506
Views
46
CrossRef citations to date
0
Altmetric
CLINICIAL

Depression and wish to die in a multicenter cohort of ALS patients

, , , , , , & show all
Pages 265-273 | Received 08 Jul 2014, Accepted 20 Oct 2014, Published online: 08 Dec 2014

References

  • Stutzki R, Weber M, Reiter-Theil S, Simmen U, Borasio G, Jox R. Attitudes toward hastened death in ALS: a prospective study of patients and family caregivers. Amyotroph Lateral Scler Frontotemporal Dementia. 2013;15:68–76.
  • Maessen M, Veldink J, Onwuteaka-Philipsen B, Hendricks H, Schelhaas H, Grupstra H, et al. Euthanasia and physician-assisted suicide in amyotrophic lateral sclerosis: a prospective study. J Neurol. 2014;261:1894–901.
  • Maessen M, Veldink J, Onwuteaka-Philipsen B, de Vries J, Wokke J, van der Wal G, et al. Trends and determinants of end-of-life practices in ALS in the Netherlands. Neurology. 2009;73:954–61.
  • Rabkin JG, Wagner G, del Bene M. Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosom Med. 2000;62:271–9.
  • McLeod J, Clarke D. A review of psychosocial aspects of motor neuron disease. J Neurological Sciences. 2007; 258:4–10.
  • Huey E, Koppel J, Armstrong N, Grafman J, Floeter K. A pilot study of the prevalence of psychiatric disorders in PLS and ALS. Amyotroph Lateral Scler. 2010;11: 293–7.
  • Kurt A, Nijboer F, Matuz T, Kubler A. Depression and anxiety in individuals with amyotrophic lateral sclerosis: epidemiology and management. CNS Drugs. 2007;21: 279–91.
  • Averill A, Kasarskis E, Segerstrom S. Psychological health in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler. 2007;8:243–54.
  • Lou J, Reeves A, Benice T, Sexton G. Fatigue and depression are associated with poor quality of life in ALS. Neurology. 2003;60:122–3.
  • Gibbons C, Thornton E, Ealing J, Shaw P, Talbot K, Tennart A, et al. The impact of fatigue and psychosocial variables on quality of life for patients with motor neuron disease. Amyotroph Lateral Scler Frontotemporal Dementia. 2013;14:537–45.
  • Ganzini L, Johnston W, McFarland B, Tolle S, Lee M. Attitudes of patients with amyotrophic lateral sclerosis and their caregivers toward assisted suicide. N Engl J Med. 1998; 339:967–73.
  • Rabkin JG, Albert S, del Bene M, O’Sullivan I, Tider T, Rowland L. Prevalence of depressive disorders and change over time in late-stage ALS. Neurology. 2005;65:62–7.
  • Hammer EM, Hacker S, Hautzinger M, Meyer T, Kubler A. Validity of the ALS-Depression Inventory (ADI-12) – a new screening instrument for depressive disorders in patients with amyotrophic lateral sclerosis. J Affec Dis. 2008;109:213–9.
  • McElhiney M, Rabkin J, Gordon P, Goetz R, Mitsumoto H. Prevalence of fatigue and depression in ALS patients and change over time. J Neurol Neurosurg Psychiatry. 2009; 80:1146–9.
  • Albert SM, Rabkin JG, del Bene M, Tider T, O’Sullivan I, Rowland L. Wish to die in end-stage amyotrophic lateral sclerosis. Neurology. 2005;645:68–74.
  • Olney R, Lomen-Hoerth C. Exit strategies in ALS: an influence of depression or despair? Neurology. 2005;65:9–10.
  • World Federation NRGoAS. Revised El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. 2000; www.wfnals.org
  • Mitsumoto H, Factor-Litvak P, Andrews H, Goetz R, Andrews L, Rabkin J.ALS Multi-Center Study of Oxidative Stress (COSMOS): Study methodology, recruitment, and baseline demographic and disease characteristics. Amyotroph Lateral Scler Frontotemporal Degener. 2014;15: 192–203.
  • Spitzer R, Kroenke K, Williams J. Validation and utility of a self-report version of PRIME-MD: The PHQ Primary Care Study. JAMA. 1999;282:1737–44.
  • Diagnostic and Statistical Manual of Mental Disorders, 4th edn. DSM-IV. American Psychiatric Association, Washington D.C., 1994.
  • Diagnostic and Statistical Manual of Mental Disorders, 5th edn. DSM-V. American Psychiatric Publishing, Washington D.C., 2013.
  • Beck AT, Weissman A, Lester D, Trexler L. The measurement of pessimism: The Hopelessness Scale. J Consult Clin Psychol. 1974;42:861–5.
  • Watson D, Clark L, Tellegen A. Development and validation of brief measures of positive and negative affect: The PANAS Scales. J Pers & Soc Psychology. 1988;54:1063–70.
  • Linn MW. A Global Assessment of Recent Stress Scale (GARS). Int J Psychiatry in Medicine. 1986;15:47–59.
  • Endicott J, Nee J, Harrison W, Blumenthal R. Quality of Life Enjoyment and Satisfaction Questionnaire (Q-LES-Q). In: Rush AJ, First M, Blacker D, editors. Handbook of Psychiatric Measures, 2nd edn. Washington DC: American Psychiatric Publishing; 2008. pp 133–4.
  • Manne S, Pape S, Taylor K, Dougherty J. Spouse support, coping and mood among individuals with cancer. Ann Behav Med. 1999;21:111–21.
  • Mojtabai R. Diagnosing depression in older adults in primary care. N Engl J Med. 2014; 370:1180–2.
  • Siegert RJ, Abernethy D. Depression in multiple sclerosis: a review. J Neurol Neurosurg Psychiatry. 2005;76:469–75.
  • Anderson R, Freedland K. The prevalence of comorbid depression in adults with diabetes. Diabetes Care. 2001;24: 1069–78.
  • Lesperance F, Frasure-Smith N, Koszycki D, Laliberte M, van Zyl L, Baker B, et al.Effects of citalopram and interpersonal psychotherapy on depression in patients with coronary artery disease. JAMA. 2007;297:367–9.
  • Lule D, Zickler C, Hacker S, Bruno M, Demertzi A, Pellas F, et al. Life can be worth living in locked-in syndrome. Progress in Brain Research. 2009;177:339–51.
  • Chio A, Logroscino G, Traynor BJ, Collins J, Simone J, Goldstein L, et al. Global epidemiology of amyotrophic lateral sclerosis: a systematic review of the published literature. Neuroepidemiology. 2013;41:118–30.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.