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Research Article

Social support during youth concussion recovery

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Pages 784-792 | Received 21 Nov 2019, Accepted 05 Apr 2020, Published online: 21 Apr 2020
 

ABSTRACT

Purpose

We explored the lived experience of high-school aged girls receiving social support during concussion recovery to better understand (1) how they define meaningful social support and barriers/facilitators to receiving it; (2) who provides that support; and (3) the role of peers.

Methods

In person, semi-structured interviews were conducted with 10 girls (aged 14–19 years) with a personal history of concussion.

Results

Close friends, youth with personal history of concussion, and parents were identified as key providers of meaningful social support during concussion recovery. Participants identified specific examples of support provided by each group. Close friends built a sense of social inclusion that mitigated feelings of social isolation. Youth with a personal history of concussion used their lived experiences to communicate empathy and validate the participant’s challenges. Parents assisted with practical challenges (e.g. accessing accommodations) by leveraging their “adult power”.

Participants identified that lack of understanding of their lived experiences was a key barrier to receiving support. They proposed solutions focused on education initiatives highlighting personal accounts from youth with concussion, and specific examples of how peers can help.

Conclusions

Fostering social support may require strategies tailored to each group of key providers as they mitigate different challenges in recovery.

Acknowledgments

We would like to acknowledge the youth participants, the Youth Concussion Awareness Network (You-CAN) team, the Ward Family and the Concussion Centre team (Bloorview Research Institute) specifically Rosephine Del Fernandes and Katie Mah.

Declaration of interest statement

The authors report no conflict of interest.

Additional information

Funding

This work was supported by the Canadian Institutes of Health Research under grant #153025 and the Ward Family.