The challenges of engaging individuals at high-risk of developing psychosis: reflections from research assistants within a randomised control trial

ABSTRACT

Background

Individuals at risk of psychosis typically underutilise mental health services and disengage from clinical trials. Their family context, culture and beliefs about service involvement may influence their motivation and likelihood to engage.

Method

Reflections and quotes collected from research assistants (RAs) on the Individual and Family Cognitive Behavioural Therapy (IFCBT) trial were examined.

Results

Individuals and family members experienced stressful life events. RAs developed strategies to further engage service users, including flexible, after-hours appointments and liaising with family members.

Discussion

Service users’ disengagement may be linked to prior service dissatisfaction, busy lifestyles and positive perceptions of their health. Involving families could help improve and facilitate long-term engagement.

KEYWORDS:

• Psychosis
• high-risk
• engagement
• clinical trial
• early intervention

Acknowledgments

We would like to thank all the young adults and their families who took the time to participate in the research trial and the qualitative interviews. The authors would like to acknowledge the valuable contribution made to this project by all members of the IFCBT team.

Disclosure statement

No potential conflict of interest was reported by the authors.