596
Views
17
CrossRef citations to date
0
Altmetric
HEALTH SERVICE

Multidisciplinary ALS clinics in the USA: A comparison of those who attend and those who do not

, , &
Pages 196-201 | Received 02 Sep 2014, Accepted 29 Nov 2014, Published online: 20 Jan 2015

References

  • Simmons Z. Management Strategies for Patients With Amyotrophic Lateral Sclerosis From Diagnosis Through Death. Neurologist. 2005;11:257–70.
  • Rocha JA, Reis C, Simões F, Fonseca J, Mendes Ribeiro J. Diagnostic investigation and multidisciplinary management in motor neuron disease. J Neurol. 2005;252:1435–47.
  • Miller RG, Rosenberg JA, Gelinas DF, Mitsumoto H, Newman D, Sufit R, et al. Practice parameter: the care of the patient with amyotrophic lateral sclerosis (an evidence based review): report of the Quality Standards Subcommittee of the American Academy of Neurology: ALS Practice Parameters Task Force. Neurology. 1999;52:1311–23.
  • Miller RG, Jackson CE, Kasarskis EJ, England JD, Forshew D, Johnston W, et al. Practice Parameter update: the care of the patient with amyotrophic lateral sclerosis. Multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence based review). Neurology. American Academy of Neurology; 2009;73: 1227–33.
  • Traynor BJ, Alexander M, Corr B, Frost E, Hardiman O. Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: a population based study, 1996–2000. J Neurol Neurosurg Psychiatry. 2003;74:1258–61.
  • Chiò A, Bottacchi E, Buffa C, Mutani R, Mora G. Positive effects of tertiary centers for amyotrophic lateral sclerosis on outcome and use of hospital facilities. J Neurol Neurosurg Psychiatry. 2006;77:948–50.
  • van den Berg JP, Kalmijn S, Lindeman E, Veldink JH, de Visser M, van der Graaff MM, et al. Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology. 2005;65:1264–7.
  • Zoccolella S, Beghi E, Palagano G, Fraddosio A, Guerra V, Lepore V, et al. ALS multidisciplinary clinic and survival. Results from a population based study in southern Italy. J Neurol. 2007;254:1107–12.
  • D’Zurilla TJ, Nezu A. Development and preliminary evaluation of the Social Problem-Solving Inventory. Psychol Assess. 1990;2:156–63.
  • Murphy V, Felgoise SH, Walsh SM, Simmons Z. Problem solving skills predict quality of life and psychological morbidity in ALS caregivers. Amyotroph Lateral Scler. 2009; 10:147–53.
  • Simmons Z, Felgoise SH, Bremer B, Walsh SM, Hufford DJ, Bromberg MB, et al. The ALSSQoL: balancing physical and non-physical factors in assessing quality of life in ALS. Neurology. 2006;67:1659–64.
  • Felgoise SH, Rodriquez JL, Bremer BA, Walsh SM, Stephens HE, Horowitz MD, Simmons Z. Validation of the ALS specific quality of life-revised measure (ALSSQoL-R). Amyotroph Lateral Scler. 2008;9:12–3.
  • Cedarbaum JM, Stambler N, Fuller C, Hilt D, Thurmond B, Nakanishi A, et al. The ALSFRS-R : a revised ALS functional rating scale that incorporates assessments of respiratory function. J Neurol Sci 1999;169:13–21.
  • Kaufmann P, Levy G, Montes J, Buchsbaum R, Barsdorf AI, Battista V, et al. Excellent inter-rater, intra-rater, and telephone-administered reliability of the ALSFRS-R in a multicenter clinical trial. Amyotroph Lateral Scler. 2007;8:42–6.
  • D’Zurilla TJ, Nezu AM, Maydeu-Olivares A. Manual for the Social Problem-Solving Inventory- Revised. North Tonawanda, NY: Multi-Health Systems; 2002.
  • Simmons Z, Bremer BA, Robbins RA, Walsh SM, Fischer S. Quality of life in ALS depends on factors other than strength and physical function. Neurology. 2000;55:388–92.
  • Robbins RA, Simmons Z, Bremer BA, Walsh SM, Fischer S. Quality of life in ALS is maintained as physical function declines. Neurology. 2001;56:442–4.
  • Cupp J, Simmons Z, Berg A, Felgoise SH, Walsh SM, Stephens HE. Psychological health in patients with ALS is maintained as physical function declines. Amyotroph Lateral Scler. 2011;12:290–6.
  • Felgoise SH, Stewart JL, Bremer B, Walsh SM, Bromberg MB, Simmons Z. The SEIQoL-DW for assessing quality of life in ALS: strengths and limitations. Amyotroph Lateral Scler. 2009;10:456–62.
  • Tandan R, Boylan K, Levine T, Lomen-Hoerth C, Callas P, Maginnis K, et al. Prospective Study of Cost of Care at Multidisciplinary Centers Adhering to AAN Amyotrophic Lateral Sclerosis (ALS) Practice Parameters (S49.001). Neurology. 2014;82:S49.001.
  • Khokhar B, Patwa H. Multi-disciplinary ALS clinics are cost-effective within the Veterans Health Administration. Neurology. 2012;78:P03.170. doi: 10.1212/WNL.78.1

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.