Patient Related Outcome Measures, Volume 10, Issue (2019)

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Patient Related Outcome Measures, Volume 10, Issue (2019)

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Review

Review Article
Impact of belimumab on patient-reported outcomes in systemic lupus erythematosus: review of clinical studies
Elvira Bangert, Laura Wakani, Mehveen Merchant, Vibeke Strand & Zahi Touma
Pages: 1-7
Published online: 09 Jan 2019
AbstractforImpact of belimumab on patient-reported outcomes in systemic lupus erythematosus: review of clinical studies | Full Text | References | PDF (154.5 KB) | EPUB
  • 149 Views
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Review Article
The use of patient-reported outcome research in modern ophthalmology: impact on clinical trials and routine clinical practice
Tasanee Braithwaite, Melanie Calvert, Alastair Gray, Konrad Pesudovs & Alastair K Denniston
Pages: 9-24
Published online: 24 Jan 2019
AbstractforThe use of patient-reported outcome research in modern ophthalmology: impact on clinical trials and routine clinical practice | Full Text | References | PDF (235.5 KB) | EPUB
  • 585 Views
  • 59 CrossRef citations
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Original Research

Article
Psychometric evaluation of the hypoparathyroidism symptom diary
Theresa Coles, Kristina Chen, Lauren Nelson, Nimanee Harris, Montserrat Vera-Llonch, Alan Krasner & Susan Martin
Pages: 25-36
Published online: 29 Jan 2019
AbstractforPsychometric evaluation of the hypoparathyroidism symptom diary | Full Text | References | PDF (184.7 KB) | EPUB
  • 92 Views
  • 14 CrossRef citations
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Open Access

Review

Review Article
Systemic vasculitis and patient-reported outcomes: how the assessment of patient preferences and perspectives could improve outcomes
Joanna C Robson, David Jayne, Peter A Merkel & Jill Dawson
Pages: 37-42
Published online: 08 Feb 2019
AbstractforSystemic vasculitis and patient-reported outcomes: how the assessment of patient preferences and perspectives could improve outcomes | Full Text | References | PDF (142.5 KB) | EPUB
  • 131 Views
  • 7 CrossRef citations
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Open Access
Review Article
Lubiprostone in the treatment of chronic idiopathic constipation: an update on health-related quality of life and patient-reported outcomes
Maham Hayat, Hassaan Zia & Salman Nusrat
Pages: 43-47
Published online: 28 Dec 2022
AbstractforLubiprostone in the treatment of chronic idiopathic constipation: an update on health-related quality of life and patient-reported outcomes | Full Text | References | PDF (151.5 KB) | EPUB
  • 110 Views
  • 3 CrossRef citations
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Open Access

Original Research

Article
Quality of life in elderly Portuguese war veterans with post-traumatic stress symptoms
M Graça Pereira, José C Machado, Marta Pereira, Cristiana Lopes & Susana Pedras
Pages: 49-58
Published online: 27 Feb 2019
AbstractforQuality of life in elderly Portuguese war veterans with post-traumatic stress symptoms | Full Text | References | PDF (323.7 KB) | EPUB
  • 158 Views
  • 5 CrossRef citations
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Open Access
Article
Survey response burden in caregivers of civilians and service members/veterans with traumatic brain injury
Elizabeth A Hahn, Phillip A Ianni, Robin A Hanks, Jennifer A Miner, Jenna Freedman & Noelle E Carlozzi
Pages: 59-66
Published online: 27 Feb 2019
AbstractforSurvey response burden in caregivers of civilians and service members/veterans with traumatic brain injury | Full Text | References | PDF (592.1 KB) | EPUB
  • 92 Views
  • 2 CrossRef citations
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Open Access
Article
Development of Military Concussion Readiness Inventory for Dizziness and Balance
Michelle L Gutierrez, Jennifer B Christy & Susan L Whitney
Pages: 67-80
Published online: 28 Dec 2022
AbstractforDevelopment of Military Concussion Readiness Inventory for Dizziness and Balance | Full Text | References | PDF (736.3 KB) | EPUB
  • 95 Views
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Editorial

Editorial
Introducing the first articles of the veterans and military patient-related health outcomes thematic series
Liana Des Harnais Castel
Pages: 81-82
Published online: 27 Feb 2019
CitationforIntroducing the first articles of the veterans and military patient-related health outcomes thematic series | Full Text | References | PDF (134.8 KB) | EPUB
  • 61 Views
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Open Access

Short Report

Brief Report
Measurement properties of the Fear-Avoidance Belief Questionnaire for physical activity in patients with shoulder impingement syndrome
Nûno Trolle & David H Christiansen
Pages: 83-87
Published online: 19 Mar 2019
AbstractforMeasurement properties of the Fear-Avoidance Belief Questionnaire for physical activity in patients with shoulder impingement syndrome | Full Text | References | PDF (527.5 KB) | EPUB
  • 175 Views
  • 5 CrossRef citations
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Original Research

Article
Risk factors for poor health-related quality of life in cancer survivors with multiple chronic conditions: exploring the role of treatment burden as a mediator
David T Eton, Roger T Anderson, Wendy F Cohn, Erin M Kennedy, Jennifer L St. Sauver, Bayly J Bucknell & Kathryn J Ruddy
Pages: 89-99
Published online: 28 Dec 2022
AbstractforRisk factors for poor health-related quality of life in cancer survivors with multiple chronic conditions: exploring the role of treatment burden as a mediator | Full Text | References | PDF (236 KB) | EPUB
  • 253 Views
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Open Access

Review

Review Article
Patient-reported outcomes of ocriplasmin for the treatment of vitreomacular traction: a systematic review and synthesis of the literature
Benedicte Lescrauwaet, Koenraad Blot & Timothy L Jackson
Pages: 101-116
Published online: 27 Mar 2019
AbstractforPatient-reported outcomes of ocriplasmin for the treatment of vitreomacular traction: a systematic review and synthesis of the literature | Full Text | References | PDF (603.3 KB) | EPUB
  • 95 Views
  • 1 CrossRef citations
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Open Access
Review Article
Are patient-reported outcomes useful in post-treatment follow-up care for women with early breast cancer? A scoping review
Cathrine Lundgaard Riis, Troels Bechmann, Pernille Tine Jensen, Angela Coulter & Karina Dahl Steffensen
Pages: 117-127
Published online: 27 Mar 2019
AbstractforAre patient-reported outcomes useful in post-treatment follow-up care for women with early breast cancer? A scoping review | Full Text | References | PDF (232.9 KB) | EPUB
  • 174 Views
  • 13 CrossRef citations
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Open Access
Review Article
Analytical approaches and estimands to take account of missing patient-reported data in longitudinal studies
Melanie L Bell, Lysbeth Floden, Brooke A Rabe, Stacie Hudgens, Haryana M Dhillon, Victoria J Bray & Janette L Vardy
Pages: 129-140
Published online: 16 Apr 2019
AbstractforAnalytical approaches and estimands to take account of missing patient-reported data in longitudinal studies | Full Text | References | PDF (264.6 KB) | EPUB
  • 269 Views
  • 9 CrossRef citations
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Open Access

Original Research

Article
Validation study of the Parkinson’s Fatigue Scale in advanced Parkinson’s disease
Pablo Martinez-Martin, John B Wetmore, José Matías Arbelo, María José Catalán, Francesc Valldeoriola & Carmen Rodriguez-Blazquez
Pages: 141-152
Published online: 17 Nov 2022
AbstractforValidation study of the Parkinson’s Fatigue Scale in advanced Parkinson’s disease | Full Text | References | PDF (270.2 KB) | EPUB
  • 190 Views
  • 5 CrossRef citations
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Open Access

Short Report

Measuring improvement in health-status with the Oxford Participation and Activities Questionnaire (Ox-PAQ)
David Morley, Sarah Dummett, Laura Kelly & Crispin Jenkinson
Pages: 153-156
Published online: 17 May 2019
AbstractforMeasuring improvement in health-status with the Oxford Participation and Activities Questionnaire (Ox-PAQ) | Full Text | References | PDF (187.7 KB) | EPUB
  • 101 Views
  • 5 CrossRef citations
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Open Access

Review

Article
Patient experiences: a systematic review of quality improvement interventions in a hospital setting
Carla M Bastemeijer, Hileen Boosman, Hans van Ewijk, Lisanne M Verweij, Lennard Voogt & Jan A Hazelzet
Pages: 157-169
Published online: 21 May 2019
AbstractforPatient experiences: a systematic review of quality improvement interventions in a hospital setting | Full Text | References | PDF (409.4 KB) | EPUB
  • 1673 Views
  • 24 CrossRef citations
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Open Access
Review Article
Truthfulness in patient-reported outcomes: factors affecting patients’ responses and impact on data quality
Eric M Chang, Erin F Gillespie & Narek Shaverdian
Pages: 171-186
Published online: 11 Jun 2019
AbstractforTruthfulness in patient-reported outcomes: factors affecting patients’ responses and impact on data quality | Full Text | References | PDF (1.3 MB) | EPUB
  • 731 Views
  • 42 CrossRef citations
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Open Access

Original Research

Article
Development and validation of a patient-centered outcome measure for young adults with pediatric hip conditions: the “Quality of Life, Concerns and Impact Measure”
Tina Gambling & Andrew F Long
Pages: 187-204
Published online: 28 Jun 2019
AbstractforDevelopment and validation of a patient-centered outcome measure for young adults with pediatric hip conditions: the “Quality of Life, Concerns and Impact Measure” | Full Text | References | PDF (672.3 KB) | EPUB
  • 116 Views
  • 4 CrossRef citations
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Open Access

Review

Article
Reporter’s occupation and source of adverse device event reports contained in the FDA’s MAUDE database
Kevin T Kavanagh, Raeford E Brown Jr, Steve S Kraman, Lindsay E Calderon & Sean P Kavanagh
Pages: 205-208
Published online: 02 Jul 2019
AbstractforReporter’s occupation and source of adverse device event reports contained in the FDA’s MAUDE database | Full Text | References | PDF (186.5 KB) | EPUB
  • 81 Views
  • 10 CrossRef citations
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Open Access

Original Research

Article
Duration of military service is associated with decision quality in Veterans considering total knee replacement: case series
Matthew J Sabatino, Clifford A Reilly, Samuel T Kunkel, Alexander J Titus, Dipak B Ramkumar, Philip P Goodney, Said A Ibrahim, Jonathan D Lurie & Eric R Henderson
Pages: 209-215
Published online: 05 Jul 2019
AbstractforDuration of military service is associated with decision quality in Veterans considering total knee replacement: case series | Full Text | References | PDF (767.4 KB) | EPUB
  • 98 Views
  • 3 CrossRef citations
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Open Access
Article
Improving the response rate of patient-reported outcome measures in an Australian tertiary metropolitan hospital
Andy Ho, Christa Purdie, Oren Tirosh & Phong Tran
Pages: 217-226
Published online: 17 Nov 2022
AbstractforImproving the response rate of patient-reported outcome measures in an Australian tertiary metropolitan hospital | Full Text | References | PDF (339.2 KB) | EPUB
  • 234 Views
  • 20 CrossRef citations
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Open Access
Article
The Oxford Participation and Activities Questionnaire (Ox-PAQ): development of a short form and index measure
Crispin Jenkinson, Laura Kelly, Sarah Dummett & David Morley
Pages: 227-232
Published online: 29 Jul 2019
AbstractforThe Oxford Participation and Activities Questionnaire (Ox-PAQ): development of a short form and index measure | Full Text | References | PDF (225.2 KB) | EPUB
  • 121 Views
  • 4 CrossRef citations
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Open Access

Review

Article
PROMs data: can it be used to make decisions for individual patients? A narrative review
Jonathan Field, Michelle M Holmes & Dave Newell
Pages: 233-241
Published online: 29 Jul 2019
AbstractforPROMs data: can it be used to make decisions for individual patients? A narrative review | Full Text | References | PDF (296 KB) | EPUB
  • 766 Views
  • 68 CrossRef citations
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Open Access

Original Research

Article
Hemophilia and sexual health: results from the HERO and B-HERO-S studies
Greig Blamey, Cathy Buranahirun, Andrea Buzzi, David L Cooper, Susan Cutter, Sue Geraghty, Hossam Saad & Renchi Yang
Pages: 243-255
Published online: 17 Nov 2022
AbstractforHemophilia and sexual health: results from the HERO and B-HERO-S studies | Full Text | References | PDF (1.6 MB) | EPUB
  • 195 Views
  • 8 CrossRef citations
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Open Access
Article
Mild-severe hemophilia B impacts relationships of US adults and children with hemophilia B and their families: results from the B-HERO-S study
Susan Cutter, Christine Guelcher, Susan Hunter, Dawn Rotellini, Spencer Dunn & David L Cooper
Pages: 257-266
Published online: 16 Aug 2019
AbstractforMild-severe hemophilia B impacts relationships of US adults and children with hemophilia B and their families: results from the B-HERO-S study | Full Text | References | PDF (1 MB) | EPUB
  • 150 Views
  • 4 CrossRef citations
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Open Access

Review

Article
Moving from clinician-defined to patient-reported outcome measures for survivors of high-grade glioma
Lena Rosenlund, Eskil Degsell & Asgeir Store Jakola
Pages: 267-276
Published online: 23 Aug 2019
AbstractforMoving from clinician-defined to patient-reported outcome measures for survivors of high-grade glioma | Full Text | References | PDF (323.9 KB) | EPUB
  • 116 Views
  • 4 CrossRef citations
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Open Access

Original Research

Article
Optimistic bias: the more you do, the better you think it goes. Survey analysis of reverse shoulder arthroplasty
Carlos Torrens, Joan Miquel & Fernando Santana
Pages: 277-282
Published online: 17 Nov 2022
AbstractforOptimistic bias: the more you do, the better you think it goes. Survey analysis of reverse shoulder arthroplasty | Full Text | References | PDF (267.6 KB) | EPUB
  • 83 Views
  • 1 CrossRef citations
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Open Access
Article
Exploring how to evaluate a qualitative patient-centered outcome measure: literature review and illustrative example – a Perthes child-friendly measure
Andrew F Long & Tina Gambling
Pages: 283-298
Published online: 29 Aug 2019
AbstractforExploring how to evaluate a qualitative patient-centered outcome measure: literature review and illustrative example – a Perthes child-friendly measure | Full Text | References | PDF (1.7 MB) | EPUB
  • 130 Views
  • 0 CrossRef citations
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Open Access
Article
Correlations between patient-reported outcomes and self-reported characteristics in adults with hemophilia B and caregivers of children with hemophilia B: analysis of the B-HERO-S study
Tyler W Buckner, Robert Sidonio Jr, Michelle Witkop, Christine Guelcher, Susan Cutter, Neeraj N Iyer & David L Cooper
Pages: 299-314
Published online: 17 Nov 2022
AbstractforCorrelations between patient-reported outcomes and self-reported characteristics in adults with hemophilia B and caregivers of children with hemophilia B: analysis of the B-HERO-S study | Full Text | References | PDF (516.4 KB) | EPUB
  • 127 Views
  • 2 CrossRef citations
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Open Access
Article
Training Subjects On Key Concepts From Patient-Reported Outcomes (PROs) Improves Understanding And Data Accuracy
Nadeeka R Dias, Amanda R Howley, Rinah Yamamoto & Susan M Dallabrida
Pages: 315-319
Published online: 21 Oct 2019
AbstractforTraining Subjects On Key Concepts From Patient-Reported Outcomes (PROs) Improves Understanding And Data Accuracy | Full Text | References | PDF (463.5 KB) | EPUB
  • 86 Views
  • 0 CrossRef citations
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Open Access

Review

Review Article
Effects of Parkinson’s on employment, cost of care, and quality of life of people with condition and family caregivers in the UK: a systematic literature review
Anil Gumber, Bhanu Ramaswamy & Oranuch Thongchundee
Pages: 321-333
Published online: 17 Nov 2022
AbstractforEffects of Parkinson’s on employment, cost of care, and quality of life of people with condition and family caregivers in the UK: a systematic literature review | Full Text | References | PDF (386.6 KB) | EPUB
  • 310 Views
  • 7 CrossRef citations
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Open Access

Original Research

Article
A Patient-Reported Outcomes Analysis Of Lanreotide In The Treatment Of NETs Patients With Carcinoid Syndrome: Evidence From The ELECT Trial
Koenraad Blot, Luc Duchateau, Benedicte Lescrauwaet, Nilani Liyanage, David Ray, Beloo Mirakhur & Aaron I Vinik
Pages: 335-343
Published online: 29 Oct 2019
AbstractforA Patient-Reported Outcomes Analysis Of Lanreotide In The Treatment Of NETs Patients With Carcinoid Syndrome: Evidence From The ELECT Trial | Full Text | References | PDF (1.6 MB) | EPUB
  • 93 Views
  • 1 CrossRef citations
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Open Access

Corrigendum

Correction
Training Subjects On Key Concepts From Patient-Reported Outcomes (PROs) Improves Understanding And Data Accuracy [Corrigendum]
Page: 345
Published online: 15 Nov 2019
CitationforTraining Subjects On Key Concepts From Patient-Reported Outcomes (PROs) Improves Understanding And Data Accuracy [Corrigendum] | Full Text | PDF (420.5 KB) | EPUB
  • 62 Views
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Open Access

Original Research

Article
Satisfaction of Outpatient Service Consumers and Associated Factors Towards the Health Service Given at Jimma Medical Center, South West Ethiopia
Bikila Dereje Fufa & Enkutatash Befikadu Negao
Pages: 347-354
Published online: 17 Nov 2022
AbstractforSatisfaction of Outpatient Service Consumers and Associated Factors Towards the Health Service Given at Jimma Medical Center, South West Ethiopia | Full Text | References | PDF (281.8 KB) | EPUB
  • 833 Views
  • 7 CrossRef citations
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Open Access
Article
Developing a Preliminary Conceptual Framework for Guidelines on Inclusion of Patient Reported-Outcome Measures (PROMs) in Clinical Quality Registries
Rasa Ruseckaite, Ashika D Maharaj, Karolina Krysinska, Joanne Dean & Susannah Ahern
Pages: 355-372
Published online: 17 Nov 2022
AbstractforDeveloping a Preliminary Conceptual Framework for Guidelines on Inclusion of Patient Reported-Outcome Measures (PROMs) in Clinical Quality Registries | Full Text | References | PDF (504.8 KB) | EPUB
  • 355 Views
  • 11 CrossRef citations
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Open Access

Review

Review Article
Dimethyl Fumarate in the Treatment of Relapsing-Remitting Multiple Sclerosis: Patient Reported Outcomes and Perspectives
Osman Ozel, Caila B Vaughn, Svetlana P Eckert, Dejan Jakimovski, Alexis A Lizarraga & Bianca Weinstock-Guttman
Pages: 373-384
Published online: 17 Nov 2022
AbstractforDimethyl Fumarate in the Treatment of Relapsing-Remitting Multiple Sclerosis: Patient Reported Outcomes and Perspectives | Full Text | References | PDF (644.2 KB) | EPUB
  • 160 Views
  • 4 CrossRef citations
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Open Access
Review Article
The Use of Measurement Systems to Support Patient Self-Management of Long-Term Conditions: An Overview of Opportunities and Challenges
Michelle M Holmes, Sabina Stanescu & Felicity L Bishop
Pages: 385-394
Published online: 17 Nov 2022
AbstractforThe Use of Measurement Systems to Support Patient Self-Management of Long-Term Conditions: An Overview of Opportunities and Challenges | Full Text | References | PDF (419.2 KB) | EPUB
  • 394 Views
  • 11 CrossRef citations
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Open Access

Original Research

Article
Knowledge and Attitudes of Ethiopian Nursing Staff Regarding Post-Operative Pain Management: A Cross-Sectional Multicenter Study
Mengesha Dessie, Agmuas Asichale, Tadesse Belayneh, Henos Enyew & Amare Hailekiros
Pages: 395-403
Published online: 23 Dec 2019
AbstractforKnowledge and Attitudes of Ethiopian Nursing Staff Regarding Post-Operative Pain Management: A Cross-Sectional Multicenter Study | Full Text | References | PDF (271.5 KB) | EPUB
  • 1282 Views
  • 10 CrossRef citations
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Open Access
Article
The Adolescent Patient Experiences of Diabetes Care Questionnaire (APEQ-DC): Reliability and Validity in a Study Based on Data from the Norwegian Childhood Diabetes Registry
Hilde Hestad Iversen, Oyvind Bjertnaes, Ylva Helland & Torild Skrivarhaug
Pages: 405-416
Published online: 27 Dec 2019
AbstractforThe Adolescent Patient Experiences of Diabetes Care Questionnaire (APEQ-DC): Reliability and Validity in a Study Based on Data from the Norwegian Childhood Diabetes Registry | Full Text | References | PDF (448.7 KB) | EPUB
  • 141 Views
  • 3 CrossRef citations
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Open Access

Review

Review Article
Rehabilitation to Improve the Function and Quality of Life of Soft Tissue and Bony Sarcoma Patients
Cody C Andrews, Geoffrey Siegel & Sean Smith
Pages: 417-425
Published online: 03 Jan 2020
AbstractforRehabilitation to Improve the Function and Quality of Life of Soft Tissue and Bony Sarcoma Patients | Full Text | References | PDF (333.3 KB) | EPUB
  • 385 Views
  • 7 CrossRef citations
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Open Access

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