Parental Participation in Issues Concerning their Sons and Daughters with Learning Disabilities

Abstract

'Participation' is much in vogue in current service parlance. This paper brings together literature on the participation of parents of people with learning disabilities. Research has focused mostly on participation during the school career, although increasing attention is being paid to participation at times of transition to adult services and moves from the family home. A number of issues surrounding participation are discussed: information, service philosophy, parental expectations for their sons and daughters and relative levels of parental and professional responsibility, aiming to illustrate the complexity of this concept and issues that exist for research and practice.