Attitudes and experiences of general practitioners who provided health care for people with intellectual disabilities: a South Australian perspective

Abstract

While health care for people with an intellectual disability in Australia has transitioned from institutional specialisation to a mainstream primary care model, access and quality of health care in this system has been questioned. This study aimed to explore the general practitioner’s perspective in providing this level of care in the community. A qualitative study using semi-structured interviews to explore attitudes, experience, knowledge, and supports of South Australian general practitioners was conducted. Thematic analysis was used to identify key themes. Eight general practitioners were interviewed, two from rural South Australia and six in urban practice. Three key themes were identified: a fear of the unknown; complexity of patient needs; and emotional and financial burnout. To improve health outcomes for people with intellectual disabilities, general practitioners need education pertaining to the specific health needs of people with intellectual disabilities, improved collaboration between service providers and specialists; and financial recognition for providing care to patients with complex health needs. Public awareness is required to improve access and quality of care.

Keywords:

• General practice
• primary care
• intellectual disability
• qualitative
• education

Acknowledgements

We would like to thank all of the general practitioners who participated in this study for their time, thoughts, and unrecognised efforts in providing care to people with intellectual disabilities in the community. Gratitude is also extended to the Adelaide Outback General Practice Training Research Committee, Dr Jaklin Elliot, School of Public Health, University of Adelaide, Nicole Pollock, Dr Susan Wearne, and Dr Louise Stone from the Department of Health Academic team in their guidance with qualitative research. Lastly, our gratitude is extended to Associate Professor Kate Laver for her time and recommendations in editing.

Disclosure statement

No potential conflict of interest was reported by the author(s).

Additional information

Funding

The project was funded through the Australian Department of Health General Practice Registrar Academic Research Grant.