Health information seeking in the digital age: a national survey of women with disabilities

Abstract

Purpose

Access to high quality and accessible online health information (OHI) is critical for reducing disparities, overcoming barriers, and improving the health of women with disabilities. This study aimed to understand women with physical disabilities’ use of the Internet to access OHI, most often searched health topics, perceived usefulness of OHI, and self-reported eHealth literacy and challenges in OHI seeking.

Methods

We conducted a national online survey with 508 women with physical disabilities who used the Internet.

Results

Respondents utilized a wide variety of OHI resources. They searched a broad array of health and disability-related topics, with bowel/bladder and finding a physician the most highly searched topics. They generally had confidence in their eHealth literacy skills and ability to understand statistics in OHI. Nevertheless, although our sample consisted of a majority of highly educated internet-users, a sizeable percentage found OHI seeking difficult and frustrating, did not find the information very helpful, and had concerns about the quality of information.

Conclusions

This study serves as a call to action to disability and rehabilitation scientists, health care providers, and other health professionals to enhance the availability and accessibility of OHI critical to empowering women with physical disabilities to make well-informed health decisions.

Implications for rehabilitation

• Access to high quality online health information (OHI) is critical for reducing disparities, overcoming barriers, and improving the health of women with disabilities.

• Many of the women with disabilities in our study found OHI seeking difficult and frustrating, did not find the information very helpful, and had concerns about the quality of the information.

• Disability and rehabilitation scientists, health care providers, and public health and health policy professionals need to do more to enhance the availability and accessibility of OHI and resources critical to empowering women with physical disabilities to make well-informed health decisions.

• Physical medicine and rehabilitation scientists are encouraged to develop and improve assistive technologies needed for accessing OHI, which in turn can promote the independent functioning of people with disabilities.

Keywords:

• Online health information seeking
• eHealth literacy
• women
• disability
• survey study

Acknowledgements

This work was supported by grant G08LM012702 from the National Institutes of Health, National Library of Medicine to Baylor College of Medicine with the late Margaret A. Nosek, PhD serving as principal investigator. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. The authors recognize the contributions of Dr. Nosek and dedicate this work to her steadfast efforts promoting the health of women with disabilities and her passionate pursuit of equity for women with disabilities. We acknowledge the support of our community advisory board, medical advisory board member, and project staff. We extend appreciation to the centers for independent living that assisted us with recruitment. We also gratefully acknowledge Mick Owens for his editorial assistance. Finally, we thank the women with disabilities whose participation made this study possible.

Disclosure statement

No potential conflict of interest was reported by the author(s).

Additional information

Funding

This work was supported by the National Library of Medicine of the National Institutes of Health under Award Number G08LM012702.