“I Paused My Life”: Experiences of Single Mothers Caring for Their Autistic Children in Ghana

Abstract

Care provision by single mothers to autism children in traditional communities in Ghana is widespread. As care for children is generally a challenging task, single mothers with autistic children face a double challenge because they have to give extra care and attention solely. Consequently, this study explores the experiences of single mothers caring for children with Autism Spectrum Disorder (ASD) to help pinpoint prevailing setbacks to draw practice implications. Evidence was collected through semi-structured qualitative interviews with 15 single mothers in Kumasi, Ghana. Narratives were analyzed thematically following the reflective thematic analysis procedures. The study identified stigmatization and rejection, financial strains and stagnation of social life as predisposing challenges experienced by single mothers of autistic children. The study suggests the need to sensitize people not to reject families with the condition as it is medical and not superstitious. The study also stresses the need for state interventions including enrolling poor mothers with autistic children into state programs like the Livelihood Empowerment against Poverty Program (LEAP). The study suggests that further research is needed to solicit the views of the extended family members of women parenting autistic children on the best ways to overcome the challenges identified in this article.

Keywords:

• Autism
• children
• single mothers
• care giving
• welfare
• autism spectrum disorder
• Ghana