Dementia early diagnosis: Triggers, supports and constraints affecting the decision to engage with the health care system

Abstract

Objectives: There is very often a lengthy delay between first noticing symptoms of dementia and making first contact with Health Care Professionals (HCPs). This article identifies influences on the decision to contact HCPs for the first time.

Method: Qualitative thematic analysis of 20 case studies of carer experience. Participants were carers of people who attended Memory Clinic services.

Results: Key themes emerging were: triggers, supports and constraints. The analysis draws out the social nature of the decision to engage with the health care system, considering the negotiations that occur and the areas that are contested.

Conclusions: Constraints generate delays at several points during the journey from first noticing something may be amiss to making first contact with an HCP. Supports and Triggers legitimise carer's actions to contact HCPs for the first time.

Keywords:

• dementia
• health decisions
• carers
• early diagnosis
• triggers

Notes

Note

1. Includes the person who contacted an HCP in Stage 1.