AJOB Empirical Bioethics, Volume 9, Issue 4 (2018)

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AJOB Empirical Bioethics, Volume 9, Issue 4 (2018)

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Articles

Article
Genes wide open: Data sharing and the social gradient of genomic privacy
Tobias Haeusermann, Marta Fadda, Alessandro Blasimme, Bastian Greshake Tzovaras & Effy Vayena
Pages: 207-221
Published online: 31 Dec 2018
AbstractforGenes wide open: Data sharing and the social gradient of genomic privacy | Full Text | References | PDF (1.7 MB)
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Open Access
Article
A content analysis of the views of genetics professionals on race, ancestry, and genetics
Sarah C. Nelson, Joon-Ho Yu, Jennifer K. Wagner, Tanya M. Harrell, Charmaine D. Royal & Michael J. Bamshad
Pages: 222-234
Published online: 04 Jan 2019
AbstractforA content analysis of the views of genetics professionals on race, ancestry, and genetics | Full Text | References | PDF (1.2 MB) | Supplemental
  • 776 Views
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Article
“I want us to be a normal family”: Toward an understanding of the functions of anonymity among U.S. oocyte donors and recipients
Inmaculada de Melo-Martín, Lisa R. Rubin & Ina N. Cholst
Pages: 235-251
Published online: 06 Nov 2018
Abstractfor“I want us to be a normal family”: Toward an understanding of the functions of anonymity among U.S. oocyte donors and recipients | Full Text | References | PDF (1.3 MB)
  • 273 Views
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Article
Comparison of philosophical concerns between professionals and the public regarding two psychiatric treatments
Laura Yenisa Cabrera, Marisa Brandt, Rachel McKenzie & Robyn Bluhm
Pages: 252-266
Published online: 06 Nov 2018
AbstractforComparison of philosophical concerns between professionals and the public regarding two psychiatric treatments | Full Text | References | PDF (1.4 MB) | Supplemental
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Review

Review
Ethical understandings of proxy decision making for research involving adults lacking capacity: A systematic review (framework synthesis) of empirical research
Victoria Shepherd, Kerenza Hood, Mark Sheehan, Richard Griffith, Amber Jordan & Fiona Wood
Pages: 267-286
Published online: 15 Oct 2018
AbstractforEthical understandings of proxy decision making for research involving adults lacking capacity: A systematic review (framework synthesis) of empirical research | Full Text | References | PDF (1.7 MB)
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