Living with Endometriosis: The Role of the Internet in Supporting the Diagnosis and Treatment Process

Abstract

Those living with endometriosis turn to online resources for information and support. Despite an abundance of information, delays in diagnosis and perpetuation of untruths remain. This study aims to assess and evaluate the role of the Internet in the diagnosis, treatment options and support of people living with endometriosis. The results of this mixed-methods study show that people are very active information seekers with the majority favoring national endometriosis websites and their associated Facebook accounts. There is a positive attitude toward information and sharing experiences online, but women trust official endometriosis organizations more than other resources on the Internet.

Keywords:

• Endometriosis
• Internet
• online information
• support