Beginnings: Participatory action research and adults with developmental disabilities

Abstract

This paper discusses the emergence of Participatory Action Research (PAR), and its use with individuals with cognitive disabilities. A brief history of PAR is given, with a focus on its uses for empowerment and self-determination for persons with disabilities. Using literature-based standards for participatory, action and emancipatory research approaches, a 3-year research project with goals of increasing community participation by adults with developmental disabilities is described and evaluated. The "Transition into Community Life" project used an adapted form of the "Farmer-back-to-Farmer" PAR model (Rhoades & Booth, 1982), and the article discusses the successes and challenges of the model in a context quite different from how it was originally designed. The author describes lessons learned concerning the use of PAR with people with developmental disabilities. The article concludes with a brief discussion of the feasibility of PAR with individuals with cognitive challenges.