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Original Articles

Collecting cancer registry data with a cancer patient questionnaireFootnote*

, , , , &
Pages 233-238 | Published online: 01 Oct 2009
 

Abstract

Tumor registries provide a valuable source of treatment, survival, and epidemiologic data but have been faulted for incomplete and insufficient collection of data. An eight page, 38‐item Cancer Patient Questionnaire (CPQ) was developed to collect more extensive information for the tumor registry. The CPQ identified significantly more patients with a family history of cancer than had previously been detected by chart review by the tumor registrar. The CPQ agreed with data collected by the tumor registry in 96% of cases for place of birth, 84% of cases for occupational history, 91% of cases for tobacco use, and 88% of cases for number of pregnancies or live births. The Cancer Patient Questionnaire is complete and easy to use and may replace the chart review in the collection of these data.

Notes

Supported by the Scholarships for Research in Medicine Program, Department of Medicine, University of Missouri‐Columbia School of Medicine.

Department of Medicine, University of Missouri‐Columbia School of Medicine.

Tumor Registry, Medical Records, University of Missouri Hospital and Clinics.

Department of Statistics, University of Missouri‐Columbia College of Arts and Sciences, Columbia, MO.

Medical Service, Harry S. Truman Veterans Hospital, Columbia, MO.

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