Service and support needs of Australian carers supporting a family member with disability at home

*This manuscript was accepted under the Guest Editorship of Jeff Sigafoos

Abstract

Background As part of an international, multicentre project, the service and support needs of Australian family carers were investigated.

Method A sample of 1,390, 448 family carers completed a self-report survey, including an adaptation of the Family Needs Survey (FNS) and several open-ended questions. A mixed method design was used, employing quantitative and qualitative analyses.

Results On the FNS the most frequently endorsed items were those relating to the need for information about services and, in particular, future, out-of-home accommodation. Similarly, the need for respite services was endorsed by over 80% of respondents. Comments indicated that access to and the quality of respite, day support, and therapy programs were a priority.

Conclusions Participants expressed the need for greater access to information. Access to appropriate respite options, together with quality day support and therapy services, remain a priority for family carers.

Keywords:

• carers
• family quality of life
• support needs
• service needs
• mixed methods

Notes

*This manuscript was accepted under the Guest Editorship of Jeff Sigafoos