Perceptions of a psychoeducation program for caregivers of persons with dementia at end of life: a qualitative study

ABSTRACT

Objectives: Caregivers (CG) of persons with dementia have described positive and challenging experiences related to caring for a person with a neurological disease. This study explored perceived benefits and challenges of a unique psychoeducation program provided at end of life (EOL) jointly attended by current and bereaved CGs of persons with dementia, residing in a hospital Specialized Care Unit.

Method: Semi-structured interviews were held with sixteen participants and analyzed with content analysis.

Results: Program benefits were perceived by CGs such as: (i) enhanced emotional well-being, (ii) increased feelings of preparedness for EOL, and (iii) personal growth into role models. Within the organization the program was perceived as promoting relationship-centered care and increasing resources. Challenges such as diverse CG preferences, day-time scheduling and limited involvement of unit staff were perceived as barriers.

Conclusions: This program fills a gap in care for CGs at the critical stage of EOL with continuity into bereavement. Implications for practice include: increasing engagement of unit staff for involvement and tailoring of the program, and translation of the program into alternative settings like long-term care. Policies outlining the support needs and resources for CGs through EOL within and outside the hospital are necessary to ensure access and continuity of care.

KEYWORDS:

• Dementia and cognitive disorders
• qualitative methods
• psychosocial interventions
• caregiving

Disclosure statement

The authors report no conflicts of interest.

Additional information

Funding

This work was supported by the Canadian Frailty Network (CFN) [grant number SIG2014-IS]; the Geriatric Education Research in Aging Sciences Centre (GERAS) McMaster University, Hamilton Health Sciences at St. Peter's Hospital; and Shalom Village Nursing Home in Hamilton, Ontario via student scholarships.