Genes Spell Danger: Mental health service users/survivors, bioethics and control

Abstract

The focus of this discussion is disability, culture and identities in relation to bioethics and mental health service users/survivors. Taking account of the inclusion of mental health service users/survivors within the administrative categories of disability, this article argues for debates about bioethics and disabled people to address and include the perspectives of psychiatric system survivors, and their concerns about psychiatry and bioethics. There is currently an increasing emphasis in both the media and government policy on the danger, threat and 'otherness' of mental health service users, and increasing provisions to restrict their civil and human rights. This development is international and has also tended to be racialised in its public presentation. While genetic approaches to physical and sensory impairment can be seen to be concerned with physical and bodily conformity, genetic approaches to madness and mental distress that are gaining increasing power and official legitimacy, are also closely associated with regulating diversity, divergence and dissent in thinking and perceptions. The aim of this article is raise and explore these issues, and highlight the common and different concerns for us as survivors and disabled people as a basis for encouraging alliances, shared understanding and common resistance.