The experiences of parenting a child with an acquired brain injury: A meta-synthesis of the qualitative literature

ABSTRACT

Objective. To systematically review and then synthesize the qualitative literature on the experience of parenting a child with an acquired brain injury (ABI).

Design. Systematic literature review and meta-synthesis

Methods. A systematic search of the literature was conducted in four databases. Papers which met the inclusion criterion were assessed for quality using the Critical Skills Appraisal Programme (CASP) tool and then synthesized according to Noblit and Hare’s (1988) guidelines for meta-ethnography.

Results. Of the 4855 papers retrieved, 17 met the inclusion criteria. Synthesis resulted in three themes: (1) Disconnection: Cut off from internal emotions and isolated from others; (2) Seeking understanding and support to manage in an insecure world; and (3) New parent to a different child.

Conclusions. Having a child with an ABI leads to many challenges for parents. These include feeling insecure, isolated from others and struggling to adapt to the different roles required to parent their different child. Clinical implications highlight the need for specialist support that is ongoing after discharge, including specialist knowledge and understanding of ABI and opportunities for peer support.

Acknowledgments

Many thanks to Jenny Brine and Tanya Williamson, Specialist Librarians, Lancaster University for their help with the literature searches. Thank you also to Charlotte Ingham for her advice and support.

Declaration of Interest

The authors report no conflicts of interest.

Notes

1. One paper included two grandparents [32]