Development and validation of a quality of relationship intervention for stroke survivor-family caregiver dyads

ABSTRACT

Background: The relationship between stroke survivors and family caregivers is critical for the well-being of both dyad members. Currently, there are few interventions targeted at dyads and focused on strengthening the relationship between survivors and family caregivers.

Objectives: This study reports on the development of a customizable, strengths-based, relationship-focused intervention driven by the real-world experience and advice of stroke dyads. It also describes the “tips” that survivors and family caregivers offered for dealing with relationship challenges after stroke.

Methods: Content of the intervention, including relationship tips, was derived from semi-structured interviews with N= 19 stroke dyads. A modified Delphi process with a national panel of 10 subject matter experts was used to evaluate and refine the content of the intervention and the associated screening tool.

Results: Seventeen domains of relationship challenges and tips were identified. Consensus was reached among experts that the intervention content was relevant to the goal of helping survivors and family caregivers maintain a strong relationship after stroke; (2) clear from the perspective of stroke survivors and family caregivers who would be using it; (3) accurate with respect to the advice being offered, and; (4) useful for helping stroke survivors and family caregivers improve the quality of their relationship.

Conclusions: This study extends the limited body of research about dyadic interventions after stroke. The next steps in this line of research include feasibility testing the intervention and evaluating its efficacy in a larger trial.

KEYWORDS:

• Stroke
• family caregivers
• dyads; couples
• relationships
• intervention
• content validity

Acknowledgments

Thank you to [other study staff - blinded for review] for their assistance with this study and to [expert panel members - blinded for review] for the valuable feedback they provided. We also thank the stroke survivors and family caregivers who generously provided data upon which the Hand in Hand program is based.

Disclosure of interest

The authors report no conflicts of interest.

Additional information

Funding

This work was supported by the [blinded for review].