphasiology, 17, 365–381.
   Web of Science ®Google Scholar
• Hinckley, J. (2006). Finding messages in bottles: Living successfully with stroke and aphasia. Topics in Stroke Rehabilitation, 13, 25–36.
   PubMed Web of Science ®Google Scholar
• Holland, A. (2002). Self-determination and self-advocacy: New concepts for aphasic individuals and their partners. In L. T. Connor, & L. K. Obler, (Eds.), Neurobehaviour of language and cognition: Studies of normal aging and brain damage (pp. 109–116). New York: Springer US.
   Google Scholar
• Holland, A. (Ed.). (2006a). Consumer comments, control, and communication [Special issue]. Topics in Stroke Rehabilitation, 13.
   PubMed Web of Science ®Google Scholar
• Holland, A. (2006b). Living successfully with aphasia: Three variations on the theme. Topics in Stroke Rehabilitation, 13, 44–51.
   PubMed Web of Science ®Google Scholar
• Holland, A. (2007a). Counseling in communication disorders: A wellness perspective. San Diego, CA: Plural Publishing.
   Google Scholar
• Holland, A. (2007b). Counseling/coaching in chronic aphasia: Getting on with life. Topics in Language Disorders, 27, 339–350.
   Web of Science ®Google Scholar
• Hopper, T., Holland, A., & Rewega, M. (2002). Conversational coaching: Treatment outcomes and future directions. Aphasiology, 16, 745–761.
   Web of Science ®Google Scholar
• Kagan, A. (1998). Supported conversation for adults with aphasia: Methods and resources for training conversation partners. Aphasiology, 12, 816–830.
   Web of Science ®Google Scholar
• Kagan, A., Black, S., Duchan, J., Simmons-Mackie, N., & Square, P. (2001). Training volunteers as conversation partners using “supported conversation for adults with aphasia” (SCA): A controlled trial. Journal of Speech, Language, and Hearing Research, 44, 624–638.
   PubMed Web of Science ®Google Scholar
• Kagan, A., Simmons-Mackie, N., Rowland, A., Huijbregts, M., Shumway, E., McEwen, S., . (2008). Counting what counts: A framework for capturing real-life outcomes of aphasia intervention. Aphasiology, 22, 258–280.
   Web of Science ®Google Scholar
• Knight, T., & Ricciardelli, L. A. (2003). Successful aging: Perceptions of adults aged between 70 and 101 years. International Journal of Aging and Human Development, 56, 223–245.
   PubMed Web of Science ®Google Scholar
• Law, J., Huby, G., Irving, A-M., Pringle, A-M., Conochie, D., Haworth, C., & Burston, A. (2009). Reconciling the perspective of practitioner and service user: Findings from The Aphasia Scotland study. International Journal of Language and Communication Disorders, 45, 551–560.
   Web of Science ®Google Scholar
• Le Dorze, G., & Brassard, C. (1995). A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases. Aphasiology, 9, 239–255.
   Web of Science ®Google Scholar
• Le Dorze, G., & Signori, F. -H. (2010). Needs, barriers and facilitators experienced by spouses of people with aphasia. Disability and Rehabilitation, 32, 1073–1087.
   PubMed Web of Science ®Google Scholar
• Lincoln, Y., & Guba, E.(1985). Naturalistic Inquiry. Newbury Park, CA: Sage Publications.
   Google Scholar
• McCormick, J., Rodney, P., & Varcoe, C. (2003). Reinterpretations across studies: An approach to meta-analysis. Qualitative Health Research, 13, 933–944.
   PubMed Web of Science ®Google Scholar
• McLeod, S. (Ed.). (2008). Contribution of the ICF to speech-language pathology [Editorial]. International Journal of Speech-Language Pathology, 10, 1.
   Web of Science ®Google Scholar
• Michallet, B., Le Dorze, G., & Teatreault, S. (2001). The needs of spouses caring for severely aphasic persons. Aphasiology, 15, 731–747.
   Web of Science ®Google Scholar
• Michallet, B., Tetreault, S., & Le Dorze, G. (2003). The consequences of severe aphasia on the spouses of aphasic people: A description of the adaptation process. Aphasiology, 17, 835–859.
   Web of Science ®Google Scholar
• Miller, A., & Iris, M. (2002). Health promotion attitudes and strategies in older adults. Health Education & Behavior, 29, 249–267.
   PubMed Web of Science ®Google Scholar
• Noblit, G. W., & Hare, R. D. (1988). Meta-ethnography: Synthesizing qualitative studies. Newbury Park, CA: Sage Publications.
   Google Scholar
• Parr, S. (2007). Living with severe aphasia: Tracking social exclusion. Aphasiology, 21, 98–123.
   Web of Science ®Google Scholar
• Parr S., Byng, S., & Gilpin, S. (1997). Talking about aphasia: Living with loss of language after stroke. Buckingham, UK: Open University Press.
   Google Scholar
• Paterson, B., Thorne, S., Canam, C., Jillings, C. (2001). Meta-study of qualitative health research: A practical guide to meta-analysis and meta-synthesis. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Penn, C., & Jones, D. (2000). Functional communication and the workplace: A neglected domain. In L. Worrall, & C. Frattali (Eds.), Neurogenic communication disorders: A functional approach (pp. 103–124). New York: Thieme.
   Google Scholar
• Pope, C., Mays, N., & Popay, J. (2007). Synthesizing qualitative and quantitative health evidence: A guide to methods. New York: Open University Press.
   Google Scholar
• Ross, K. B., & Wertz, R. T. (2002). Relationships between language-based disability and quality of life in chronically aphasic adults. Aphasiology, 16, 791–800.
   Web of Science ®Google Scholar
• Ross, K. B., & Wertz, R. T. (2003). Quality of life with and without aphasia. Aphasiology, 17, 355–364.
   Web of Science ®Google Scholar
• Sandelowski, M. (1995). A theory of transition to parenthood of infertile couples. Research in Nursing and Health, 18, 123–132.
   PubMed Web of Science ®Google Scholar
• Sandelowski, M., & Barroso, J. (2007). Handbook for synthesizing qualitative research. New York: Springer Publishing Company.
   Google Scholar
• Sandelowski, M., Docherty, S., & Emden, C. (1997). Qualitative meta-synthesis: Issues and techniques. Research in Nursing and Health, 20, 365–371.
   PubMed Web of Science ®Google Scholar
• Smith, J. A., & Osborn, M. (2003). Interpretative phenomenological analysis. In J.A. Smith (Ed.), Qualitative psychology: A practical guide to research methods (pp. 51–80). London: Sage Publications.
   Google Scholar
• Smith, J. A., & Osborn, M. (2004). Interpretative phenomenological analysis. In G. Breakwell (Ed.), Doing social psychology research (pp. 229–254). Malden, MA: BPA Blackwell.
   Google Scholar
• Smith, J. A., Jarman, M., & Osborn, M. (1999). Doing interpretative phenomenological analysis. In M. Murray, & K. Chamberlain (Eds.), Qualitative health psychology (pp. 218–240). London: Sage Publications.
   Google Scholar
• Varcoe, C., Rodney, P., & McCormick, J. (2003). Healthcare relationships in context: An analysis of three ethnographies. Qualitative Health Research, 13, 957–973.
   PubMed Web of Science ®Google Scholar
• Williams, S. E. (1993). The impact of aphasia on marital satisfaction. Archives of Physical Medicine and Rehabilitation, 74, 361–367.
   PubMed Web of Science ®Google Scholar
• World Health Organization. (2001). International classification of functioning, disability and health: ICF. Geneva: World Health Organization.
   Google Scholar
• Worrall, L., Brown, K., Cruice, M., Davidson, B., Hersh, D., Howe, T., . (2010). The evidence for a life-coaching approach to aphasia. Aphasiology, 24, 497–514.
   Web of Science ®Google Scholar
• Zemva, N. (1999). Aphasic patients and their families: Wishes and limits. Aphasiology, 13, 219–224.
   Web of Science ®Google Scholar