An innovative outcome-based care and procurement model of hemophilia management

ABSTRACT

Hemophilia is a rare bleeding disorder associated with spontaneous and post-traumatic bleeding. Each hemophilia patient requires a personalized approach to episodic or prophylactic treatment, but self-management can be challenging for patients, and avoidable bleeding may occur. Patient-tailored care may provide more effective prevention of bleeding, which in turn, may decrease the likelihood of arthropathy and associated chronic pain, missed time from school or work, and progressive loss of mobility. A strategy is presented here aiming to reduce or eliminate bleeding altogether through a holistic approach based on individual patient characteristics. In an environment of budget constraints, this approach would link procurement to patient outcome, adding incentives for all stakeholders to strive for optimal care and, ultimately, a bleed-free world.

KEYWORDS:

• Prophylaxis
• hemophilia
• procurement model
• personalized therapy
• patient-centered care
• tailored care

Acknowledgements

The authors are grateful to Roman Irsiegler for his critical review of the manuscript.

Financial & competing interests disclosure

All authors are full-time employees of Baxalta US Inc/Baxalta Innovations GmbH. The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed.

Notes

1. https://www.hemophilia.org/Bleeding-Disorders/Types-of-Bleeding-Disorders/Retrieved 31 Nov 2015