When a family member has an intellectual handicap

ABSTRACT

Oral histories of ten close relatives of people over the age of 50 defined as intellectually handicapped have been collected as part of the New Zealand Ageing and Intellectual Handicap study. Many of the individuals with intellectual handicap were institutionalized from an early age; some had little or no contact with family members for a very long time; others lived continuously at home. The qualitative data record over 50 years' experience of having a family member with intellectual handicap, from early childhood through to middle or old age, and outline concerns about deinstitutionalisation and the future. It is concluded that families cannot go it alone and that the full participation of people with disabilities in community life and culture depends on well-resourced public policies and programmes of inclusion.