Abstract
Background. In this article, we describe the quality of life and central information and support needs of people with thyroid cancer. We also describes patients' preferences for services to address their needs. This report may help patients to anticipate how thyroid cancer will affect them and inform physicians on useful ways to help address their patients' needs. Methods. We collected data through a survey (n = 62) of people who had been treated for thyroid cancer. Results. Most respondents indicated that quality of life was quite good, and most of their information needs were adequately addressed during routine care. However, respondents also indicated a desire for ongoing access to information, including information about lifestyle factors that might affect risk of recurrence, signs and symptoms of recurrence, and recent developments in thyroid cancer diagnostics and treatments. They also reported some unmet social and emotional support needs. Respondents reported a strong preference for gaining access to information through convenient resources such as the Internet. Conclusions. Patient care following thyroid cancer treatment could be improved by providing ongoing education about lifestyle factors related to cancer risk, disease surveillance, and resources for treating and coping with cancer. Health care providers should become familiar with local and Internet-based sources of information and support related to thyroid cancer to improve patient access to this information. J Cancer Educ. 2008; 23:186-191.
ACKNOWLEDGEMENTS
The authors are grateful to the Thyroid, Head and Neck Cancer Foundation for generously supporting this research. The authors thank Evelyn Rossetti and Tommy Schoffler for facilitating the research. The authors also thank the many individuals who shared their thyroid cancer experiences with us and made this research possible.