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REVIEW ARTICLE

Ethical Issues in Adolescent and Parent Informed Consent for Pediatric Asthma Research Participation

, Ph.D., , Ph.D. & , Ph.D.
Pages 489-496 | Published online: 02 Jul 2009
 

Abstract

This article reviews the empirical literature related to knowledge, competence, volition, and financial compensation in the biomedical research decision-making of children, adolescents, and parents. Research findings indicate there are differences in adolescent and parent understanding and appreciation of research risks and procedures, that opinions about decision-making authority and physician influence for research participation are different in adolescents and parents, and that financial compensation can be a salient factor in the research-related decision-making process. Pediatric asthma researchers can consider these psychological factors involved in adolescent and parent research participation decision-making processes to develop effective informed consent procedures.

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