Design after design to bridge between people living with cognitive or sensory impairments, their friends and proxies

Abstract

A carer or teacher often plays the role of proxy or spokesperson for a person living with an intellectual disability or form of cognitive or sensory impairment. Our research undertook co-design with people living with cognitive and sensory impairments and their proxies in order to explore new ways of facilitating communication. We developed simple functioning interactive prototypes to support people with a diverse range of competencies to communicate and explore their use. Deployment of the prototypes enabled use, appropriation and design after design by our two participant groups; adults living with cognitive or sensory impairments and children identified with language delays and autism spectrum disorder. The prototypes supported concrete expression of likes, dislikes, capabilities, emotional wants and needs and forms of expression that hitherto had not been fostered, further informing design. Carers and designers were surprised at the ways in which the technology was used and how it fostered new forms of social interaction and expression. We elaborate on how design after design can be an effective approach for engaging people living with intellectual disabilities, giving them greater capacity for expression and power in design and offering the potential to expand and deepen their social relationships.

Keywords::

• intellectual disabilities
• autism spectrum disorder
• technology probes
• reflective agile iterative design
• proxy
• design in use
• design after design

Acknowledgements

We thank all of the people who generously gave their time to participate in these research projects and the reviewers and editors for their constructive and insightful comments.

Notes

^1. Email: [email protected]

^2. Email: [email protected]

^3. Email: [email protected]

^4. Email: [email protected]