The Influence of Service Factors on Spousal Caregivers' Perceptions of Community Services

Abstract

The literature clearly denotes that spouses differ from other family members in their reactions to caregiving, their patterns of service use and their assessment of specific services. Yet, despite their prevalence as caregivers, little is known about their unique perceptions of community services and the factors that impact their experiences with the service system. The purpose of this study was to explore the relative influence of (a) spouses' personal factors (e.g., gender, family support) and (b) service factors (e.g., one-on-one professional support), on spousal caregivers' perceptions of community services. The study employed a survey design with a sample of 73 spousal caregivers caring for their partners with dementia at home.

This study found that spousal caregivers have more negative perceptions of the service system when their in-home workers are not informed about their spouses' likes, dislikes and routines. This service factor was the most significant predictor of caregivers' service perceptions. The study further found that most spousal caregivers receive fewer than five consultations from a non-medical professional over a one year period. While spouses longed for more professional support, this service factor was not uniquely associated with service related stress. The policy and practice implications of these findings are discussed.

KEYWORDS:

• Spousal caregivers
• community services
• dementia care
• home care
• caregiver stress
• respite care
• in–home services

I acknowledge the funding provided by the Nathan Markus Fellowship in Gerontological Social Work. I also thank Dr. Cheryl Regehr, Doctoral Supervisor and Drs. Sheila Neysmith and David Streiner, for their contributions to the doctoral dissertation that informed this article.