The dynamics of support over time in the intentional support networks of nine people with intellectual disability

Abstract

This paper describes the dynamics of support observed in the networks of nine adults with intellectual disability, developed by families who had committed to achieving a ‘good life’ for this person. Network members, including the person with a disability, participated in this longitudinal ethnographic study. Three principles that underpinned their work were positive and respectful relationships, mentorship and providing opportunities and expectations. Participants worked actively with other network members to develop higher levels of autonomy and social participation.

Keywords:

• intellectual disability
• reciprocity
• support networks
• relationships
• community living
• participation

Acknowledgements

This research was supported under the Australian Research Council Discovery Project funding scheme (Project number DP0773962). The views expressed herein are those of the authors and are not necessarily those of the Australian Research Council.