Psychometric evaluation of the Swedish translation of the revised Cystic Fibrosis Questionnaire in adults

Abstract

Aim: The CFQ-R is one of the most established disease-specific, health-related quality of life (HRQOL) measurements for patients with cystic fibrosis (CF). The aim was to evaluate the psychometric properties of the Swedish translation of CFQ-R in adults.

Method: A total of 173 CF patients answered the CFQ-R. The CFQ-R was evaluated with regard to: (1) distributional properties; (2) reliability; and (3) construct validity.

Results: The majority of scales were negatively skewed with ceiling effects. Eight of the 12 scales had satisfactory homogeneity; 10 of the 12 scales had satisfactory test–retest reliability. On many of the CFQ-R scales expected differences were observed when patients were divided regarding disease severity, nutritional status, age, and gender.

Conclusion: Some weaknesses were detected, but overall the instrument has satisfactory psychometric properties.

Keywords:

• Adults
• cystic fibrosis
• CFQ-R
• health-related quality of life
• psychometrics

Acknowledgements

Jacek Hochwälder was responsible for drafting the manuscript and the statistical analyses. Agneta Bergsten Brucefors and Lena Hjelte were responsible for study design, data collection, and critical revision of the manuscript.

We are grateful to Stephen Wicks for revising the Englis,h.

Disclosure statement

The authors report no conflicts of interest.