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Feature Articles

Beyond ‘bad’ behaviors: A call for occupational scientists to rethink autism

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Pages 575-590 | Accepted 06 Sep 2022, Published online: 11 Nov 2022
 

ABSTRACT

In this paper, I explore how autistic behaviors are rendered Othered transgressive acts in general research and in the figured world of occupation. I assess how the normalization agenda, which aims to condition autistic people into appearing abled, is associated with endemic disparities. I contend that occupational science has often countered anti-autistic stigma. However, I analyze how the field has perpetuated ableism by replicating normalization ideology and through its silence on the occupational significance of autistic behaviors. To contrast dominant assumptions, I examine autistic ways of being within occupational frameworks. I propose that the field can foster inclusion, rethink its figured worlds, and recognize autistic behaviors to promote social responsiveness. I argue these steps are ethically imperative as evidence on the harms of normalization accumulates.

在这篇论文中,我探讨了自闭症行为是如何在一般研究和特定生活活动领域中被认为是异类越界行为的。 我评估了正常化议程如何与地方性差异相关联,前者目的是使自闭症患者看起来是有能力的。 我认为生活活动科学经常反对反自闭症耻辱。 然而,我分析了该领域如何通过复制规范化意识形态和对自闭症行为的生活活动意义保持沉默来保持能力主义。 为了对比主流假设,我研究了在生活活动框架内的自闭症表现形式。 我建议该领域可以通过促进包容,重新思考其特定领域,认可自闭症行为,来促进社会反响。 我认为这些步骤在道义上是必要的,因为关于正常化危害的证据越聚越多。

RESUME

Dans cet article, j'explore la manière dont les comportements autistiques sont considérés comme des actes transgressifs dans la recherche et dans le monde figuré de l'occupation. J'évalue comment l'agenda de normalisation, qui vise à conditionner les personnes autistes pour qu'elles paraissent capables, est associé à des disparités endémiques. Je soutiens que la science de l’occupation a souvent contré la stigmatisation anti-autiste. Cependant, j'analyse comment ce domaine a perpétué le capacitisme par la reproduction d’une idéologie de la normalisation, ainsi que par son silence sur la signification occupationnelle des comportements autistiques. Pour contrer les postulats dominants, j'examine les façons d'être des personnes autistes à partir d’une perspective occupationnelle. Je propose que la science de l’occupation puisse soutenir l'inclusion, repenser ses mondes figurés et reconnaître les comportements autistiques pour promouvoir la réceptivité sociale. Je soutiens que ces mesures sont impératives sur le plan éthique, car les données probantes des méfaits de la normalisation s'accumulent.

En este artículo exploro cómo en la investigación general y en el mundo figurado de la ocupación los comportamientos autistas se convierten en actos transgresores “del otro” [othered]. Al respecto, evalúo cómo la agenda de normalización, que pretende condicionar a los autistas para que parezcan habilitados, se asocia con desigualdades endémicas. Sostengo que, a menudo, la ciencia ocupacional ha contrarrestado el estigma antiautístico. Asimismo, analizo cómo este ámbito ha perpetuado el capacitismo, replicando la ideología de la normalización y permaneciendo en silencio sobre el significado ocupacional de los comportamientos autistas. Para contrastar los supuestos dominantes, examino las formas de ser autistas dentro de los marcos ocupacionales. Propongo que esta disciplina puede fomentar la inclusión, repensar sus mundos figurados y reconocer los comportamientos autistas para promover la capacidad de respuesta social. Argumento que estos pasos son éticamente imperativos a medida que se acumulan las pruebas sobre los daños provocados por la normalización.

Acknowledgements

I honor the Chuma, Tongva, and Kizh peoples as community partners and traditional caretakers of the lands in Los Angeles County, where this research was conducted. I extend gratitude to my family, friends, and my mentor, Dr. Amber Angell. I especially thank my father, William Edward Taylor, for imparting my love of the written word. You helped me forge a path out of silence.

Disclosure Statement

No potential conflict of interest was reported by the author(s).

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