References
- Phukan J, Elamin M, Bede P, Jordan N, Gallagher L, Byrne S, et al. The syndrome of cognitive impairment in amyotrophic lateral sclerosis: a population-based study. J Neurol Neurosurg Psychiatry. 2012;83:102–8.
- Goldstein LH, Abrahams S. Changes in cognition and behaviour in amyotrophic lateral sclerosis: nature of impairment and implications for assessment. Lancet Neurol. 2013;12:368–80.
- Bak TH. The importance of looking in dark places. Amyotroph Lateral Scler Frontotemporal Degener. 2013;14:1–2.
- Taylor JS, DeMers SM, Vig EK, Borson S. The disappearing subject: exclusion of people with cognitive impairment and dementia from geriatrics research. J Am Geriatr Soc. 2012;60:413–9.
- Roach P, Keady J, Bee P, Hope K. Subjective experiences of younger people with dementia and their families: implications for UK research, policy and practice. Rev Clin Gerontol. 2008;18:165–74.
- Entwistle V, Firnigl D, Ryan M, Francis J, Kinghorn P. Which experiences of health care delivery matter to service users and why? A critical interpretative synthesis and conceptual map. J Health Serv Res Policy. 2012;17:70–8.
- Carter P, Beech R, Coxon D, Thomas MJ, Jinks C. Mobilising the experiential knowledge of clinicians, patients and carers for applied health-care research. Contemporary Soc Sci. 2013;8:307–20.
- Hubbard G, Downs MG, Tester S. Including older people with dementia in research: challenges and strategies. Aging Ment Health. 2003;7:351–62.
- Murphy K, Jordan F, Hunter A, Cooney A, Casey D. Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies. Dementia. 2014, Jan 8, early online.
- Foley G, Timonen V, Hardiman O. Acceptance and decision making in amyotrophic lateral sclerosis from a life-course perspective. Qual Health Res. 2014;24:67–77.