AIDS Care

Psychological and Socio-medical Aspects of AIDS/HIV

Volume 35, 2023 - Issue 8

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Research Article

The Global Task Force for Chronic Pain in People with HIV (PWH): Developing a research agenda in an emerging field

Jessica S. Merlina Division of General Internal Medicine, Section of Palliative Care and Medical Ethics, University of Pittsburgh, Pittsburgh, PA, USA;b Center for Research on Health Care, University of Pittsburgh, Pittsburgh, PA, USACorrespondence[email protected]

M. Hammc Qualitative, Evaluation, and Stakeholder Engagement Research Services, Center for Research on Health Care Data Center, University of Pittsburgh, Pittsburgh, PA, USA

F. de Abril Cameronb Center for Research on Health Care, University of Pittsburgh, Pittsburgh, PA, USA;c Qualitative, Evaluation, and Stakeholder Engagement Research Services, Center for Research on Health Care Data Center, University of Pittsburgh, Pittsburgh, PA, USA

V. Bakerd Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Cicely Saunders Institute, King’s College London, London, UK

https://orcid.org/0000-0002-0938-5109

D. A. Brownd Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Cicely Saunders Institute, King’s College London, London, UK;e Therapies Department, Chelsea and Westminster Hospital NHS Foundation Trust, London, UK

https://orcid.org/0000-0002-4956-243X

C. L. Cherryf Alfred Health, Monash University and Burnet Institute, Melbourne, Australia;g University of The Witwatersrand, Johannesburg, South Africa

E.J. Edelmanh Yale Schools of Medicine and Public Health, New Haven, CT, USA

M. Evangelii Department of Psychology, Royal Holloway University of London, Egham, UK

R. Hardingd Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Cicely Saunders Institute, King’s College London, London, UK

https://orcid.org/0000-0001-9653-8689

J. Joshj British HIV Association (BHIVA), London, UK

H. I. Kempk Department of Surgery & Cancer, Imperial College London, London, UK

https://orcid.org/0000-0001-5657-3009

C. Lichiusb Center for Research on Health Care, University of Pittsburgh, Pittsburgh, PA, USA

V. J. Maddenl Pain Management Unit, Department of Anaesthesia and Perioperative Medicine, Neuroscience Institute, University of Cape Town, Cape Town, South Africa

K. Nkhomad Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Cicely Saunders Institute, King’s College London, London, UK

https://orcid.org/0000-0002-2991-8160

K. K. O’Brienm Department of Physical Therapy, Rehabilitation Sciences Institute (RSI), Institute of Health Policy, Management and Evaluation (IHPME), University of Toronto, Toronto, Canada

https://orcid.org/0000-0002-1632-6537

R. Parkerl Pain Management Unit, Department of Anaesthesia and Perioperative Medicine, Neuroscience Institute, University of Cape Town, Cape Town, South Africa

A. Ricek Department of Surgery & Cancer, Imperial College London, London, UK

J. Robinson-Pappn Icahn School of Medicine at Mount Sinai, New York, NY, USA

C. A. Sabino Institute for Global Health, University College London, London, UK

https://orcid.org/0000-0001-5173-2760

D. Slawekp Montefiore Medical Center/Albert Einstein College of Medicine, Bronx, NY, USA

https://orcid.org/0000-0001-8403-8433

W. Scottq Institute of Psychiatry, Psychology & Neuroscience, King’s College London, London, UK

https://orcid.org/0000-0002-2529-9083

J. I. Tsuir University of Washington School of Medicine, Seattle, WA, USA

L. A. Uebelackers Brown University School of Medicine, Providence, RI, USA

https://orcid.org/0000-0002-2133-2202

A. L. Wadleyt Brain Function Research Group, School of Physiology, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa

https://orcid.org/0000-0001-5654-0047

B. R. Goodinu Department of Psychology, University of Alabama at Birmingham, Birmingham, AL, USA

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ABSTRACT

Chronic pain is a common comorbidity in people with HIV (PWH), with prevalence estimates of 25-85%. Research in this area is growing, but significant gaps remain. A Global Task Force of HIV experts was organized to brainstorm a scientific agenda and identify measurement domains critical to advancing research in this field. Experts were identified through literature searches and snowball sampling. Two online questionnaires were developed by Task Force members. Questionnaire 1 asked participants to identify knowledge gaps in the field of HIV and chronic pain and identify measurement domains in studies of chronic pain in PWH. Responses were ranked in order of importance in Questionnaire 2, which was followed by a group discussion. 29 experts completed Questionnaire 1, 25 completed Questionnaire 2, and 21 participated in the group. Many important clinical and research priorities emerged, including the need to examine etiologies of chronic pain in PWH. Pain-related measurement domains were discussed, with a primary focus on domains that could be assessed in a standardized manner across various cohorts that include PWH in different countries. We collaboratively identified clinical and research priorities, as well as gaps in standardization of measurement domains, that can be used to move the field forward.

KEYWORDS:

Acknowledgements

The authors would like to thank Ethan Lennox, Sarah Cox, Paula Lum, Carlos Del Rio, and Shao-Jun Tang for their participation and editorial assistance. This research is independent work supported in part by the National Institutes of Health (NHLBI R01HL147603 [BRG, JSM]) and the National Institute for Health Research (NIHR Postdoctoral Fellowship, PDF-2015-08-059 [WS]). The views expressed in this publication are those of the authors and not necessarily those of the NHS, the National Institute for Health Research or the Department of Health. Kelly K. O’Brien is supported by a Canada Research Chair (CRC) in Episodic Disability and Rehabilitation. Victoria J Madden is supported by the National Institutes of Health [K43TW011442].

Disclosure statement

No potential conflict of interest was reported by the author(s).

Correction Statement

This article has been corrected with minor changes. These changes do not impact the academic content of the article.

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