Caring for the Dying Child

SUMMARY

In this paper we discuss the nutritional needs of terminally ill children. We delineate the physical, psychological, and developmental characteristics of children that differentiate them from adults vis a vis the nutritional aspects of their care. We highlight the special role of parents and suggest guidelines for dealing with the common nutritional needs of the dying child. We discuss ethical issues emphasizing the Baby Doe regulations, decision making for minors, and the benefits and burdens associated with permanently unconscious children.

Additional information

Notes on contributors

Janice Miller-Thiel

Janice Miller-Thiel, RN, is Assistant Director of Children’s Hospice Services at the Children’s Hospital of the Children’s National Medical Center. Jacqueline J. Glover, PhD, is Director of the Program in Bioethics with Health Care Sciences at The George Washington University, and Philosopher in Residence at Children’s National Medical Center. Ev Beliveau, RD, LD, is Senior Pediatric Clinical Dietitian at the Children’s Hospital of the Children’s National Medical Center.