Living with a developmentally disabled child: attitude of family members in India

Abstract

This study sought to create an in-depth understanding of the experiences of living with a family member suffering from developmental disabilities from the social as well as personal point of view through qualitative research. The study used phenomenological methodology. Sixteen participants were recruited through purposive and snowball method. Data were collected via an open-ended narrative inviting the informants to focus on the experiences of living with a family member suffering from the disorder and analyzed thematically. The issue of personal context emerged as a key theme in understanding perceptions of the respondents. Another important theme was that from the social context. This study explores the emotional sufferings faced by family members of the sufferer. It also provides insights into the Indian social culture and its impact on the family.

Keywords:

• Developmental disabilities
• Family
• Society
• Abnormal