Family Caregivers of Cancer Patients: Perceived Burden and Symptoms During the Early Phases of Cancer Treatment

Una StenbergCenter for Shared Decision Making and Collaborative Care Research, and Section for Social Medicine, Department of Clinical Service, Division of Cancer Medicine, Surgery and Transplantation, Oslo University Hospital, Oslo, NorwayCorrespondence[email protected]

, MSW, PhD,

Milada CvancarovaCenter for Shared Decision Making and Collaborative Care Research, Oslo University Hospital, Oslo, Norway

, PhD,

Mirjam EkstedtCenter for Shared Decision Making and Collaborative Care Research, Oslo University Hospital, Oslo, Norway;Royal Institute of Technology, KTH, School of Technology and Health, Stockholm, Sweden

, RN, PhD,

Mariann OlssonDivision of Social Work, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet and Stockholms Sjukhem, Stockholm, Sweden

, MSW, PhD &

Cornelia RulandDepartment for Medicine, University of Oslo, Oslo, Norway;Center for Shared Decision Making and Collaborative Care Research, Oslo University Hospital, Oslo, Norway

, RN, PhD

Abstract

This study investigated levels of symptoms, caregiver burden, and changes over time in 278 family caregivers (FC) of cancer patients. FCs experienced high levels of depressive symptoms and sleep disturbance, low levels of fatigue, and low to moderate levels of caregiver burden, yet these symptoms remained relatively stable over time. Being female and not being employed were factors associated with an increased risk of symptoms and caregiver burden. The understanding evolving from this study can enhance social- and health care professionals’ awareness of FCs’ challenging situation and the potential impact this has on the FCs’ ability to provide care to the patient.

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Family Caregivers of Cancer Patients: Perceived Burden and Symptoms During the Early Phases of Cancer Treatment

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Family Caregivers of Cancer Patients: Perceived Burden and Symptoms During the Early Phases of Cancer Treatment

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