Guardianship Knowledge Amongst Caregivers: A Qualitative Study

Abstract

Using a qualitative phenomenological approach, this study examined how advocates for individuals with intellectual and developmental disabilities in New York State came to their decision on guardianship (n = 11). This included what motivated them to make their decision, what led to choose guardianship or an alternative, who provided guidance toward their supportive role, as well as determining the advocates’ level of knowledge on the subject. Through a thorough examination of the interviews with the participants, the research below shows a lack of knowledge amongst advocates for this population both surrounding guardianship and its alternatives. While the study focused on New York State due to the variability of guardianship law, the results below have the ability for far reaching impact for this population. Future research should include contrasting access to resources on this subject based on socioeconomic backgrounds and a deeper exploration of this same subject in a quantitative manner to widen the scope.

Keywords:

• Guardianship
• access to information
• advocacy
• policy
• practice