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ABSTRACT
Background
Most aphasia research is published in international, peer-reviewed journals in a format that is inaccessible for people with aphasia (PWA). Video presents an ideal format for disseminating information to PWA in an accessible digital format. No research has explored the preferred format for aphasia research videos from the perspectives of PWA.
Aims
To explore the format preferences of PWA for aphasia-accessible research videos.
Methods and procedures
The study involved three stages; all used a semi-structured focus group design. Stage 1 (n = 16 PWA) developed the topic guide. PWA shared opinions about which questions they considered important for Stage 2 interview questions. Stage 2 gathered the votes of PWA (n=40) using these questions. Stage 3 (n = 6 PWA) reviewed the voting results of Stage 2 and collected opinions from PWA about an example video that adhered to the identified preferences. Data analysis for all stages used descriptive statistics (e.g., counts) and qualitative content analysis.
Outcomes and results
We identified 11 consumer-informed preferences for aphasia-accessible research videos: 1-Speak with normal rate; 2-Tailor video duration to content: 5-10 minutes was most acceptable; 3-Include researcher photos; 4-Use written keywords; 5-Use a mix of images; 6-Include a PWA; 7-No preference for deciding topic; 8-Avoid background music; 9-Provide a summary at the end; 10-Translate into other languages; and 11-Link to resources.
Conclusion
These preferences should guide the development of aphasia-accessible research videos, assisting researchers to bridge the evidence-knowledge gap in the aphasia community. Further research is required, including with non-English participants and family members of PWA.
Acknowledgements
We would like to thank the PWA who gave their valuable time to share their perspectives. We are grateful for the support of Prof Cathy Price (University College London, Great Britain) and Dr Helen Kelly (University College Cork, Ireland) in recruiting participants for the online focus groups in Stage 2. Special thanks go to the members of Aphasia Recovery Connection. We acknowledge the support of the Collaboration of Aphasia Trialists which is funded by COST and the Tavistock Trust for Aphasia in fostering international aphasia research collaboration. Sarah J. Wallace is supported by a National Health and Medical Research Council (NHMRC) Investigator Grant (1175821).
Data availability
The focus group guide is available from (https://osf.io/fmg7q/, Centre for Open Science). The data collected from participants is not available for sharing publicly due to ethical restrictions.
Disclosure statement
The authors report there are no competing interests to declare.