Usability and acceptability of internet-based interventions for family carers of people living with dementia: systematic review

Abstract

Objectives: Internet-based interventions can help carers of people living with dementia to cope with care-related challenges and can help improve their wellbeing. This systematic review aimed at investigating the criteria of usability and acceptability of self-guided internet-based interventions for family carers of people living with dementia. Method: Searches were conducted on PubMed, Virtual Health Library Regional Portal (Americas), MEDLINE, PsycINFO, Scopus, and Cochrane. Studies published up to December 2019, in English, Portuguese, or Spanish, were eligible. We followed the definition/criteria from ISO ISO-9241-11 for usability (efficiency, effectiveness, and satisfaction) and acceptability (barriers for using and utility). Methodological quality was evaluated using specific tools according to each study design. Results: Ten studies were included, all of which had high methodological quality. Carers of people living with dementia indicated that internet-based interventions were mostly effective, efficient, and satisfactory. They considered these to be informative, relevant, and functional, highlighting the utility and intention of using the resource in the future. The high heterogeneity in the terms and methods used to evaluate usability and acceptability hindered cross-study comparisons, however internet-based interventions were considered useful and acceptable by most carers. Conclusion: Future research should consider expanding the criteria of usability and acceptability to better reflect the needs of this population.

Keywords:

• Caregivers
• dementia
• internet-based interventions
• usability
• acceptability

Additional information

Funding

Brazilian Ministry of Health (TED 065/2018), Conselho Nacional de Desenvolvimento Científico e Tecnológico - CNPq (Grant number 306571/2018-8), Coordenação de Aperfeiçoamento de Pessoal de Nível Superior -CAPES (Grant number 001), São Paulo Research Foundation - FAPESP (Grant number 2017/24026-0).